Sibaleni Nathi Count Us In
Volume 8- 2012
In this edition..... Nasal Congestion/Catarrh Slaying the Dragon of Assumptions Adulthood Branch News
Dssa Contact Details:
Tel: 011 484 8890/1 Email: Website:
WDSC 2012
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Who should Attend?
www.wdsc2012.org.za
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Sibaleni nathi- Volume 8
Sibalni nathi 2012- In this edition...
Contents Editorial National News
International News
A Parents Perspective Medical Minimag- Count us in our voice Early Years Education Adulthood Branch News
Back Page
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Thank you to all our generous Sponsors
DSSA is supported by LEV Denmark we thank you for your partnership in projects we have implemented through the years.
DSSA is partially supported and funded by the National Lottery Distribution Trust Fund
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Editorial
Message From the Editor from the desk of the National Organisational
I
am very humbled to bring you the 8th volume of our national publication
antly count me in!
Roxanne Scholtz
{
What a fantastic memorable year 2012 will be for DSSA
}
Please join our Facebook page, where we continue to keep you informed of our activities and most up to date information.
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National News
National Directors News
from the desk of the National Director
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National News
Vanessa dos Santos with Hayley Rehbock a DSSA Self Advocate
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National News
National Project Manager News
from the desk of the National Project Manager
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DSSA/LEV Break the BarrierStrengthening the Township Project 2011-2013
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National News
Jabulani Dikgale
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I am looking forward to continuing with this project & others over the years
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National News
Awareness & Fundraising National “Genes� Day
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National Down Syndrome Day 2011
Fundraising
World Down Syndrome Day 2012
Vanessa with the Deputy Minister and other members of DSSA
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National News
Best Buddies
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If you would like to participate in any of the programs please contact Jabulane on 011 484 8890/1 alternatively you can email him on dssa.pm@icon.co.za
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International News
Down Syndrome International News
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New York, 21 March 2012- Secretary-General’s message on World Down Syndrome Day
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International News
D Objective 3: Global Outreach
Objective 5: World Down Syndrome Day (WDSD)- 21 March
Objective 1: World Down Syndrome Congress 2012 (WDSC)
Objective 4: DSi Website, Social Media, Newsletter and Membership Forums
Research Group (SARG)
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International News
Inclusion International
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Shikuku Obosi
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International News
Inclusion Africa General Assembly
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A Parents Perspective
Our Story a recollection of
the experience we had as parents of a boy with Down syndrome
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{
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I opened my sons bold red letters “Down syndrome�
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A Parents Perspective
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My Kayden taught me how to love and what a blessing he is
}
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Medical
Medical Nasal Congestion/Catarrh
Some management strategies which may help
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Article written by DSMIG for the Down Syndrome Association Newsletter (UK)
Mechanical decongestion Nasal saline douches
Nose blowing
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Medical
Dairy-free diet
Nasal decongestant sprays
Oral decongestants Oral antihistamines
To sum up
Low dose antibiotics
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Stories from our Self Advocates
MiniMag Count us in our voice
by Hayley Rehbock who has Down syndrome
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Hayley Rehbock appearing on a United by Music Post card, United by Music tour 13 June 201116 July 2011 Hayley Rehbock is the Chairperson for the Self Advocacy Movement of South Africa a program of DSSA. Hayley is also a board member of DSSA.
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This was typed by Suze, Hayley interpreted to her.
Stories from our Self Advocates
Count us in our voice
by Ephraim Mohlokane who has an Intellectual Disability
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shop for people with Intellectual Disabilities
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For my dream I hope the world can change and respect people for who they are
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Early Years
Hypotonia
M For a newborn with hypotonia you can:
Always check with an appropriate health care professional before implementing any of these suggestions, to make sure these hypotonia exercises are going to be correct for your baby/child, as well as to clarify and make sure you understand how to implement them safely. Gross Motor Control Exercises
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Occupational Therapy exercises for those with hypotonia
Early Years
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Remember, the best stimulus for anyone who suffers from hypotonia is loss of patience, understanding, education and most important, love.
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Hypotonia Exercises conclusion
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Education
Education Slaying the Dragon of Assumptions Article written by Zane Joynt
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{
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In my opinion the biggest stumbling block to education is the practice of making assumptions.
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Education
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These are the special moments that we as educators live for.
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David with Zane
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Adulthood
Adulthood
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What is hypothyroidism? How is it diagnosed and treated?
What is atlantoaxial instability? How is it diagnosed and treated?
What health conditions occur more often in DS?
What is celiac disease? How is it diagnosed and treated? Why does obesity occur more often in DS?
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Adulthood
What about behavioral changes in adulthood? What about healthcare maintenance?
What is obstructive sleep apnea? How is it diagnosed and treated?
Source: with thanks to the NDSS www.ndss.org and special guest author Jose Flores, M.D., Ph.D. for preparing this piece.
What health conditions occur less often in DS?
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Branch News
Amathole
Shanghai Restaurant sponsored food for the Christmas Party
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Members from Hamilton Club assisting with the Street Collection
Outreach and Parent Support Groups
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Branch News
Fundraising
World Down Syndrome Day
Exercise Classes Cupcake and Cocktail Evening
CONTACT DETAILS
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Branch News
Gauteng
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own Syndrome Association Gauteng (DSAG) Outreach Support Services:
DSAG Self Advocates, Adult Supported Employment and Job Skill Training:
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Branch News
DSAG Awareness Day Events:
We thank you and are proud to be under your wings”. CONTACT DETAILS DSAG CMI Children’s Christmas Party, December 2011:
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Branch News
Kwa Zulu Natal
W Outreach Report
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Branch News
Workshops
National Public Awareness Day
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We start by Saying a very big thank you to our Sponsors
Fundraising
Functions
CONTACT DETAILS:
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Branch News
Support Cape
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Self Help Groups
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Toy Library News
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Branch News
Thanks and Acknowledgements
Family Counsellor
CONTACT DETAILS
Committee
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Branch News
Tshwane
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Early Intervention/Outreach
Inclusive Education
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Branch News
Parent Information Mornings
Self Advocate Group
Swimming New Parents
Fundraising CONTACT DETAILS
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Branch News
Western Cape
O Supported Employment and Skills Development
Leisure Libraries
Parent Support and Workshop
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Branch News
Committee Members:
Cycle Tour
CONTACT DETAILS
Staff Members:
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We would like to thank the Mountain View Cyclists
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SASSAI Games Paarl 2012
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Branch News
Nelson Mandela
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Metropole
Outreach:
Fundraising:
Self Advocacy:
CONTACT DETAILS:
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Branch News
Free State Self Advocacy and Awareness
Sheri Brynard Early Intervention CONTACT DETAILS:
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Branch News
DSSA Outreach Kimberley
Mercia Van RooyenOutreach coordinator Contact: 078 182 3172
Members of the Outreach with the Fire Station staff
North West
Betty Motloane- Outreach coordinator Contact: 071 359 4154
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Branch News
DSSA Outreach Limpopo
Difference Motseo Outreach coordinator Contact: 078 246 0888
Witbank
Highveld Mall for World Down Syndrome Day
Lerato Mokoena Outreach coordinator Contact: 083 732 6189
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DSSA STAFF:
Free State: OUTREACH CONTACT DETAILS: Kimberley: North West:
DSAA OFFICE BEARERS: Limpopo: Mpumalanga: BRANCH CONTACT DETAILS: Amathole (East London): DSSA ADVISORY COMMITTEE: Medical (Genetics): Gauteng: Inclusive Education: Kwa Zulu Natal:
Speech and Language: Skills Development:
Support Cape (Red Cross Children’s Hospital): Supported Employment and Self Advocacy: Tshwane:
Self Advocates: USEFUL WEBSITES
Western Cape (Belville): SUPPORT GROUP CONTACT DETAILS: Nelson Mandela Metrople (Port Elizabeth):
Personalised Books- Especially 4U www.personalisedbooks4U.com
Your Child is the Star of each story * Features the child’s name throughout the book * Features names of family/friends throughout the book * Educates the child * Encourages an early joy of reading * Superbly illustrated * Bold easy-to-read type * Washable hard covers * Unique family keepsake * Enhances a child’s self-esteem & sense of identity Log onto the website for the many different Title options & order today 20% of all books sold goes to DSSA, contact Vanessa to place your order 082 893 0988