Fall 2011 Edition
South Florida Chapter
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he National MS Society’s Annual Meeting and Health Fair will be held on Saturday, November 12, 2011 at the Grille Event and Banquet Center in Downtown Fort Lauderdale 416 NE 1st Street, Fort Lauderdale, FL 33301. The Health Fair will focus on MS research, education, interactive exhibits and community resources.
Health Fair &
Outstanding Entertainment Provided by Karen Peterson and Dancers Witness a truly inspiring and powerful dance production featuring dancers with and without disabilities who create and perform “mixed ability” dance as an inclusive art form.
L A T E S T
M S
CLINICAL TRIALS UPDATE The Society’s annual list of clinical trials in MS is now available online at www.nationalMSsociety.org/clinicaltrials. It features 130 studies that are in progress or recently completed. These cover neuro-protective agents; symptom medications; rehabilitation interventions such as cycling for improving MS-related depression, mobility and cognitive function; and more. More than 52,000 volunteers have participated or are currently participating in these studies. Their participation—and yours—makes it possible to look forward to new therapies for MS. Pediatric MS Studies Receive Federal Support The Society’s network of Pediatric MS Centers has been awarded a five-year grant from the National Institutes of Health to study genetic and environmental risk factors for MS in children with the disease. The study will enroll children and teens with MS and matched controls without MS for a single visit to one of 10 centers around the country— in California, New York, Massachusetts, Alabama, Minnesota, Texas, Pennsylvania and Washington. Four new centers are part of this project in addition to the six created with support from the Society’s Promise: 2010 campaign. To learn more about the study including referral information, please email janace.hart@ucsf.edu or call 415-514-2476. For more information about pediatric MS, visit www.nationalMssociety.org/pediatricMs.
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Registration, Information and Exhibitors: 1:00 – 2:30 pm Ask the MS Doctor Panel of Medical Experts: 2:30 – 3:15 pm Annual Meeting, Election of 2012 Board of Trustees, Award Presentation, Hors D’oeuvres and Entertainment: 3:30 – 5:00 pm • Complimentary Hors D’oeuvres • Entertainment • Free Admission • Ages 16 & Older RSVP is required. Call 1 800 FIGHT MS (800-344-4867), email msprograms@ fls.nmss.org or visit www.nmssfls.org.
R E S E A R C H CCSVI studies— one year update The first-year progress reports from seven National MS Society funded studies of CCSVI, or chronic cerebrospinal venous insufficiency, were released July 14, 2011. The research teams report being on track in collecting objective and comprehensive data. The studies were launched with an excess of $2.4 million commitment from the National MS Society and MS Society of Canada. The research teams recruited a broad spectrum of people with and without MS. Already more than 486 people have been scanned using various imaging technologies. Only by refining imaging methods can investigators more reliably validate if a person actually has CCSVI and better understand its relationship to the MS disease process. The full results, to be released after completion, will help guide future steps, including the development of clinical trials to test whether treating CCSVI is safe and effective for people with MS. In the meantime, several of the teams will present preliminary p Us l e H results at medical meetings later en! e r G this year. To read more about Go e the MS v the studies and to get the news Recei on Online. 67 of results, visit www.nationecti Conn 00-344-48 alMSsociety.org/ccsvi. ll 1-8 4224
p 9 MS Gala & Fashion Show 2012
Ca 7314 5 9 or n up to sig . today
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Chairman Fred Zuckerman Vice Chairmen Joey Epstein Ed Pozzuoli Secretary Diann Geronemus Treasurer Kevin Conn Chapter President Karen Dresbach Newsletter Editor Jolene Caprio The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. © 2011 National Multiple Sclerosis Society, South Florida Chapter
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JOIN THE MOVEMENT: nationalMSsociety.org
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ou are invited to dine with local leading neurologists in an intimate setting as they discuss the topic of multiple sclerosis. The doctors will provide up-to-date educational information about MS and address personal concerns and questions. Dinner is complimentary. Limit 2 invitations per family. Space is limited to 50 people per dinner event. Dinner with Brian Steingo, MD and Jennifer Smrtka, RN, MSN, ANP-C, MSCN Fort Lauderdale MS Center Wednesday, January 18, 2012 6:00-8:00pm Renaissance Plantation Hotel 1230 S. Pine Island Road, Plantation, FL 33324 RSVP to the National MS Society by Wednesday, January 11, 2012 Dinner with Brian Steingo, MD Fort Lauderdale MS Center Wednesday, January 25, 2012 6:00-8:00pm Crowne Plaza Hotel, 13051 Bell Tower Drive, Fort Myers, FL 33907 RSVP to the National MS Society by Wednesday, January 18, 2012
Dinner with Kottil W. Rammohan, MD University of Miami MS Center of Excellence Wednesday, February 15, 2012 6:00-8:00pm Courtyard Marriott Hotel 2051 Le Jeune Road, Coral Gables, FL 33134 RSVP to the National MS Society by Wednesday, February 8, 2012 Dinner with Kottil W. Rammohan, MD University of Miami MS Center of Excellence Wednesday, March 21, 2012 6:00-8:00pm Bellasera Hotel 221 Ninth Street South, Naples, FL 34102 RSVP to the National MS Society by Wednesday, March 14, 2012 Dinner with Brian Steingo, MD Fort Lauderdale MS Center Wednesday, May 16, 2012 6:00-7:30 pm Doubletree Hotel Palm Beach Gardens 4431 PGA Boulevard, Palm Beach Gardens, FL 33410 RSVP to the National MS Society by Wednesday, May 9, 2012
Please RSVP for each of the events by calling 1 800 FIGHT MS, 954-731-4224 or online at www.nmssfls.org.
National MS Society Affiliated MS Centers Fort Lauderdale MS Center Director: Brian Steingo, MD, Tuesdays - 9:00 am to 5:00 pm 572 East McNab Road, Pompano Beach, FL 33060 (954) 738-1700 Neuroscience Consultants Comprehensive Multiple Sclerosis Center Founding Medical Director, Emeritus: Howard Zwibel, MD Director Clinical Affairs: Carlos Ramirez Calderon, MD Mondays - 8:30 am to 1:00 pm and Thursdays - 8:00 am to 3:30 pm 4601 Ponce de Leon Blvd. Ste. 100, Coral Gables, FL 33146 (786) 219-3145 South Broward MS Clinic Director: Islon Seliger, MD, Thursdays - 9:00 am to 5:00 pm 12596 Pines Boulevard, Pembroke Pines, FL 33027 (954) 437-4000 University of Miami MS Center of Excellence Department of Neurology Miller School of Medicine Director of Clinical Neurology: Kottil W. Rammohan, MD Emeritus Professor of Neurology: William A. Sheremata, MD 8:00 am – 5:00 pm, 1150 NW 14 Street, Miami, FL 33136 (305) 243-6732 Support the National MS Society through the Combined Federal Campaign listed under Community Health Charities designation #11409
Alie’s Fund for Children with MS
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Run to Stop MS
The National Multiple Sclerosis Society serves as a tremendous source of information and support to Alie and her family. Alie is inspired by the efforts of the many people who raise funds for a cure and the stories of children affected by the lack of money available for their future.
he Run to Stop Marathon and Half marathon team will put on their sneakers and stretching to gear up for the ING Miami Marathon and Half Marathon on January 29, 2012. This will be the 3rd year the Run to Stop MS team has participated in the ING Miami Marathon and Half Marathon event. Between 2010 and 2011, 35 members fundraised over $412,000 for the cause. For the 2012 run season, our goal is reach 50 Run to Stop MS team members and fundraise over $50,000! Make it your achievement to run or walk in Miami’s finest event while doing it for those who live with multiple sclerosis. Registration is $50 with a fundraising minimum of $1,000. Members of the Run to Stop MS team will receive weekly coach-led trainings, support of running mentors, a Run to Stop MS running singlet, nutritional tips, and new friends!
Alie formed Alie’s Fund for Children with MS in order to provide funds to children ages 2-22 who live throughout the United States with MS. The funds help defer medical and educational costs, counseling and other services to ensure a brighter future for those impacted with MS.
If you have never completed a half or full marathon, don’t fret. We have the tools and tips to get you to the finish line feeling great! Register today to join the Run to Stop MS team for the ING Miami Marathon and Half Marathon at www.runtostopmsflorida.org or contact Sara Bentley at 954731-4244; sara.bentley@fls.nmss.org for more information.
If you are interested in applying for assistance from Alie’s Fund for Children with MS, please contact the Programs Department at 1 800 FIGHT MS; 954-731-4224. Documentation of your MS diagnosis and verification of age will be required.
Special recognition of Top 5 participants for the 2011 ING Miami Marathon and Half Marathon:
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lie was diagnosed with multiple sclerosis at the age of 14. She receives the utmost care and medications from her doctors to help slow the progression of her disease. Alie is living her life to the fullest while in college!
1. Kim Fish $13,368 2. Stacey Schulman $10,330 3. Heather Geronemus $7,096 4. Allison Fish $3,984 5. Jose Rivas $2,650
FUNDRAISING
Tel: 954-731-4224 Fax: 954-739-1398 Publication of the National Multiple Sclerosis Society South Florida Chapter 3201 West Commercial Blvd. Suite 127 Ft. Lauderdale, FL 33309
DINNER WITH THE DOCTOR SERIES
5K Run – March 25, 2012 If you love to run, but don’t desire the challenge of a half or full marathon, you can join the Run to Stop MS movement by participating in our 2nd Annual MS 5K Run & ¼ Mile Kids Fun Run at Merrick Park in Coral Gables on Sunday, March 25, 2012. There will be entertainment and fun for the kids at our MS Kids Fun Zone; so get your whole family involved. Registration for the 5K is $25 prior to race day and $35 day of the event. The ¼ Mile Kids Fun Run is $10 prior to race day and $15 day of. Don’t miss out and register now at www.runtostopmsflorida.org or call 1 800 FIGHT MS; 954-731-4224 for more information. Special recognition 2011 Run to Stop MS 5K Events: Top 3 Teams - 5K Coral Gables Run The Bailanders M.O.Ms: Made of Miracles Team Silvi Top 3 Individuals - 5K Coral Gables Run Maria Salazar Nicholas Lebess Delfina Campos Top 3 Teams - 5K Weston Run Team Kotler WALL Team walkstars Top 3 Individuals – 5K Weston Run Dale Kotler Aviva Klein Corey Englehard
Fifty Miles and $1,500 Closer to a World Free of MS
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very once in a while, a challenge calls that you simply must answer. The Challenge Walk MS: Charleston Challenge 2012 offers a new experience for members of the MS community living in the southeast. This incredible physical and philanthropic challenge gives you the chance to reinvigorate your spirit and change your life. As a participant, you will raise $1,500 or more for the National MS Society and walk 50 miles in three days through historic Charleston and along the beauti-
ful South Carolina coastline.
spirits high. You will stay two nights at the Wild Dunes Resort on Isle of Palms, SC, featuring relaxing beachside accommodations to unwind after each day’s incredible journey.
But don’t worry! We are here to help you from the moment you register through the event weekend. We have tools to help you reach your pre-event training and fundraising goals, and all of your needs will be taken care of during the life-changing event weekend. The route is fully supported with catered meals, rest stops every few miles, sup- For more information call 1 800 FIGHT port vehicles to provide transportation MS (1 800-344-4867) or visit www. assistance and festivities to keep your ChallengeMS.org TOLL FREE NUMBER 1 800 344 4867
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MS Walk Special Recognition Awards
Top 3 Teams Overall Team Alie - Boca Raton Isroff/Dan/Ricca - Boca Raton Team B&P- Fort Lauderdale
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oin the movement became more than a statement for the thousands of walkers that participated in the 2011 MS Walk in Aventura, Boca Raton, Coral Gables, Fort Lauderdale, Lee County, Naples, The Palm Beaches and Weston. Families, friends and coworkers came together in their communities to show that they wanted to do something about MS now!
Best Corporate Team Gazit Group - Aventura MDS for MS - Boca Raton NEW LIMECO, LLC - Coral Gables Team B&P - Fort Lauderdale THE MARC MS ANGELS - Lee County McDonald & Osborne PA - Naples Greenberg Traurig - The Palm Beaches PURE - Weston
This united effort raised nearly $700,000 to continue the search for a cure and to provide programs and services for over 6,000 South Floridians living with MS. Thank you to our participants, volunteers and sponsors!
Best Friends & Family Team Team Uri - Aventura Team Alie - Boca Raton CDC Builders - Coral Gables Babs Bunch - Fort Lauderdale
We hope to continue this momentum by having you and your family and friends sign up for the 2012 MS Walk today! For more information about your local MS Walk, please visit mswalksouthflorida.org. The MS Walk team is also available to assist with fundraising efforts or questions at mswalk@fls.nmss.org or 954-7314224. We look forward to seeing all of our participants in 2012!
Boca Raton Andrew Tharp - Chair Stephen Bentz Abbi Bentz Mitchell Cohen 4
Best School Team Delta Sigma Pi-XI Omega - Aventura Team FAU - Boca Raton Hornets - Coral Gables NSUCOM - Fort Lauderdale FGCU Cares -Lee County Edison State College Collier Campus - Naples Suncoast High School Computer Club - The Palm Beaches Team Builders Club of PPCMS - Weston
Best Rookie Team Christina’s Team - Aventura Jaywalkers - Boca Raton Team Jersey Girl - Coral Gables Franklin Templeton Investments - Fort Lauderdale Hot Wheelz - Lee County
Thank you for your generosity throughout the year.
Billie Cohen Gerry Cohen Dan Dixon Judith Doherty Barbara Glasser Jodi Rothman Sandy Segal Gary Stein Al Witko Michael Wayt
Fort Lauderdale Rick Andreassen Jan Berns Mike Blatt Rick Deal Donna Luneburg Debbie VonNote Lorraine Weaver Jay Williams
Coral Gables Jose Rivas Felix - Chair Maria Enriquez Bettina Gensollen Ed Gross Melissa Lorenzo
Lee County Tonya Emerson - Chair Sue Arend-Baxter Tamara (Tami) Dunn Fred Hixson Shari Haling
JOIN THE MOVEMENT: nationalMSsociety.org
Most Improved Team Team Uri - Aventura Isroff/Dan/Ricca - Boca Raton MS J Squad - Coral Gables Brain Brigade - Fort Lauderdale We Can - Lee County Edison State College Collier Campus - Naples After 6 For The Cure - The Palm Beaches JC’s friends - Weston
Hitching Post - Naples Team E & Y - The Palm Beaches Marcy’s Myelin Menders - Weston
2011 WALK SPONSORS
2011 MS WALK COMMITTEES Aventura Estrella Mitrani - Chair Hilda Alveraz Jane Matthews Joe Maya Yolanda Salgado Lila Silverman Linda and Michael Stahl Luis Yepez Yari Burke
MOM’S ARMY - Lee County Go Go Walkers - Naples After 6 For The Cure - The Palm Beaches Marcy’s Myelin Menders - Weston
MS WALK RESEARCH
Top 3 Individual Walkers Overall Fred Rothman - Boca Raton Marni Becker-Avin - Fort Lauderdale Tom Hannigan - Boca Raton
Jackie Neff Lauren Seiderman Emily Zuckerman Naples Sue Haberkorn Palm Beach Herbert Hartman Anna Carter Eli Shaivitz Weston Corey Engelhard - Chair Thomas Liebler Steven Balanovich Dale Kotler Gene Giblin
MS WALK MISSION POSSIBLE Edward Abboud Marni Becker-Avin Barbara Glasser Tom Hannigan Chuck Isroff Angela Morgan Frank Petrino Fred Rothman Orli Teitelbaum
Acorda Therapeutics A Village It Takes LLC Baptist Health South Florida Brooklyn Water Bagels Broward Health Carlos and Maria Enriquez CNL Bank Comcast Coral Gables Chiropractic Crystal Geyser Dade Paper El Sol Brands Inc EMD Serono, Inc. Estero Lifestyle Magazine EWM Realtors Executive National Bank Fidelity Investments First Watch Florida Linen Services FMS Bonds, Inc. Gazit Group Get In Shape Miami Greenberg Traurig, P.A. Grillstone Catering Hygenic/Performance Health International Consulting Group, Inc. La Carreta Restaurant Lee Memorial Health System Majic 102.7 M&I Wealth Management Morgan Stanley Muscle Milk
Myossage Med and Sports Therapy Naples Beach Hotel Naples Daily News Oreck Vaccums Park Avenue BBQ & Grille Pedro P. Llanex, M.D., P.A. Perry Ellis America Pollo Campero Publix Seaboard Marine Sidewalk Salads Southeastern Recycling Starbucks Sunshine Magazine Tenet Healthcare - Coral Gables Hospital TEVA Neuroscience, Inc. The News-Press The Original Pancake House The Palm Beach Post USA Sports Therapy & Enzyme Nutrition Vital Solutions Home Heath Agency Vitas Innovative Hospice Care Walgreens Waste Management Wellness Education Network Consultants Wells Fargo/Wachovia Zimmerman Advertising
2012 MS Walk Dates SATURDAY, FEBRUARY 25 FORT MYERS: Lakes Park NAPLES: Lowdermilk Park SUNDAY, FEBRUARY 26 FORT LAUDERDALE: Huizenga Plaza PALM BEACH: CityPlace SUNDAY, MARCH 11 BOCA RATON: Boca Corporate Center & Campus SUNDAY, MARCH 25 AVENTURA: Founders Park CORAL GABLES: Merrick Park 5K Run to Stop MS SUNDAY, MARCH 25 CORAL GABLES: Merrick Park
TOLL FREE NUMBER 1 800 344 4867
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Mission Possible & Club151
2011 Bike Committee Jason Swift Committee Chair
Matt Ginn HAM Coordinator
Julia Mayan Start/Finish Coordinator
Ron Abrams JP Coordinator
Vene Hamilton Nurse Coordinator
Javier Salinas Truck Logistics Assistant
Mike Blatt Start/Finish Coordinator
Martell Given Nurse Coordinator
Kevin Scanlon Net Control
Bob Bodner JP Facilitator
Gary Hicks SAG Coordinator
Alan Steel Bike Shop Coordinator
Delio Botero UPS Coordinator
Larry House SAG Coordinator
Claretha Timmons Rest Stop Assistant
Merritt Burrus Route Logistics Assistant
Racquel House SAG Coordinator
Mark Lowe JP Coordinator
Paul Schloneger Route Safety
Dante Watson Trucking Logistics Assistant
Joe Camus SAG Assistant Ernesto Diaz Motorcycle SAG Coordinator Etta Antonio- Dixon Nurse Coordinator Sgt. David Fariss Miami-Dade Police Coordinator
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Rafael Acosta Route Safety Wayne Zimmerman Motorcycle SAG Coordinator Silvia Inman Bike Lock Up Coordinator Christy King JP Coordinator
JOIN THE MOVEMENT: nationalMSsociety.org
Gene Giblin Rest Stop Coordinator Dale Word JP Coordinator Brenda Zelman JP Coordinator John Vecchio Communications
Top 25 Teams
zMotion BACARDI Team Storm Riders Mack Cycle and Fitness/Miamipace DHL PEDAL ON FOR A CURE Miami Bike Scene / MIA Fixed Team MS G4S BIKE AMERICA Cargill Cares Miami Enterprise Rent A Car Microsoft CSP Express/zMotion American Express Centurions Tar Peddlers/ Solar Sprockets WHOLE FOODS MARKET Never Give Up Everglades Bicycle Club SUBWAY/IPC Bike Team Team TradeStation Remyelinators Team Holman On Your Mark Cycling Club General Mills Cycle Counters
$226,765 $174,811 $93,172 $60,870 $51,492 $45,537 $37,305 $36,640 $29,105 $27,664 $25,133 $24,276 $20,905 $20,774 $20,635 $18,974 $17,690 $17,488 $16,720 $15,279 $13,049 $12,376 $11,795 $9,999 $9,780
Save the date for the MS Bike Ride on April 21-22, 2012!
Lesa Kennedy $22,800 Mike Schweiger $20,801 Keith Rosen $20,225 Bruce Retzsch $14,515 Craig Zoufaly $12,979 Bill Sanderson $12,700 Michael Hogsten $11,000 Robert Kornahrens $10,670 German Agudelo $9,999 Russell Irvine $8,934 Claudette Halluk $8,410 Suzanne Kores $7,175 Renee Ward $5,800 Glenn Basile $5,641 Gila Kimmelman $5,551 Chris Walters $5,000 Orlando Sosa $4,900 Jon Kushner $4,719 Edward Daniel $4,435 Keith Fowee $4,076 Susan Duque $4,030 Gregory Kimmelman $4,025 Charles Martin $4,025 Fred Zuckerman $4,025 Alan Kurtz $3,914 Menachem Hecht $3,859 Stewart Gurr $3,775 William O’Neill $3,585 Michael Weinberg $3,501 Byron Reid $3,450 Jeff Wolach $3,450 Jean-Charles Fourcade $3,411 Michael Fine $3,410 David Buck $3,400 Cheryl Lopez $3,340 Robert Schwartz $3,330 Steve Baptiste $3,275 Jonathan Berman $3,261 Kenneth Vega $3,241 John Wrench $3,240 Christopher Warren $3,200 Gerry Cullen $3,190 Dan Gitlitz $3,159 Malena Vareles $3,122 Oscar Sosa $3,075 Helen-Eleni Sonenreich $3,060 Chuck Kirsch $3,041 Juan Saldarriaga $2,910 Alan Haimowitz $2,900 William Broome $2,890 Beth Waldorf $2,880
Special Awards
52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102
David Elder Andrew Taubman William Bogard Rex Hamilton Antonio Jacomino Daniel Dorb Lanny Carrero Douglas Bradbury Howard Markowitz Randall Haws Oscar Sanchez Peter Loughlin Roselio Bohigas Caroline Cunningham Vance Lemmon Marvin Levenson Rodger Irvine Manuel Carranque Charles Deyo Harry Tangalakis To Chau Russo Susan Touset Lorne Reiter Fred Glickman Carmen Marston Steven Peeters Rafael Lara Marc Lowell Stephen Calabro Stefanie Wortzel Norma Thomson Michael Stazzone Marie-Lisette Flores Steve Adolf Gary Sullivan Gregg Steward Manny Platis Howard Seiler Jorge Cameron Roland Poitevien Barry Blodinger Stephen Fenwick Sherry Hoffman Robert Krauss Al Lehman Jill Talbot Thomas Schon Lucy O’Connor Jose Sepulveda Kevin Eggart Drew Schnitt
$2,875 $2,841 $2,821 $2,700 $2,700 $2,680 $2,660 $2,615 $2,600 $2,582 $2,570 $2,550 $2,500 $2,500 $2,500 $2,472 $2,467 $2,460 $2,450 $2,450 $2,400 $2,350 $2,349 $2,323 $2,300 $2,265 $2,239 $2,236 $2,225 $2,225 $2,200 $2,170 $2,151 $2,130 $2,115 $2,096 $2,086 $2,059 $2,040 $2,035 $2,005 $2,000 $2,000 $2,000 $2,000 $2,000 $1,995 $1,983 $1,980 $1,930 $1,925
103 104 105 106 107 108 109 110 111 112 113 114 115 116 117 118 119 120 121 122 123 124 125 126 127 128 129 130 131 132 133 134 135 136 137 138 139 140 141 142 143 144 145 146 147 148 149 150 151
Christian Hadfield Germaine Binns Bianca Autuori Teresita Cabal Jerry Layne Scott Davidson Nicole Bonilla Hiram Soto Michael Bannon Charles Titus Tere Camacho Miguel Morales James Taylor Corey Taub James Ball Greene Labuzan IV James Paddon Robin Ostertag Daniel Land Kris Dinges Michelle Bazargan Barry Wright Bob Mulcahy Thomas Panos Mario Lopez Calleja Bryan Faulmann Lissette Lau Jack Brown Bruce Hedges Andrew Thomas Peter Banting Derek Kramer Jane Onufer John Serpa Daniel Getson Melissa Kramer Gary Smith Tony Ortiz Ortiz Spencer Multack Kurt Taylor Anna Perez Larry Rooney Ron Goral Randy Hummel Matt Daniels Michael Jacobson Edward Knutel Debra Ogilvie Christina Brodie
$1,920 $1,915 $1,891 $1,887 $1,851 $1,850 $1,830 $1,823 $1,815 $1,775 $1,750 $1,750 $1,750 $1,743 $1,735 $1,725 $1,725 $1,706 $1,705 $1,701 $1,700 $1,676 $1,673 $1,670 $1,645 $1,620 $1,620 $1,616 $1,615 $1,615 $1,610 $1,600 $1,600 $1,590 $1,585 $1,575 $1,570 $1,565 $1,560 $1,560 $1,555 $1,535 $1,530 $1,530 $1,525 $1,521 $1,520 $1,520 $1,510
MS BIKE RIDE RESEARCH
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he 25th Anniversary of the Zimmerman MS Bike Ride presented by Mack Cycle and Fitness was a tremendous success. In yet another challenging year, our riders, volunteers, fundraisers and sponsors showed their overwhelming dedication towards finding a cure for MS by raising nearly $1.8 million. The ride started from the Maroone Start/Finish Village at Homestead-Miami Speedway with a grand Nascar entrance. Cyclists cruised along and celebrated at the 42Below Village at John Pennekamp Park, which included appetizing food selections, live music, and cocktails provided by 42Below Vodka. On behalf of the MS Bike team and staff we would like to thank all the participants who joined together in raising awareness and funds to create a world free of MS.
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Best Team Name Ride it like you stole it Most Improved Team Bacardi Best Rookie Team Miami Bike Scene / MIA Fixed Partner in the Fight Against MS DHL Partner in the Fight Against MS Nextran Partner in the Fight Against MS Suddath Partner in the Fight Against MS UPS Best Jersey Whole Foods Best Rest Day 1 DHL Best Rest Stop Day 2 Amex Best Bike Shop Mack Highest Average Fundraising Team Cendyn TOLL FREE NUMBER 1 800 344 4867
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A DVO CA TE SP O T LI G H T
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ue to the increased costs associated with healthcare delivery, patients are likely to see increases in their out-of-pocket costs. MS disease modifying drugs can run in excess of $2,000 a month. To share the burden of rising pharmaceutical costs, some employers are requiring patients to pay 20-30 percentage of the cost of specialty drugs. After the Medicare Part D program began in 2006, insurance plans passed along increases for biologic drugs. Therefore, out-of-pocket expenses have soared for these drugs that fall into “specialty tiers” (either because of the way they’re made, their costs or both). Unfortunately, MS patients will fall into this category as well.
According to Kaiser Health News (August 23), “While some say that requiring higher patient payments is a useful tool to control drug spending, others warn their employer clients that the approach could discourage workers from taking needed medications.” This is a high concern for the National MS Society and several states have begun filing legislation to further analyze the specialty tiers. We are working on collecting patient stories who have been affected by specialty tiers and willing to tell their story. This will not be an overnight issue solved by drafting a bill. If you are interested in telling your story please email your tale to jenna.paladino@nmss.org. Try to keep it under 200 words, include your contact information and Jenna will respond if your story is used.
Conversation and Support for People Living with Multiple Sclerosis in Spanish
State News 2012 Florida Legislative Session will begin earlier this year. Session will begin January 10, 2012 instead of the usual March start date. This is mandated during “redistricting years” (every 10 years) to have a longer time to take up the issue of drawing districts. For more information on this restricting issue please visit http:// www.floridaredistricting.org/. Please check out the advocacy blog spot at http://msactivist.blogspot.com/
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November 8, 2011 at 7:30 pm Caring for the Caregiver: Cargivers Need Care Too Ingram Campbell, MT, M.Ed, MBA, PhD, CISM Founder and President of Enlightened, Inc. Washington, D.C. December 13, 2011 at 7:30 pm SSDI Michael W. Bertics, SSDI Attorney Lennon & Camak PLLC Raleigh, North Carolina January 10, 2012 at 7:30 pm Self-Advocacy Gabrielle Martino Outreach Specialist at Disability Rights Raleigh, North Carolina
It’s Easy to Register! Online: www.nmssfls.org go to the calendar section. Email: msprograms@fls.nmss.org Provide name, address, phone number, and indicate which program(s) for which you are registering. Call 1 800 FIGHT MS 344-4867. Provide name, address, phone number, and indicate which program(s) for which you are registering. 8
JOIN THE MOVEMENT: nationalMSsociety.org
February 14, 2012 at 7:30 pm University of Miami Gene Study Alison K. Hernandez, B.A. & Patricia Manrique University of Miami Miller School of Medicine, Hussman Institute of Human Genomics March 13, 2012 at 7:30 pm Mindfulness Meditation Rev. Mary Virginia Brooks United Church of Christ Louisville, KY April 10, 2012 at 7:30 pm Women’s Issues & MS
Grab your coffee cup, sit back, and listen to the experiences of other people with MS. Tuesdays for 2011 – 2012: Nov 8 Dec 13 Jan 10 Feb 7 March 13 April 10 May 8 June 12 Time: 2:00 p.m. – 3:30 p.m. (Eastern Standard Time) Break- July and August Subsequent dates to be announced
TELECONFERENCES he South Florida Chapter offers free monthly educational teleconferences. These calls focus on different topics and feature expert keynote speakers. Learn more about managing MS from the convenience of your home.
The National MS Society offers a monthly telephone group in Spanish for participants with MS. The monthly calls are free.
Ruth Fredericks, MD University Clinic Associates Flowood, MS May 8, 2012 at 7:30 pm Holistic Medicine Umaru Jutte, RN Saint Thomas Hospital Nashville, Tennessee June 12, 2012 at 7:30 pm Health Insurance Reform: What’s in it for you Kim Calder, MPS National MS Society Professional Resource Center, New York July 10, 2012 at 7:30 pm Parenting with Young Children Jessica Thomas, MSW National Multiple Sclerosis Society, Central North Carolina Chapter
Take this opportunity to talk about your concerns and meet others who understand your situation. Topics will focus on areas of interest to people living with MS. Additionally, experts from different areas of specialization in MS will join us to speak about important topics in MS care. For more information or to register call 1-800-344-4867, option 3 The group is open to new members at any time. This program is made possible by generous grant from the Medtronic Foundation.
August 14, 2012 at 7:30 pm Vitamin D and MS Emily Riser, MD Alabama Neurological Institute September 11, 2011 at 7:30 pm University of Central Florida Myelin Repair Study Stephen Lambert, MD Associate Professor in the College of Medicine, Myelin Biologist James Hickman, MD UCF Nanoscience Center, Bioengineer
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Knowledge Is Power is a six-week, free, at-home educational program for people who are newly diagnosed. Mail or email formats. To register, call 1-800-344-4867, or visit www.nationalMSsociety. org/knowledge.
fundraising
Federal Updates From Our Advocacy Department
CAFÉ CON LECHE
In addition to enjoying a lovely lunch, guests will also have the opportunity to bid on unique auction items and purchase raffle tickets for the chance he 29th annual MS Gala & to win some truly fabuFashion Show presented by lous prizes. DBS Financial Group is just around the corner. The chic and clas- The MS Hope Award, sic gala will be held on Thursday, the Society’s highJanuary 12, 2012 at the Broward est honor, will be presented County Convention Center. to Carol Lasek, More than 1,200 guests will marvel founding partner of Bienenfeld, over Pamela Dennis’ designs Lasek & Starr, LLC. enhanced with the most luxurious fabrics and embroideries from all MS Gala Fashion Show Chair, Andrea over the world. New York based Hampton, is looking forward to makPamela is widely known for her fash- ing this an exciting and successful ion-forward and versatile designs event for the community and invites made from only the highest quality you to attend this unforgettable day. materials. Her styles are synony- For information about sponsorship mous with the most beautiful opportunities or to purchase tickwomen in the world. Dennis’ collec- ets, please visit www.nmssfls.org or tions are worn by many red carpet contact Monica Whiting at 954celebrities and can be found in 731-4224 or monica.whiting@ Bergdorf Goodman, New York, nmss.fls.org. Neiman Marcus, Beverly Hills.
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t’s no surprise that the 31st annual CBM of America, Inc. MS Golf Tournament, held in May, was a huge success! More than $92,000 was raised to support much needed local programs and services by the National Multiple Sclerosis Society, South Florida Chapter. The pairing party and auction hosted by Smoke On the Water Cigar Bar in Weston got the golfers excited and set the tone for the next day. 148 golfers gathered at the beautiful Boca Lago Country Club in their bold and bright Loudmouth shorts ready tee off and enjoy a little friendly competition while on the course. Participants also indulged in several appetizers and beverages throughout the tournament provided by Hooters, Outback Steakhouse, Flora Fine Foods, Celsius, Boar’s Head, Pollo Campero, Slainte Irish Pub and Grey Goose. As always, the day came to an end with a delicious buffet lunch, awards
ceremony and a much anticipated silent auction and raffle. Surrounded by fellow players and local sports celebrities, this year’s first place MS Golf Tournament trophy was proudly presented to Marco Carrasco, Dr. Carlos Ramirez-Calderon, Carlos Ortiz and Dr. Jose Vargas. The National MS Society would like to extend their sincere gratitude to the tournaments title sponsor, CBM of America, Inc. and the outstanding committee members lead by event chair, Stuart Kosh. TOLL FREE NUMBER 1 800 344 4867
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2011 SCHOLARSHIP AWARDEES
The South Florida Chapter awarded scholarships to the following seniors: Victoria Faur, Rory McCormack, Jennifer Mollohan, Adam Newton, Jenna-Lee Sheehan, Lauren Siwek and Megan Zucker. A graduate from Mariner High School in Naples, Victoria Faur, will be attending the University of Central Florida to study Hospitality Management. Her father has lived with MS since she was 4 years old. Victoria’s father is unable to be out in the sun for long periods of time, which lead to him not attending her horseback riding lessons. The disease has taught her to be more responsible and to help out, both characteristics for her to be successful in her desired field. Rory McCormack graduated from William T. Dwyer High School. Six years ago, Rory’s dad passed away with complications from MS. The loss of her father affects her daily and it shaped her into the mature young woman she is today. Rory will travel to Nashville, Tennessee to attend Vanderbilt University where she hopes to bring a positive change to the world. Jennifer Mollohan will attend Florida Gulf Coast University to focus on legal studies.
Her mother has lived with MS since Jennifer was a little girl. Although it is difficult for her mother to take on daily tasks around the house, she manages to cook and clean. Jennifer’s believes her mom is as a true inspiration from her strength and determination. Her goal is to make her mom proud.
but she worries she may inherit the disease later in life. MS isn’t known for being genetically transferable, but not only does her grandmother have MS, but her great grandfather had MS as well. Lauren received a scholarship that will help her attend FAU in the fall and study business administration.
Adam Newton, a recent graduate from Forest Hill High School, received a scholarship with his essay on his experience with MS. His mother was diagnosed with MS when he was 10 years old. He witnessed his mom lose her ability to walk; progressing from a cane to a motorized scooter. Even though his family has been through tough times, he believes his mother’s diagnosis has made him the person he is today. Adam is independent and determined to never give up on his hopes and dreams. He will attend Palm Beach Community College to focus in the medial field.
Megan Zucker graduated from Coral Reef Senior High School. Her mother was diagnosed with MS when she was very young. She grew up a little quicker than most teenagers. Over the years she has learned to appreciate life and value her family. Megan gives her mother daily injections to help fight MS. As a tribute to her mother, Megan cofounded a charitable foundation which raises awareness of an individuals struggle to cope with the confinement of spending a large part of their day in a wheelchair. Megan will be heading to UF to pursue her dreams and aspirations in the fall to focus her studies on pre occupational therapy and health sciences.
Jenna-Lee Sheehan will pursue her dream of becoming a dental hygienist at Edison State College. She is considered a true blessing to her family. When her father died five years ago, she was left to care for her mother alone. Jenna-Lee’s mother lives with systematic lupus, fibromyalgia and MS. Her mom is her greatest supporter. Going to college will make Jenna-Lee’s mom pleased! Lauren Siwek is a Cooper City High graduate. Lauren’s dad has multiple sclerosis. In her words, MS affects her emotionally. When she first found out her dad had MS, she wasn’t sure of how serious it was. Watching him battle MS hasn’t been easy,
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JOIN THE MOVEMENT: nationalMSsociety.org
Eligibility for 2012 Scholarship applications for 2012 awards will be available October 1, 2011. Applications may be submitted from October 1, 2011 through January 2012 and scholarship winners receive notice in spring 2012. For detailed guidelines and application information contact Suhaill Ruano at 1-800-344-4867 (in South Florida), or 954-731-4224.
The Chapter would like to recognize and thank all of the outstanding volunteers who have come together in 2011 to help change the lives of individuals living with MS in our community.
Relationship Matters Relationship Matters is a program for couples living with MS and it can help you strengthen your partnership and minimize the impact of MS on your life. By choosing from our in-person, teleconference and online options, you can learn techniques and information to keep your most important relationships moving forward. Visit the link for more informationhttp://www.nationalmssociety. org/living-with-multiple sclerosis/relationships/relationship-matters/index. aspx
On behalf of the National MS Society, we congratulate the class of 2011 and all of the scholarship recipients. You truly deserve success with your serious efforts, determination and courage.
Without volunteers, the National Multiple Sclerosis Society would not exist today. Your donation of time is greatly appreciated and critical to creating a successful event.
Through your compassion and unselfish caring you have demonstrated the fortitude needed to meet our challenges and accomplish our goals. We cannot thank you enough for your strength, tireless energy and talent, and look forward to working with you again in 2012. If you or someone you know may be interested in volunteering, please contact Jaime Valdivia at jaime.valdivia@ fls.nmss.org.
This year was a “different species of a camp” as we ventured out to Busch Gardens Adventure Camp in Tampa for an amazing fun-filled weekend! Kids ages 7-12 joined together to share and explore new ways to cope with daily pressures of living with a parent or grandparent with MS.
The Whimsical Women’s retreat took place on July 29-31, 2011 at the Renaissance Plantation Hotel. The theme of the retreat focused on pampering, entertainment, MS education and physical health. The weekend gave the ladies an opportunity to share stories and experiences, make long-lasting friendships and create memories to last a lifetime! Activities included a M.A.D. (Making a Difference) Tea Party with a hat contest and special guest speaker Camille Walker author of 29 gifts and aquatics, yoga, tai-chi, and self-defense classes. Entertainment fulfilled the evenings with karaoke, bingo, games and a movie night.
Experts presented on a variety of topics such as color therapy, healthy and simple cooking, MS and sexuality, MS and relationships, gadgets and gizmos, and music therapy.
In June the Casino Royal Men’s Day 2011 took place at the Renaissance Plantation Hotel. The men enjoyed a delicious lunch which included an inspiring presentation by MS ambassador of the Mid-Florida Chapter and Orange County and Osceola County “Ants” Support Group Leader, Jeffery Hamilton. The day wrapped up with entertainment (blackjack, craps, poker, Texas hold’em and horse races), relaxing massages and much more!
2011 Women’s Retreat Sponsors General Session
Mark your calendar for “Any Given Sunday Men’s Day.” Join us on December 4, 2011 at 12:00 pm - 4:00 pm at Bokampers Sports Bar & Grill (Private Sky Bar) 1280 South Pine Island Road, Plantation, FL 33324. Men will enjoy a tasty lunch, special guest appearance, large projection screen showing the Dolphins vs. Raiders football game and 10 HDTV’s showing other sporting events! For more information, contact the Programs Department at 1 800 FIGHT MS or 954-731-4224.
Wellness Sponsor HealthSouth Sunrise Rehabilitation Hospital
*Transportation courtesy of the Chapter provided if clients reside in Martin, Monroe, Collier or Lee County.
The weekend was complete with pampering massages, makeovers and exciting prizes throughout the weekend! Stay tuned for registration information for the 2012 Women’s Retreat.
programs RESEARCH
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he National Multiple Sclerosis Society scholarship program helps students affected by multiple sclerosis pursue a college education. It is open to high school seniors who live with MS or have a parent living with MS. The 2011 recipients shared their personal stories describing the impact MS has had on their life and achieving their dreams by going to college.
Throughout the weekend they participated in many activities which included: Tiger and Rhino Encounters, Coaster Physics, Activity Zoo Hospital Experience, Australia, Morocco, Myombe and Jungala Explorations, Camp Fire Story Telling, MS Experience Activities, Twilight Safari and much more. Kids Camp is funded in part by a grant from Minto Foundation, Inc.
Financial Assistance Fund Many people with multiple sclerosis live on limited resources and an exacerbation or progression of the disease can make it difficult to maintain employment or make ends meet. A temporary misfortune may be averted through financial assistance with outstanding rent or mortgage, utility bill, home care, drug co-pay, durable medical equipment, cost of an examination by a neurologist or more.
Please help someone in need overcome a crisis this holiday season. A gift of $500 or more will enable an individual with MS and their family move their lives forward. Make a special year end gift to the National MS Society today.
Financial Assistance in Broward County is funded in part by
My Contribution to Making a Difference! Yes! I want to help people living with MS with my 2011 Year-End Gift! o $50 o $100 o $250 o $500 o $1,000 o Other: $ ___________________________________
I would like to direct my gift to: (optional): o Financial Assistance (people with MS in crisis) o Chapter Programs and Services o MS Research o NOW Research Campaign
Please make you check payable to the National MS Society and mail with this form to: National MS Society, 3201 W Commercial Boulevard, Suite 127, Fort Lauderdale, FL 33309 or call 1 800 FIGHT MS (in South Florida) or 954-731-4224 or log on to nationalmssociety.org/fls and click “donate.”
Thank you for making a difference in someone’s life today. TOLL FREE NUMBER 1 800 344 4867
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MS LEARN ONLINE
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he National MS Society has an exciting menu of MS Learn Online webcasts currently available on its website www.nationalmssociety.org/mslearnonline. Each webcast features experts presenting on topics relevant to those affected by multiple sclerosis. MS Learn Online webcasts are typically 10 minutes in length, and have been a successful way to educate people about multiple sclerosis from the convenience of their own computer. Program topics cover: the basics facts of MS, symptom management, progressive MS, research, healthy living and family life, life planning and independence. In addition to the existing menu of programs, a new webcast debuts the first and third Thursday of each month throughout the year.
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Holiday Cards
hare the spirit of giving during this Holiday Season. Join the movement towards creating a world free of multiple sclerosis by purchasing National MS Society holiday greeting cards. Now you and your employer can share your commitment to finding a cure through special cards featuring artwork by artists with MS. Order your cards online at https://www.cardsdirect.com/mssf. aspx. 20% of your purchase price benefits the South Florida Chapter.
National Multiple Sclerosis Society South Florida Chapter 3201 West Commercial Blvd. Suite 127 Ft. Lauderdale, FL 33309
Upcoming Events
MS Walk The Palm Beaches – CityPlace November 12, 2011 March 2-4, 2012 MS Health Fair & Annual Meeting, Grille Event and Banquet MS Challenge Walk – Charleston, South Carolina Center March 11, 2012 December 4, 2011 MS Walk Boca Raton – Boca Men’s Day – Bokampers Sports Corporate Center & Campus Bar & Grill, Plantation March 12-18, 2012 January 12, 2012 MS Awareness Week MS Gala & Fashion Show, Broward County Convention March 21, 2012 Center Dinner with the Doctor, Kottil W. Rammohan, MD – Bellasera January 18, 2012 Hotel, Naples Dinner with the Doctor, Brian Steingo, MD and Jennifer March 25, 2012 Smrtka, RN, MSN, ANP-C, MSCN MS Walk Aventura – – Renaissance Plantation Hotel, Founders Park Plantation MS Walk Coral Gables – Merrick Park January 25, 2012 Run to Stop MS 5K & ¼ Mile Kids Dinner with the Doctor, Brian Fun Run – Merrick Park Steingo, MD – Crowne Plaza Hotel, Fort Myers April 14, 2012 Hispanic Outreach Program – January 29, 2012 Courtyard Marriott Hotel, Coral Run to Stop MS – ING Miami Gables Marathon and Half Marathon April 21-22, 2012 February 15, 2012 MS Bike Ride, HomesteadDinner with the Doctor, Kottil W. Rammohan, MD – Courtyard Miami Speedway to John Pennekamp State Park, Key Largo Marriott Hotel, Coral Gables May 11, 2012 February 25, 2012 MS Walk Lee County – Lakes Park MS Golf Tournament – Boca Lago Country Club MS Walk Naples – Lowdermilk Park May 16, 2012 Dinner with the Doctor, Brian February 26, 2012 Steingo, MD – Doubletree Hotel, MS Walk Fort Lauderdale – Palm Beach Gardens Huizenga Plaza
Support Groups
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he South Florida Chapter has multiple self-help groups throughout the ten counties which provide services to individuals with MS. Self-help groups bring people together who share a common life experience for support, education and mutual aid. Benefits of participating in a self-help group include: learning new information and strategies for confronting problems; finding support from others; the opportunity to help others; and feeling empowered and more self-confident in coping with challenges. The Chapter would like to add support groups for young adults, parents with MS and care partners in both English and Spanish. We are looking for enthusiastic volunteers that would like to lead self-help groups once a month in Broward, Miami-Dade, Martin and Collier County. Training will be provided. If you are interested in becoming a self-help group leader, please contact Tanya Dannibale at 1 800 FIGHT MS or email msprograms@fls.nmss.org.
BROWARD COUNTY NMSS Coral Springs Afternoon Group For individuals with MS only 3rd Tuesday of month, 1:00 pm Lunch & Socializing, 1:30 pm meeting Coral Springs Medical Center Community Education Center 3100 Coral Hills Drive Coral Springs, FL 33065 Conference rooms A or B Michael Myette 954-255-0679 pmmyette@aol.com Mindy Morrison Mindywoo123@aol.com Cindee Horowitz 954-345-2332 antcyd@aol.com Social luncheon held 1st Monday of month (Individuals with MS and Caregivers) Contact Michael Myette for details Nov. 15th, Dec. 20th NMSS Sunrise Educational Meeting For individuals with MS only Every other month on the 3rd Tuesday of month, 6:00 pm RSVP to Yliana or Melissa at the South Broward MS Clinic 954-437-4000 Sunrise Medical Group 12596 Pines Blvd Pembroke Pines, FL 33027 Dec. 20th
COLLIER COUNTY NMSS Naples Group (Social Group) 1st Monday of month, 3:30 pm Briggs Wellness Center-Briggs Conference Room, 2nd floor 399 Ninth Street North Naples, FL 34102 Tanya Dannibale 239-793-7009 Tanya.dannibale@fls.nmss.org Nov. 7th, Dec. 5th
LEE COUNTY NMSS Cape Coral Day Group 1st Sunday of month, 3:00 pm Wellness Center Cape CoralSecond Floor 609 SE 13th Court Cape Coral, FL 33990 Maria Hawley 239-689-8485 mkh64@comcast.net Dave Lane 239-652-3602 lanenikken@comcast.net Nov. 6th, Dec. 4th NMSS Ft. Myers Evening Group 3rd Thursday of month, 5:00 pm St. Hilary Episcopal Church 5011 McGregor Blvd. Fort Myers, FL 33901 Dave Lane 239-652-3602 lanenikken@comcast.net Karen Hart 239-433-4380 Kare4@comcast.com Social luncheon held 1st Thursday of month Contact Karen Hart for details Nov. 17th, Dec.15th
MIAMI-DADE COUNTY NMSS Miami-Dade Spiritual Support Group Persons of all faiths welcome 2nd Thursday of month, 6:00 pm Doctors Hospital 5000 University Drive Coral Gables, FL 33146 Go to the Chapel on the second floor near Elevator A Chaplain Ronald Gaudio 786-308-3800 ronaldga@baptisthealth.net Nov. 10th, Dec. 8th NMSS South Miami-Dade Evening Group 2nd Thursday of month, 7:00 pm Doctors’ Hospital - Cafeteria 5000 University Drive Coral Gables, FL 33146 Tanya Dannibale Tanya.dannibale@nmss.org Nov. 10th, Dec. 8th
NMSS Miami Beach Group 1st Tuesday of month, 7:00 pm Mt. Sinai Medical Center Founders Conference Center 1st Floor, Warner Bldg, 4300 Alton Road Miami Beach, FL 33140 Gladys Fernandez 305-534-8848 abbayayi@yahoo.com Ellie Klein Cardonne 305-322-2299 ecardonne@bellsouth.net Dec. 6th
PALM BEACH COUNTY NMSS Boca Delray Day Group 3rd Thursday of month, 2:00 pm Patch Reef Park Community Center 2000 N.W. Yamato Road Boca Raton, FL 33431 Kay Rosenberg 561-364-2252 Kayn_jim@comcast.net Jarod Jacobs 561-503-3134 Jarod_Jacobs@comcast.net Nov. 17th, Dec. 15th NMSS West Boca Evening Group 1st Wednesday of month, 6:45 pm West Boca Medical Center 21664 State Road 7 Boca Raton, FL 33428 Doctors’ Dining Room Claudia Erdman 561-483-4257 bocaclaudia@aol.com Dec. 7th NMSS North Palm Beach Group NOW OPEN TO THOSE WITH MS AND FRIENDS 2nd Monday of month, 6:30 pm Borland Center, 3885 PGA Blvd. Palm Beach Gardens, FL 33418 Nancy Decker 561-622-4606 Nov. 14th, Dec. 12th Palm West Multiple Sclerosis and Care Partners Support Group Howard Chiet 561-795-5233 JJHAKKS@aol.com Dinner outing on 3rd Thursday of month at 6:30 pm Contact Howard Chiet for details Nov. 17th, Dec.15th NMSS Central Palm Beach Group 22nd Tuesday of month, 7:00 pm JFK Hospital 5301 S. Congress Avenue Lake Worth, FL 33462 3 Tower Conference Room Mara Stegmaier 561-632-2403 or 561-792-2400 marastegs@yahoo.com Joy Mercado 561-234-0938 m.s.joy7@gmail.com Nov. 8th, Dec. 13th
NMSS West Boca Day Group 2nd Tuesday of month, 7:00 pm Hagen Ranch Road Public Library 14350 Hagen Ranch Rd. Delray Beach, Fl 33446 Jim Montgomery 561-740-7867 cjim@bellsouth.net Nov. 8th, Dec. 13th
NMSS NEW GROUP COMING SOON! NMSS MS Family Connection 2nd Wednesday of the month, 7:00 pm All ages welcome! Kids, Parents, family members, caregivers, EVERYONE!
Joy Mercado 561-234-0938 msfamilyconnection@yahoo.com Nov. 9th, Dec. 14th
MS TELEPHONE SUPPORT GROUPS NMSS Newly Diagnosed Telephone Support Group Last Wednesday of the month, 7:00 pm All ages welcome! Kids, Parents, family members, caregivers, EVERYONE! Joy Mercado 561-234-0938 msfamilyconnection@yahoo.com Nov. 9th, Dec. 14th
“CAFÉ CON LECHE” Conversation and Support for people with Multiple Sclerosis National Multiple Sclerosis Society offers a once a month telephone support group in Spanish 2nd Tuesday of the month, 2:00-3:00 pm For more information or to subscribe call 1-800-344-4867, option 3 Nov. 8th, Dec.13th
Wellness Programs BROWARD Tai Chi & Chair Fitness Coral Springs Medical Center 3000 Coral Hills Drive Coral Springs, FL 33065 Kathy Byrne (954) 344-3344 Tai Chi: Sat. 9:30 am Exercise as Part of Everyday Life Tamarac Community Center 8601 W Commercial Boulevard Tamarac, FL 33321 Rose (954) 597-3643 Tai Chi: Mon. 1:00 pm Chair Yoga: Tues. 11:30 am Meditation: Mon. 12:30 pm Chair Fitness Coral Springs Medical Center 3000 Coral Hills Drive Coral Springs, FL 33065 Kathy Byrne: (954) 344-3344 Mon. & Wed.10:30 am Yoga Rosa 110 N. Federal Hwy. #304 Hallandale Beach, FL 33009 Rosa Santana (954) 456-6077 Special Needs: Tues. & Thur. 12:00 -1:00 pm Basic Yoga: Mon. & Wed. 8:30 am, 12:00 pm, 5:30 pm Chair Yoga Coral Springs Medical Center 3000 Coral Hills Drive Coral Springs, FL 33065 Tel: (954) 344-3344 Tues. & Thurs. 12:45 pm MS Restorative Yoga Weston Yoga 2600 Glades Circle, Suite 400 Weston, FL 33327
Fabienne Grossman (954) 349-6868 Tues. & Thurs. 12:00 - 1:00 pm Wed. 8:00 - 9:00 pm RSVP Required 24 hours in advance of the class
COLLIER COUNTY NCH WELLNESS PROGRAM Briggs Memorial Center The Briggs Wellness Center 399 Ninth Street North Naples, FL 34102 Aquatics: Tues. 2:30 pm Yoga & Balance: Mon. 2:15 pm
LEE COUNTY Cape Coral Wellness Facility The Wellness Center of Cape Coral 609 SE 13th Court Cape Coral, FL 33990 (239) 549-3637 Aquasize: Tues. & Thurs. 11:00 am Gentle Yoga: Mon. 12:00 pm Fort Myers Wellness Facility Lee Center for Rehab and Wellness 2070 Carrell Road Fort Myers, FL 33901 (239) 549-3637 Gentle Yoga: Tues. & Thurs. 11:30 am - 12:30 pm
MIAMI-DADE Exercise for Everyone Goulds Park 11350 SW 216 Street Miami, FL (305) 234-4948 Aquatic Exercise: Tues. & Thurs. 11:00 am - 12:00 pm
Tai Chi with Tony Tony Garcia 4601 Ponce de Leon Blvd. Ste. 100 Coral Gables, FL 33146 Thurs. 7:00 - 8:00 pm 9090 SW 87th Ct. Ste 201 Miami, FL 33176 Tues. from 7:00 - 8:00 pm
PALM BEACH Tai Chi in Palm Beach Mae Volen Senior Center 1515 W Palmetto Park Rd. Boca Raton, FL 33486 John Bellatoni (561) 395-8920 Fri. 12:00 pm - 1:00 pm Yoga & Feldenkrais Mae Volen Senior Center 1515 W Palmetto Park Rd. Boca Raton, FL 33486 Kary Cavanaugh (561) 504-8424 Fri. 1:00 - 2:00 pm Yoga for MS Delray Center for Wellness 120 SE 4th Ave Delray Beach, FL 33483 Chaya ~ Sharon Heller (561) 330-2929 Chair Yoga: Fri. 11:00 am Gentle Yoga: Mon. 10:00 - 11:00 am, Tues. 6:00 - 7:00 pm, Thur. 11:00 am - 12:00 pm Aquatics in Broward and Dade Coming Soon. Please See Website for Additional Information.