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Survivorship Resource Guide Survivorship is an ever-evolving concept, as are guidelines for the care of this population. Survivorship can touch on medical, physiological, legal, and financial aspects of life. This list is a sampling of organizations that focus on survivorship, many of which offer links to multiple resources. Organization
Phone number
Website
American Cancer Society
800.227.2345
www.cancer.org
American Institute of Cancer Research
800.843.8114
www.aicr.org
Association of Cancer Online Resources
212.226.5525
www.acor.org
Association of Oncology Social Work
215.599.6093
www.aosw.org
info@aosw.org
American Society of Clinical Oncology
888.651.3038
www.cancer.net/patient/survivorship
contactus@cancer.net
Camp Mak-a-Dream
406.549.5987
www.campdream.org
camp@montana.com
800.813.HOPE
www.cancercare.org
info@cancercare.org
www.cancerandcareers.org
cancerandcareers@cew.org
CancerCare Cancer and Careers
aicrweb@aicr.org
Cancer Support Community (formerly The Wellness Community and Gilda’s Club)
888.793.9355
www.thewellnesscommunity.org
help@cancersupportcommunity.org
Cancer Survivors Unite
267.738.8760
www.cancersurvivorsunite.org
info@CancerSurvivorsUnite.org
Caring Ambassadors Program (CAP) Lung Cancer
503.632.9032
www.lungcancercap.org
cindy.langhorne@lungcancercap.org
Centers for Disease Control and Prevention (CDC) Cancer Survivorship
800.232.4636
www.cdc.gov/cancer/survivorship
cdcinfo@cdc.gov
Children’s Oncology Group’s Cure Search
800.458.6223
www.survivorshipguidelines.org
info@curesearch.org
626.256.HOPE ext. 63829
prc.coh.org
prc@coh.org
Disability Rights Legal Center
866.843.2572
www.disabilityrightslegalcenter.org
clrc@lls.edu
Fertile Hope (a LIVESTRONG initiative)
866.965.7205
www.fertilehope.org/healthcare professionals/index.cfm
First Descents
303.945.2490
www.firstdescents.org
info@firstdescents.org
888.GILDA.4U
www.gildasclub.org
info@gildasclub.org
www.journeyforward.org
info@journeyforward.org
City of Hope Pain & Palliative Care Resource Center
Gilda’s Club Worldwide Journey Forward Lance Armstrong Foundation
877.236.8820
www.livestrong.org
Leukemia & Lymphoma Society
800.955.4572
www.leukemia-lymphoma.org
Lymphoma Research Foundation
800.235.6848 (New York) 800.500.9976 (Los Angeles)
www.lymphoma.org
Memorial Sloan-Kettering Cancer Center
212.639.2000
www.mskcc.org
The Minnie Pearl Cancer Foundation
877.467.1936
www.minniepearl.org
pat@minniepearl.org
800.4.CANCER
dccps.nci.nih.gov/ocs
ncidccpspdrm@mail.nih.gov
National Coalition for Cancer Survivorship
888.650.9127
www.canceradvocacy.org
info@canceradvocacy.org
National Patient Advocate Foundation
202.347.8009
www.npaf.org
action@npaf.org
www.nursingcenter.com/library/ static.asp?pageid=721732
Customerservice@Nursing Center.com
www.thecancerjourney.org
clinical@ons.org
www.planetcancer.org
contactus@planetcancer.org
www.realtimecancer.org
hope@realtimecancer.org
National Cancer Institute Office of Cancer Survivorship
Nursing Center.com’s Prescription for Living Oncology Nursing Society’s The Cancer Journey
866.257.4ONS
Planet Cancer (a LIVESTRONG initiative) Real Time Cancer (Canada)
709.579.7325
Steps for Living
877.735.4673
Testicular Cancer Resource Center
helpline@lymphoma.org
getbusyliving@stepsforliving.org tcrc.acor.org
dougbank@alum.mit.edu info@thesamfund.org
The SAMFund for Young Adult Survivors of Cancer
866.439.9365
www.thesamfund.org
The Wellness Community
888.793.9355
www.thewellnesscommunity.org
888.393.FUND
www.ulmanfund.org
info@ulmanfund.org
818.508.5657
www.vitaloptions.org
info@vitaloptions.org
The Ulman Cancer Fund for Young Adults Vital Options International Working Against Cancer Young Survival Coalition Survivorship blog Pearlman Cancer Center
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September 2010 I VOL 3, NO 6
www.workingagainstcancer.org/ index.html 877.YSC.1011
help@cancersupportcommunity.org
contactus@workingagainstcancer.org
www.youngsurvival.org
info@youngsurvival.org
Website survivorshipforum.blogspot.com
GreeN HILL HeALtHCAre COmmUNICAtIONS