Programs
December 2008 — January 2009 • Vol. 8 No. 1
CONNECTION
Capitol Conference Create change through activism.
Women’s Getaway Girls in the city.
Plus Teen Holiday Bowling Party Managing Fatigue and much, much more
JOIN THE MOVEMENT
MOVING IS WHO WE ARE “Unlikely activists took small steps to fuel momentum and make big change.” Over the years I have heard people say things like “I could never be an MS activist,” or “I don’t know anything about politics.” In reality, anyone can become Maureen Reeder and an activist for people living with multiple former U.S. Rep. sclerosis. And sometimes, all it takes is Ramstad at the Capitol for people to tell their stories. in Washington, D.C. This past year, the Minnesota Chapter received phone calls, e-mails and letters from more than 60 people who saw sudden spikes in prescription co-payments for MS diseasemodifying drugs under some employer-based health plans. They shared their stories about how this affected their day-to-day lives and how they feared it would affect their futures. Thanks to these people who expressed concern, we had plenty to talk about with the health insurance companies. MS activists wrote letters to their insurance companies and several people joined chapter staff in a meeting with health plan representatives. Last spring, we recruited Rep. Rod Hamilton, who lives with MS, to introduce legislation to cap co-payments for MS diseasemodifying drugs. Many of the people who took a stand on this issue didn’t consider themselves activists. But by speaking up, this group of unlikely activists took small steps to fuel momentum and make big change. As the chapter prepares for the 2009 legislative session, capping co-pays for MS drugs is a top priority. Join your fellow MS activists and help put an end to co-pay increases. Learn about this year’s Capitol Conference on Page 13. I hope to see you there!
Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Timothy Holtz Emily Wilson MS Navigators Sarah Danen Jaclyn Groneberg Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter.
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Table of Contents
Programs by topic
Personal connections
Advocacy
Clubs and groups MS Camp Teen Holiday Bowling Party Women’s Getaway
Capitol Conference
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Healthy living Back to Fitness MS Fitness Club and Team What’s online?
20 5 23 19 15
Join the movement Capitol Conference MS Fitness Club and Team
13 5
Managing MS symptoms Back to Fitness Face Time with Your Local Neurologist Managing Fatigue What’s online?
What’s online?
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Teen Holiday Bowling Party
20 21 11 23 26 9
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Programs by location Hutchinson Connect Locally
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Maple Lake MS Camp
Newly diagnosed Clubs and groups Moving Forward with MS
Technology Youth
Inspiration Connect Locally Women’s Getaway
26 17 7 15
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Twin Cities – Metro programs Back to Fitness Capitol Conference Connect Locally Managing Fatigue Moving Forward with MS Teen Holiday Bowling Party Women’s Getaway
20 13 19 11 9 7 15
JOIN THE MOVEMENT
Small steps toward big change “We don’t decide to get MS, but we can decide how we will approach it.”
– Elizabeth Carlson, diagnosed in 2002
Elizabeth Carlson — diagnosed with multiple sclerosis in 2002 — has been fighting to lower the cost of co-payments for prescription drugs for MS and other chronic illnesses under employer-based health plans. In 2008 Carlson received notice from her health insurance company that her prescription co-payment for the MS disease-modifying drug Rebif would increase 1,500 percent — causing her annual out-of-pocket expense to jump from $160 to $2,400. After her MS diagnosis, she had to make many life adjustments, but now, Carlson worried she’d have to make drastic financial changes as well. “Now people with chronic illness may have to make a choice between paying for rent or groceries and getting their medication,” Carlson said, “That’s not right.” She felt disbelief, sadness and anger but realized she had the resources and abilities to reverse the change. Carlson took her first step toward becoming an activist; she wrote a letter. Carlson has written eight letters to key state representatives, three of whom serve on the Health and Human Services Committee. She considers her activism on the issue to be
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Elizabeth Carlson (center) with Becky Quinlan (left) and Carolie Collins at walk MS. a routine part of managing the disease. Though Carlson knows it could be years before she and others with MS see a change in co-pays, she remains hopeful and strong willed. “We don’t decide to get MS, but we can decide how we will approach it,” she said. “I have the strength. I am a finisher, I won’t quit until we see the change.”
Get involved Learn more about the Capitol Conference on Page 13.
National Multiple Sclerosis Society, Minnesota Chapter
MS Fitness Club and Team Join the movement. The Minnesota Chapter offers two great ways to maintain fitness, connect with others and join the MS movement in 2009.
MS Fitness Club The first opportunity is the MS Fitness Club — a sharing group that gives people with multiple sclerosis a chance to discuss individual fitness goals and exercise programs. The club is open to anyone with MS who is presently exercising or who is interested in exercising. Tom Holtackers, a physical therapist who lives with MS, facilitates the sessions.
The MS Fitness Club meets the third Saturday of MS Fitness Team the month at the chapter office from 10 a.m. to noon. The MS Fitness Team provides people with MS an opportunity to connect with others Topics may include: throughout the chapter area from the comfort 1. Fitness and exercise: what are they, how will of their own home. they help me, how do I get started and how To be a member of the MS Fitness Team you do I keep going? must be a person with MS, commit to some form 2. How do I develop long- and short-term of physical exercise at least 30 minutes a day, five goals? days a week, volunteer for the MS Society at least 25 hours a year, and raise $250 for the chapter. 3. How much is too much or too little exercise? 4. What exercises help improve fatigue? 5. What exercises help improve strength? 6. What exercises help manage spasticity? 7. What exercises help manage bladder symptoms? 8. Exercise of the month 9. Nutritional tip of the month
Members of the team network with one another via message boards and telephone calls. Team members receive certificates of completion and T-shirts to wear at chapter programs and events.
Get involved If you are interested in either of these programs, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Equipment programs Exchange or borrow the equipment you need, when you need it.
Equipment Exchange
Equipment Loan Program
The Minnesota Chapter Equipment Exchange is available to help people with disabilities purchase new equipment and sell or donate items they no longer need. Equipment ranges from accessible vans to stair glides.
The Equipment Loan program allows people with MS to try out equipment before making an important purchase or to address the everchanging nature of the disease. This program offers equipment in the Twin Cities metro area as well as Brainerd, Hutchinson and Duluth. It is a great way to try before you buy or use something while on vacation. The most popular loan items are three-wheel scooters, walkers and manual wheelchairs.
Any donated equipment is a non-cash charitable contribution and you may apply it in part to your tax deductions. The Equipment Exchange is open to the public and viewed nationwide.
Buy, donate or sell Visit www.MSsociety.org and click on Equipment Exchange under “MS Links.� To sell or donate an item, click to place the item on the exchange board. To browse available items for purchase, simply scroll down the page. 6
Borrow The process is simple. Just call Scott at 612-335-7967. Equipment can be used from one week to three months depending on the type of equipment and your needs.
National Multiple Sclerosis Society, Minnesota Chapter
Teen Holiday Bowling Party Join other teenagers affected by MS for fun and friendship.
Jan. 2 n Bloomington The Minnesota Chapter invites teens with a connection to multiple sclerosis to the Teen Holiday Bowling Party. The fun includes cosmic bowling, pizza, refreshments, team bowling games and connecting with one another. Teens may bring a friend.
ADDITIONAL RESOURCES Join the Teen E-connection e-mail list. E-mail Nancy Dawn Van Beest at ndvanbeest@MSsociety.org. Talkin’ Teens Chat Room A chat room on MSWorld for teens ages 13 to 18 with MS. Visit www.MSworld.org.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Teen Holiday Bowling Party
Friday, Jan. 2
Space is limited. Registration form must be received by Dec. 29.
Location
Register online at www.MSsociety.org.
AMF Southtown Lanes 7941 Southtown Center Bloomington, MN 55431 952-888-9248 www.amf.com/southtownlanes
Please print ID# (from mailing panel) ________
Program fee
Name________________________ Age________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Register
Name________________________ Age________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Questions
Name________________________ Age________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ If you need any special accommodations, call 612-335-7970 (by the registration deadline).
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MNM0CKTW20090102BLO
7:30–10 p.m.
There is no fee for this program. Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
For more information, contact Nancy Dawn Van Beest at 612-335-7936 or ndvanbeest@MSsociety.org or Rachel Ring at 612-335-7937 or rring@MSsociety.org.Â
Moving Forward with MS Move forward together with family, friends, health care providers and others affected by MS.
Jan. 10 n Oakdale
“I take one day at a time and continue to live life as normally as possible.”
If you or someone close to you has multiple sclerosis, you probably have a lot of questions and concerns. You may also feel overwhelmed and unsure of what questions to ask. This program gives you the information and support you need to live comfortably and confidently with this change in your life and help you make medical decisions about all aspects of your health. n
Learn about MS from an expert neurologist
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Team up with your health care providers
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Navigate the medication maze
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Consider clinical trials
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Understand how to talk about MS with your friends and family
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Gain information about resources available to you
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Learn how to cope with the anxiety MS may bring to your life
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Connect with other people whose lives are affected by MS
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Achieve optimal wellness
– Natasha Frechette, diagnosed in 2007
ADDITIONAL RESOURCES
Information for people newly diagnosed with MS www.MSsociety.org (click on Living with MS) South Metro Newly Diagnosed Self Help Group Meets the last Wednesday of the month at 6:30 p.m. at Jo Jo’s Rise & Wine, 12501 Nicollet Ave., Burnsville. For more information, contact Jennifer at 952-412-1296.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Moving Forward with MS
Saturday, Jan. 10
Space is limited. Registration form must be received by Jan. 2.
8:30 a.m. 9–10:30 a.m. 10:45 a.m.–noon Noon–1 p.m. 1–2:30 p.m. 2:45–3:45 p.m. 4–4:30 p.m.
Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending @ $10 per person $_______ enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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MNM0CNDW20090110OAK
9 a.m.– 4:30 p.m.
Check-in begins with continental breakfast My life, my MS, my decisions — Timothy Holtz Understanding MS in your life — Sara Heinzen Networking lunch Learning about MS — Dr. Adam Carpenter Connecting with others discussion groups Conquering the anxiety and fear of MS — Sara Heinzen
Location Hilton Garden Inn St. Paul/Oakdale 420 Inwood Ave. Oakdale, MN 55128 651-735-4100 www.hiltongardeninn.hilton.com
Program fee $10 per person. Fee adjustments are available upon request. Make checks payable to MS Society. Do not send cash.
Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
DVD or video A DVD or video of the program is available in the chapter’s Lending Library. Visit www.MSsociety.org and click on Library and Literature or call 612-335-7938.
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org. Made possible with a restricted educational grant from
Managing Fatigue Get tools for managing fatigue.
Jan. 15 n St. Paul Fatigue is one of the most common symptoms of multiple sclerosis. It can severely interfere with both work and home activities. Learn how to manage fatigue and curb its effects on daily living at the Managing Fatigue program. The Managing Fatigue program is a six-week group course designed by experts in the field of MS rehabilitation. Participants will learn ways to manage this common, complex and sometimes disabling symptom. The series includes five videos highlighting the most important aspects of MS fatigue. There
will be six one-and-a-half-hour sessions led by Kathleen Matuska and occupational therapy students from the College of St. Catherine. The format includes video viewing, group discussions, individual goal-setting and homework activities designed to help you manage fatigue.
ADDITIONAL RESOURCES “Fatigue: What You Should Know” Contact the chapter for a free copy.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Managing Fatigue
Thursday, Jan. 15
Space is limited. Registration form must be received by Jan. 7.
Location
Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________
Fairview MS Achievement Center 2200 University Ave., Suite 140 St. Paul, MN 55114
Program fee There is no fee for this program.
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Register
Complete names and addresses of others attending:
Questions
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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MNM0CWES20090115STP
6:30-8:30 p.m.
Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
For more information, contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.
Capitol Conference Create change through activism.
Feb. 3 n St. Paul Every year at the National MS Society, Minnesota Chapter Capitol Conference, Minnesotans come together to speak with lawmakers about issues affecting people with multiple sclerosis. At this year’s conference, MS activists will focus on two key issues: a bill to cap prescription co-payments for MS disease-modifying drugs under employerbased health plans and a tax credit for people who care for loved ones with disabilities. This conference is for anyone who wants to speak up for people living with MS in Minnesota. No experience is necessary. Group leaders guide participants throughout the day. Before visiting the Capitol, activists must participate in one teleconference training and one in-person training. New this year, the Minnesota Chapter offers three date options for both teleconference and in-person trainings. Training sessions include tips for meeting with legislators and an overview of this year’s hot issues.
Conference requirements: n
Participate in one teleconference training
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Participate in one in-person training
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Commit to at least one follow-up meeting with your legislators
The chapter will provide: n
Hotel accommodations for participants from greater Minnesota
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Lunch at the Capitol
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Transportation from greater Minnesota where feasible
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Materials and supplies for conference visits
n
Training materials and trainings
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Capitol Conference
Tuesday, Feb. 3
Space is limited. Interest form must be received by Jan. 16.
MS activist training
Complete interest form online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
9 a.m.–5 p.m.
Capitol Conference participants must complete one teleconference training and one in-person training.
Teleconference trainings Wednesday, Jan. 21, 4–5 p.m. Thursday, Jan. 22, 7–8 p.m. Friday, Jan. 23, 10–11 a.m.
In-person trainings Saturday, Jan. 31, 2-4 p.m., Bloomington Monday, Feb. 2, 2–4 p.m. or 7–9 p.m., St. Paul Tuesday, Feb. 3, 8–9 a.m., St. Paul* *This session intended only for those who have participated in the Capitol Conference in previous years.
Program fee There is no fee for this program. Transportation and lodging is provided to people traveling from greater Minnesota or outside the Metro Mobility service area where feasible.
Register If you are interested in participating, complete the interest form. After registering, you will receive a detailed packet of program information. Online or by phone Visit www.MSsociety.org or call 612-335-7968. By mail Mail interest form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information contact Kari Harju at 612-335-7968, 800-582-5296 or kharju@MSsociety.org.
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INTEREST FORM
Women’s Getaway Girls in the city.
Weekend includes: March 27–29 n Minneapolis
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Entertainment
If you are a woman with multiple sclerosis, take advantage of this wonderful opportunity to socialize with other women affected by MS, have fun, build supportive relationships and learn ways to cope with the changes MS brings to life.
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Fun
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Big city activities and cuisine
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Motivational, humorous and educational speakers
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Opportunities to build friendships
At the Women’s Getaway, speakers and activities provide participants with motivation, inspiration and positive ways to cope with MS. The weekend theme is “girls in the city.” The getaway will be held at the Radisson Plaza Hotel — a prime location in the heart of
downtown Minneapolis just steps away from shopping and entertainment. The hotel offers warm hospitality, an inviting atmosphere and top-notch service.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Women’s Getaway
March 27-29
Space is limited. Interest form must be received by Feb. 20.
Friday, March 27
Complete interest form online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Do not send payment with this form.
Minneapolis
Check in, connect with other women and enjoy a “big city” dinner and show.
Saturday, March 28 Learn positive ways to cope with MS in your life. Participate in afternoon activities or shop and then enjoy the evening dinner and special guest speaker.
Sunday, March 29 Get inspired and motivated at the morning brunch.
Location Radisson Plaza Hotel 35 S. Seventh St. Minneapolis, MN 55402 612-339-4900
Program fee $150 per person. Fee adjustments available upon request.
Register If you are interested in participating, complete the interest form. Do not mail check with this form. After registering, you will receive a detailed packet of program information and a billing invoice. Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
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INTEREST FORM
MS Camp Connect with old and new friends.
May 4–8 n Maple Lake Aug. 24–28 n Maple Lake MS Camp is a five-day program for people with multiple sclerosis at Camp Courage, near Maple Lake, Minn, May 4 to 8 and Aug. 24 to 28. MS Camp provides an opportunity to take a vacation from the challenges of the disease, connect with others and enjoy daily activities. MS Camp includes outdoor activities, like canoeing or horseback riding, and indoor activities such as crafts, educational workshops and games. Professional entertainment and theme parties are just a couple of the exciting nighttime events.
Camp Courage — complete with an indoor pool, farm, health center, gymnasium and recreation area — is fully accessible, and cabins feature a comfortable lounge and sleeping area. If you would like to learn more by speaking with past participants, contact the Minnesota Chapter. To see photos of MS Camp 2008, visit the MS Camp page at www.MSsociety.org.
MS Camp 2009 will be smoke free To learn about smoking cessation resources, call the chapter or visit www.MSsociety.org or www.quitplan.com.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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MS Camp
May 4-8 and Aug. 24-28
Interest forms for the May and August camp sessions must be received by Feb. 13.
Location
Please print ID# (from mailing panel) ________
Assistance
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Maple Lake
Camp Courage, Maple Lake, MN
Trained volunteers are available to assist campers with personal care needs and recreational activities. Nurses are available to provide on-site medical care and a camp doctor will be on call. Home health aids are available in the morning and evening to provide personal care in the cabins. Campers are also invited to bring their own care helpers to provide personal care.
Program fee $200 per person. Fee adjustments are available upon request.
I want to participant in camp:
Applications
May 4-8
If you are interested in participating, complete the interest form. Professional staff and volunteers review the applications to determine if the Minnesota Chapter can meet the medical and safety needs of participants. In some cases, individual medical needs may be greater than we can provide at MS Camp. Upon acceptance you will receive a billing invoice. Do not send a check with the interest form.
q Yes q No
Aug. 24-28 q Yes q No q Both dates work for me, fit me in where space is available. Do not send payment with this form.
Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail interest form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Jeannie Zank at 612-335-7939, 1-800-582-5296 or jzank@MSsociety.org Please note that we will make every effort to accommodate the camp of your choice, but we cannot guarantee space will be available. If a camp date has already been filled, you will have your choice of being placed on a waiting list or participating in the alternative camp.
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INTEREST FORM
Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS.
Moving Forward Film Festival St. Paul n Wednesday, Jan.14 Hutchinson n Monday, Feb. 9 In 2007, the National MS Society launched an MS Film Festival to give people affected by multiple sclerosis a platform to tell their story and show the world how they move forward. A film committee made up of people with MS who work in the entertainment industry selected five finalists to be paired with a production company to help bring their stories to life. Sharpen your movie critic’s tongue, find inspiration in other people’s stories or just sit back and relax. Join the St. Paul Care to Share self-help group or the Hutchinson self-help group for a screening of the five winning films. Popcorn will be served.
ADDITIONAL RESOURCES
Can’t make this program?
To view the five short films, visit www.YouTube.com and search for “Moving Forward Film Festival.”
For information and to R.S.V.P. to the St. Paul self-help group, contact Beth at 612-825-7990 or bajensen2001@earthlink.net. For information and to R.S.V.P. to the Hutchinson self-help group, contact Ann at 320-824-7896 or annlha@yahoo.com.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Back to Fitness Discover the benefits exercise can bring to your life. as the Multiple Sclerosis Treatment and Research Center, with Dr. Gary Birnbaum. Program participants receive instructions for home fitness, health club recommendations, lessons in body mechanics and posture, and education about their condition and how exercise plays an important role in managing symptoms.
How it works
Physical fitness is an important aspect of your overall health care strategy. It is known to reduce pain levels, strengthen and stabilize muscles and improve work and recreational activities. Join others with multiple sclerosis by participating in the Back to Fitness program. The Back to Fitness program at the Minneapolis Clinic of Neurology is a medically supervised therapeutic exercise program that helps people with medical conditions that require rehabilitation to improve functional tolerance for daily activities. The Back to Fitness program specializes in treating people with neurological conditions, including MS. Center staff work closely with the Schapiro Center for Multiple Sclerosis, with Dr. Randall Schapiro and Dr. Jonathan Calkwood, as well 20
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After a one-on-one consultation, the Back to Fitness team develops a need-specific program just for you.
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The program generally runs six weeks or longer depending on how often you are able to attend sessions.
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The Back to Fitness team modifies the program in the event of insurance or financial issues or if participants need little supervision.
Centers are located in Burnsville and Minneapolis. Call to set up an appointment. Prescriptions are needed for services. Back to Fitness Center Golden Valley The Minneapolis Clinic of Neurology, Ltd. 55422 Golden Valley Road, Golden Valley, MN 763-302-4102 Back to Fitness Center Burnsville The Minneapolis Clinic of Neurology, Ltd. 675 East Nicollet Blvd., Suite 100, Oak Ridge Professional Building, Burnsville, MN 952-989-5000
National Multiple Sclerosis Society, Minnesota Chapter
Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, R.N. Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: Jan. 14
Multiple faces of MS
MRI, what it is, what it is not
Feb. 18
Please R.S.V.P. at 763-302-8282, ext. 4823. Dr. Gary Birnbaum
University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412 Topics:
Jan. 12
Exercise and nutrition
For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Face Time with Your Local Neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Randy Schapiro and Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750 Topics:
Jan. 7
What is MS?
Jan. 14
Managing injectable medications
Jan. 21 Dr. Randy Schapiro
The challenges of disability insurance and Social Security
Jan. 28
Exploring a new concept: group appointments
Feb. 4
The role of physical therapy in MS
Feb. 11
What is an MS attack?
For more information, contact the Schapiro Center for MS at 763-302-4199.
Dr. Jonathan Calkwood
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National Multiple Sclerosis Society, Minnesota Chapter
What’s online? Resources for managing MS symptoms and smoking cessation. MS Learn Online
This video webcast series includes:
MS Learn Online is the National MS Society’s online educational webcast series featuring three channels of programming — Feature Presentation, Daily Minute and Question and Answer. Transcripts (.pdf) and podcasts (.mp3) are available for most programs.
Part 1: Fatigue
Check out the latest webcast, Managing Your Symptoms featuring Dr. Patricia Coyle. Coyle is acting chair, professor of neurology and director of the Stony Brook Multiple Sclerosis Comprehensive Care Center. Her areas of expertise include neurologic infectious disease, specifically Lyme disease and multiple sclerosis.
Length: 12 minutes Topics: n
Different types of MS fatigue
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Effects of depression, heat and lack of sleep on fatigue
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Strategies for managing fatigue
Part 2: Numbness, dizziness and vertigo Length of program: 11 minutes Topics: n
Numbness and tingling as initial symptoms
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Explanation of dizziness versus vertigo
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Managing numbness, dizziness and vertigo
How to stop smoking QUITPLAN® www.quitplan.com Minnesotans have free access to this service, which provides tools and information to help you quit smoking.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group
Mankato water exercise The Mankato water exercise group meets every Wednesday from 5 to 6 p.m. at the YMCA in Mankato. The group does water walking, stretching, balance and strengthening exercises.
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.
WATER EXERCISE Albert Lea
Andover
Detroit Lakes
Family YMCA Bill Villarreal, 507-373-8228 T/R, 1-2 p.m.
YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon
Alexandria
Burnsville
Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 Call for details.
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.
Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
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Coon Rapids Emma B. Howe Northtown YMCA Joel Giedlinski, 763-717-1859 T/R, 11 a.m.-noon
Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.
National Multiple Sclerosis Society, Minnesota Chapter
Eagan
St. Cloud
Minneapolis
Southwest Area YMCA Trenne Fields, 651-456-9622 T, 9-10 a.m.
Family YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.
Kingsley Commons Jeanine Farrell, 612-925-8478 F, 2:30 p.m.
Eden Prairie
St. Paul
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Humboldt Senior High School Pam Weiss, 651-632-6020 M/R, 5:30-6:20 p.m. S, 8:30-9:20 a.m.
Uptown YWCA Lisa First 612-822-3504 F, Noon
Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.
Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.
Inver Grove Heights The Grove Amy Crary, 651-554-3420 M/W, 10:10-11 a.m.
Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.
New Hope Northwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon
Perham Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.
Staples Staples Community Center Kevin Grondahl, 218-894-2553 W/F, 11 a.m.-noon
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.
New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.
GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m.
Waconia
TAI CHI
Safari Island Sara Johnson, 952-442-0695 M-F, 8:30 a.m.
Mankato Tai Chi for balance
YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.
Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.
Centenary United Methodist Church Rich & Pam Schreiner 507-388-7652 M, 5:30-6:30 p.m M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Featured group
Clubs and Groups
Mankato
Join an MS club or group to “The Mankato
connect with other people
group offers
affected by MS, enjoy lively
a positive
discussions, learn valuable
and uplifting source of support for
information and ways to cope
people living with multiple sclerosis.
with challenges, have fun and
The group is made up of people of
be inspired. Read about groups
all ages who love to be social and
and clubs that are moving
help new members become more
forward together and find a
comfortable. They are always eager
club or group in your community
to answer questions that new
that’s right for you.
members may have about MS.” — Brenda Fruhwirth, group facilitator
BOOK CLUBS
Duluth
Mahtomedi
Apple Valley
Fourth Tuesday of the month 11 a.m. Barnes & Noble Betsy 218-724-9075
Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna 651-762-4084 Mary 651-488-1688
Maple Grove
Minneapolis
Fourth Monday of the month 10 a.m. Barnes & Noble Mary 763-420-4562
Third Tuesday of the month 7 p.m. Kingsley Commons Pat 612-521-4654
First Friday of the month 10 a.m. Barnes & Noble Cindy 952-891-5249
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National Multiple Sclerosis Society, Minnesota Chapter
Rochester
Perham Care Partners
For men
Fourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall Larry 507-281-2447
Last Tuesday of the month 1 p.m. Calvary Lutheran Church
Metro Area It’s Just Breakfast (with the guys)
Roseville
Third Tuesday of the month 6:30 p.m. St. Louis Park City Hall
First Tuesday of the month 10 a.m. Barnes & Noble Har Mar Carol 763-571-2290
SELF-HELP GROUPS New group MS Fitness Club Third Saturday of the month 10 a.m. Chapter Office
For care partners Bemidji Care Partners Third Saturday of the month 10 a.m. North Country Regional Hospital
Elk River Care Partners First Wednesday of the month 6:30 p.m. Senior Center
Men’s Care Partner Breakfast Third Saturday of the month 10 a.m. Different restaurant each month Contact Dan for location at 651-779-9435 or dbr@danielrude.com
St. Louis Park Care Partners
St. Paul Care Partners at MSAC Second Tuesday of every other month 7 p.m. MS Achievement Center
For couples Stillwater Couples Second Saturday of the month Noon Courage Center
For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m. Metropolitan Center for Independent Living
Various Saturdays of the month 10 a.m. Different restaurant each month Contact Rick for location at 763-208-8741 or rleaf@msnet.org
For newly diagnosed South Metro for Newly Diagnosed Last Wednesday of the month 6:30 p.m. Jo Jo’s Rise & Wine
For people of color Metro Area MS Group for People of Color Second Saturday of the month 10 a.m. Wayman AME Church in Minneapolis
For people mildly affected by MS Southwest Metro MS group for mildly affected Third Saturday of the month 10 a.m. United Methodist Church in Eden Prairie
For professionals Let’s Lunch: professionals living with MS Third Saturday of the month 11 a.m. Chatterbox Pub in St. Paul
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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For women
Belview
Canby
Maplewood Peer Emotional Support Women’s Group
Third Thursday of the month 7:30 p.m. Parkview Home No meetings Nov.–Feb.
Second Thursday every other Month, April through December 4 p.m. Sanford Canby Medical Center
Bemidji
Chaska
Third Saturday of the month 10 a.m. North Country Regional Hospital
Third Tuesday of the month 12:30 p.m. Chaska Library
Third Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran Church
General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Access North
Albert Lea Second Monday of the month 7 p.m. Grace Lutheran Church
Alexandria Second Monday of the month 5 p.m. St. Mary’s Office Building
Apple Valley First Thursday of the month 9:30 a.m. Christ Church
Arrowhead region
Benson
Coon Rapids North Suburban
Fourth Tuesday of the month 7 p.m. Westwood Manor Apartments No meetings Nov.–Feb.
Second Wednesday of the month 7 p.m. Coon Rapids City Center
Bloomington
Detroit Lakes
First Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July–Aug.
Second Monday of the month 6 p.m. Lincoln Park Assisted Living
Brainerd MS Breakfast at the Mill
First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
Third Monday of the month 9:30 a.m. Sawmill Inn
Burnsville/Apple Valley
Second Friday of the month 1 p.m. Babbitt Municipal Building
First Tuesday of the month 6:30 p.m. Fairview Education Center in Burnsville
Austin
Cambridge
First Monday of the month 6:30 p.m. Grace Lutheran Church
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Third Thursday of the month 7 p.m. Cambridge Medical Center
Duluth
Eden Prairie Third Tuesday of the month 7 p.m. Wooddale Church
Fergus Falls Second Wednesday of the month 11:30 a.m. United Church of Christ
Forest Lake Area Second Thursday of the month 6:30 p.m. The Meadows for Assisted Living
National Multiple Sclerosis Society, Minnesota Chapter
Gaylord
Litchfield
New Ulm
First Sunday of the month 7 p.m. Lakeview Home No meetings Nov.–Feb.
Fourth Tuesday of the month 3 p.m. Meeker County Memorial Hospital
Third Tuesday of the month 7 p.m. Oak Hills Living Center
Gibbon
Luverne
Third Saturday of the month 9:30 a.m. Gibbon Community Center
Third Thursday of the month 7:30 p.m. Rock County Family Services
First Saturday of the month 10:30 a.m. Oakdale Library
Golden Valley
Mankato
Second Monday of the month 7 p.m. Golden Valley Lutheran Church
Second Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center
Grand Rapids Second Thursday of the month 12:30 p.m. Grand Rapids Public Library
Hibbing Last Thursday of the month 1 p.m. Open Door Church
Hutchinson Second Monday of the month 6:45 p.m. Christ the King Lutheran Church
Inver Grove Heights/ West St. Paul
Maple Grove Second Saturday of the month 10 a.m. St. Joseph the Worker Church
Maple Lake/Annandale Third Monday of the month Noon Maple Manor East in Maple Lake
Minneapolis Last Saturday of the month 10 a.m. Kingsley Commons
First Monday of the month 7:30 p.m. Good Shepherd Lutheran Church No meetings Dec.–Feb.
Mora
Lake Elmo Third Wednesday of the month Noon Christ Lutheran Church
Oakdale
Perham Last Tuesday of the month 1 p.m. Calvary Lutheran Church
Pierz/Little Falls First Wednesday of the month 1 p.m. Bethel Lutheran Church
Princeton Third Saturday of the month 10 a.m. Fairview Northland Regional Hospital
Rochester Second Wednesday of the month 7 p.m. Meadow Lake Senior Living
Roseville
Second Monday of the month 7 p.m. Kenebec Hospital
Second Wednesday of the month 6:45 p.m. Roseville City Hall
New Hope
St. Anthony/New Brighton
Third Saturday of the month 10 a.m. Caribou Coffee
Fourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Staples
St. Paul Care to Share
Willmar
Second Thursday of the month 3:30 p.m. Lakewood Care Center No meetings June–Aug.
Second Wednesday of the month 7 p.m. Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location
First Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home
St. Cloud Second Wednesday of the month 7 p.m. St. Cloud Public Library
St. Cloud-Granite City First Tuesday of the month 4 p.m. Whitney Center
St. Croix Falls Third Saturday of the month 2 p.m. Good Samaritan Nursing Home
St. Paul Second Saturday of the month 10 a.m. Fairview MS Achievement Center
Stillwater
Windom/Cottonwood County
Third Wednesday of the month 6 p.m. Courage Center
Third Tuesday of the month 7 p.m. ALC Lutheran Church
Superior
Woodbury A.M.
Second Tuesday of the month 6 p.m. Superior Public Library
Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church
Waseca
Woodbury P.M.
Third Tuesday of the month 7 p.m. Waseca Medical Center
Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury
Wayzata-Suburban West Hennepin First Thursday of the month 1 p.m. Wayzata Community Church
Additional resources
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Book clubs
Self-help groups
For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.
For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.
National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968
Exercise programs Jeannie, 612-335-7939 Rachel Ring, 612-335-7937
Camps and getaways Getaways for care partners, couples, Family, youth and care partner programs families, men and women Nancy Dawn, 612-335-7936 Timothy, 612-335-7930 MS Camp Jeannie, 612-335-7939 Youth Camp Nancy Dawn, 612-335-7936 Chore services Kari, 612-335-7968 Clubs and groups Book clubs Jeannie, 612-335-7939 Self-help groups Jeff, 612-335-7951 Education programs Timothy, 612-335-7930 Emergency assistance Scott, 612-335-7967 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967
Lending Library Heather, 612-335-7947 Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974
Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965 Teen programs Rachel Ring, 612-335-7937 Housing Volunteer opportunities Steve, 612-335-7974 Timothy (Programs), Independent Living Grants 612-335-7930 Will (Events), 612-335-7992 Grants are available for care partner relief, aids for daily Walk MS, Bike MS and living, adaptive equipment motorsport events and home modification. Cortney, 612-335-7971 Scott, 612-335-7967 Information and Referral Center MS Navigators can answer questions about living with MS and connect you to resources. Heather, Jaclyn, Jill and Sarah, 612-335-7900 Inservices for companies and organizations Steve, 612-335-7974
Calling from Greater Minnesota? Call 1-800-582-5296.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Are you a Movement Ambassador? n
Do you often talk with people about your involvement with the MS Society?
n
Are you interested in sharing your story about how MS affects your life?
n
Do you enjoy mobilizing and engaging people in the MS movement?
If so, you should be a Movement Ambassador. The Movement Ambassador program is an exclusive opportunity for people who are committed to engaging others in the MS movement. Learn more and sign up at MSsociety.org. For more information, contact Jenna at 612-335-7981 or jwashnieski@MSsociety.org
look at life insurance in a whole new way There are many ways to support the movement to create a world free of multiple sclerosis. But did you know you can make a significant gift through your insurance policy?
Let it go. Make an outright gift of a paid-up life insurance policy. Start anew. Take out a new policy with the National MS Society as owner and beneficiary. Your continuing premium payments, usually gifted directly to the society, are income tax deductible. With small annual payments, you can yield a sizable gift to the society. To learn more, contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.