Activities Calendar National MS Society—Northern California Chapter
MARCH–APRIL 2009 Phyllis Seidman Annual Lecture Series
MS—Bringing it All Home: What We Know to be True and What We Can Expect in the Future This lecture will feature Les Dorman, MD, Professor of Neurology and Neurological Sciences and Co-Director of the MS Center at Stanford University, Jeffrey Dunn, MD Clinical Associate Professor Neurology & Neurological Sciences and Co-Director of the MS Center at Stanford University and JongMi Lee, NP, MS Center at Stanford University.
Tuesday, March 31, 2009
Palo Alto Medical Foundation 795 El Camino Real, Palo Alto, CA, 94301. Check-in will begin at 6:00 p.m. and the program will begin at 6:30 p.m. You must pre-register for this program prior to March 28th. A confirmation letter will be sent 7 days prior to the event. Light refreshments will be served. Please call 1-800-344-4867 to register, seating is limited.
On December 2, 2008 the disability awareness movement tragically lost Phyllis Seidman when she was fatally struck by a car. For over 15 years Phyllis was the driving force behind the Chapter’s Palo Alto Self Help Group and monthly educational programs. A former occupational therapist that lived with MS for over 25 years, her perspective and insight were invaluable to the Society staff and volunteers. To honor Phyllis’ commitment to our community, we are pleased to announce the establishment of the Seidman Lecture Series.This annual lecture will continue the tradition of offering cutting edge information to our members.
Table of Contents
1 Phyllis Seidman Annual Lecure Series 2 New Emotional Wellness Tele-Series 3 Clinical and Demographic Predictors in early MS 4 What’s New Doc?—Update on MS with Dr. Schafer
5 Dealing with Pain and Spasticity 6 Orientation for the Newly Diagnosed 7 New 8-Week Monterey Therapy Group 8 Community Event: The Beat Rolls On
JOIN THE MOVEMENT
Activities Calendar National MS Society—Northern California Chapter
Chapter Headquarters
800-344-4867 415-230-6678 1700 Owens St. Suite 190 San Francisco, CA 94158
Sacramento Office
800-344-4867 916-927-9113 4225 Northgate Blvd, Suite 4 Sacramento, CA 95834
Silicon Valley Office 800-344-4867 408-988-7587 2589 Scott Blvd Santa Clara , CA 95050
If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with mulitple sclerosis. Talk to your health professional or contact the National MS Society at 1-800-344-4867 or www. nationalmssociety.org to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. Information provided by the National MS Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely becasue they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.
2
New Emotional Wellness Tele-Series Beginning in March 2009!
The Northern California Chapter of the National MS Society is excited to announce the launch of a new emotional wellness tele-series with Catherine Freemire, LCSW, a Licensed Clinical Social Worker and Life Coach. Catherine was a featured presenter at the 2009 Annual Self Help Leader Training Conference and led a dynamic and energizing workshop on personal empowerment. Catherine brings over 25 years of experience as a Family Therapist, Workshop Trainer & Adjunct Professor & has 10 years experience as a Life Coach including Parenting Coaching. Catherine’s work aims to help her clients live a more balanced and meaningful life. Catherine will facilitate three calls on the following topics: 1. Tuesday, March 24 at 2–3pm Keys to Authentic Happiness 2. Tuesday, April 7 at 2–3pm Leading with Your Strengths 3. Tuesday, April 28 at 2–3pm Rituals for Inner Peace and Life Balance Clients are encouraged to participate in the whole series but are welcome to join on a call by call basis depending on interest and ability. For more information or to register for this program, please call 1-800-344-4867.
© 2009 NMSS, Northern California Chapter
MARCH–APRIL 2009
Pharmaceutical Company Sponsored Programs NOTE: As a courtesy to you, we are informing you of this program. This is not offered or sponsored by the MS Society.
Latest Advances in Treating & Managing MS
The Latest Updates in MS sponsored by TEVA Neuroscience
San Ramon—Thursday, March 12
th
6:30pm–8:30pm San Ramon Marriott 2600 Bishop Drive
Featured Speakers: Jeffrey Dunn, M.D., Associate Director, Stanford MS Center and Sue Kelly, MS patient advocate. To register call 800-887-8100.
Santa Rosa—Saturday, March 14th 10am–12pm Hyatt Vineyard Creek Hotel & Spa 170 Railroad Street
Milpitas—Saturday, March 21st 10am–12pm Sheraton San Jose Hotel 1801 Barber Lane
Featured Speakers: Allan Bernstein, MD is the Co-Director at the Clinical Research Center of the North Bay & Karen Webb, MS patient advocate. Space is limited so reserve your spot early by leaving a message with Kymberli Fant at Bayer at 888-792-2937 ext. 7328.
Clinical and Demographic Predictors in early MS: Lessons from the Initial Demyelinating Event
Emmanuelle L. Waubant, MD, PhD, Associate Professor of Neurology at UCSF, Director, UCSF Regional Pediatric MS Clinic and Director, UCSF MS Center Clinical Research will be discussing the appearance of the first MS Symptoms and what they predict in the progression of MS. This is part 2 of the National MS Society—Northern California Chapter
4 part Champions against MS Series offered by UCSF in partnership with the National MS Society.
Thursday, March 19, 2009
5:30–8:00pm Fisher Room Mission Bay Conference Center, 1675 Owens Street, San Francisco Dinner and parking complimentary. Registration begins March 1, 2009. Please register by phone at 415-353-9426. Seating is limited for this event.
3
Activities Calendar National MS Society—Northern California Chapter
What’s New Doc?—An Update on MS with Dr. John Schafer Attend this program to find out about current MS treatment and research as well as what is on the horizon. Do you have questions about MS symptoms or treatments that you want more explanation about? When calling to register for this program, include your questions about MS. Dr. John Schafer, voted one of the top neurologists in Sacramento Magazine, will address your questions and more at this informative program. Dr. John Schafer is a neurologist at Mercy San Juan and soon to open, Mercy MS Center in Carmichael. Dr. Schafer has been a Volunteer and a board member with the National Multiple Sclerosis Society for nearly 20 years.
Redding Sunday, March 22nd
10:00–11:30am (NMSS Speaker) 12:00–3:00pm (HOPE4MS Open House) The Senior Center 2290 Benton Dr.
What’s New Doc?—Update on MS with Dr. John Schafer Dr. John Schafer will discuss current treatment and research in MS as well as answer member questions. Be sure to include your questions when calling to register for this program.
Modesto Saturday, April 11th 10:30am–12:00pm Holiday Inn Express 4300 Bangs Ave
Save the Date!! Eating Well with MS!
Dr. Marco Vespignani, Naturopathic Doctor (ND) and Medical Director of Restorative Health at the Institute for Restorative Health in Davis has worked closely with many patients with MS to help them build resiliency and health through nutrition.
Chico Saturday, May 9th
Following this program stay for the “Family & Friends” Open House, hosted by HOPE4MS (A Redding self help support group). Local business and resources will provide information and speak regarding living well in the North Counties. There is no charge for this Open House.
4
MARCH–APRIL 2009
Dealing with Pain & Spasticity Pain and spasticity are common symptoms for a person with MS. Based on a formal study funded by the National MS Society as many as 80% of people with Primary Progressive MS have identified spasticity as affecting their daily living and 64% are adversely affected by pain. Find out the causes, standard practices and latest advances dealing with these symptoms and how to maximize your control.
Roseville Monday, March 23rd
6:00–8:30pm Sutter Rehabilitation Institute Sutter Roseville Medical Center 6 Medical Plaza
Free Tele-Care Service Offers Check-In Calls at Home If you live alone, are homebound, disabled or recovering from an illness you are eligible to receive free phone call check-ins if you are a resident of Alameda, Contra Costa or San Francisco Counties. Tele-Care volunteers offer this free service as a source of comfort and care. Along with a daily call, you will receive a monthly newsletter, greeting cards and birthday announcements. If you are interested in more information or to register yourself or a loved one for this program please call Tele-Care at 510-204-4487.
{two feet (tu fet) n. the distance between you and a cure for MS.}
Join a community of people who want to create a world free of MS—make a move that can make a difference. “Since I’ve had MS, I’ve had many days in which I’ve cursed my feet, convinced they are conspiring to limit my activities and diminish my spirit. At least one day a year, I’m certain my feet are my friends—the closest connection I have to a cure for MS.” — Mark W., Diagnosed with MS in 1994
Register today @ walk.msconnection.org for Walk MS 2009! If you have any questions email us at walk@msconnection.org or call us at 1-800-344-4867.
Saturday, April 18th San Jose: Arena Green
Sunday, April 19th Monterey Bay: Lover’s Point Park
Saturday, April 25th Alameda: Crown Memorial Park Eureka: Downtown Eureka Modesto: Downey Community Park Rocklin/Roseville: Adventure Christian Church Yuba City: Kingswood Park
Sunday, April 26th Walnut Creek: Heather Farms Park Sacramento: West Steps of State Capitol San Francisco: Crissy Field Santa Rosa: Druid Hall
National MS Society—Northern California Chapter
5
Orientation for Newly Diagnosed Are you newly diagnosed with Multiple Sclerosis? A diagnosis of MS can create many unexpected emotions that leave you with a strong need to understand the changes you may be facing. On a monthly basis, this informative program, conducted by trained National MS Society staff and a registered nurse specializing in MS, will address the most common concerns for people who are newly diagnosed. This orientation provides an excellent opportunity to have any questions you may wish to have asked and learn more about the resources available to persons with MS. Persons diagnosed within the past two years and their family and friends are welcome.
Santa Clara Office
First Tues. of each month 6:30 - 8:30pm 2589 Scott Blvd.
San Francisco Office
Sacramento Office
First Wed. of each month 6:30 - 8:30pm 1700 Owens St., Suite 190
First Thurs. of each month 6:30 - 8:30pm 4225 Northgate Blvd., Suite #4
Pre-registraion is required. For more information or to register please call 1-800-344-4867
6
MARCH–APRIL 2009
Activities Calendar
National MS Society—Northern California Chapter
New 8-Week Monterey Therapy Group Beginning in March 2009! The Northern California Chapter of the National MS Society and the MS Quality of Life Project are excited to announce the launch of a collaborative counseling group. This 8-week counseling series will be a supportive forum for people with MS that will be process-oriented and therapeutic in nature. This counseling group will be facilitated by co-leaders, Marilyn Howell, LCSW and Andrea Dowdell, MSW.
Monterey Mondays, March 2nd–April 20th
Wellness Programs Update A listing of ongoing physical activity classes is available online under Client Programs. The chapter is currently creating a Wellness Directory that will include all of the physical activity classes to which we refer MS Society members; this will be available in Spring 2009. If you have any questions about current classes or would like to suggest a class please contact Sarah Hester at sarah.hester@ nmss.org or 415-230-6678 x2019.
In-Person Counseling Group 1:30-3pm MS Quality of Life Office 519-B Hartnell Street, Monterey
If you are interested in participating in this group or would like more information please contact the MS Quality of Life Project at 831-333-9091.
National MS Society—Northern California Chapter
7
Activities Calendar National MS Society—Northern California Chapter
Community Event: The Beat Rolls On
Local Musician Chris Anthony attempts to break the Guinness World Record™ for The Longest Individual Drum Roll! Come watch Chris break the record and drum for dollars, or participate in silent auction and raffle to win valuable prizes donated by Bay Area businesses, restaurants, wineries, and music shops.
San Carlos Saturday, March 21st
All proceeds benefit the Northern California Chapter of the National MS Society.
• 1:00–4:45pm Public Drumming for Dollars Event
Admission is free. For more information contact Lauri Clark, lauri_clark@yahoo.com, 650-996-0059.
Location: Tierra Linda Middle School Gym 750 Dartmouth Ave., San Carlos
• 9 am–1pm Chris Attempts to Break the Record
Community events are inspired, initiated and produced entirely by volunteers 1700 Owens Street, Suite 190 San Francisco, CA 94158 Forwarding Address Requested
FREE MATTER FOR THE BLIND OR HANDICAPPED