Programs Connection, summer 2010 by National MS Society, Upper Midwest Chapter

Programs

Summer 2010

CONNECTION

20s and 30s social outing

Connect with other young adults living with MS at a Saint Paul Saints game.

Newly diagnosed consultations

Weâ&#x20AC;&#x2122;re here to answer your questions.

Plus Fall MS research symposium Mentor Program Day trip and much, much more

JOIN THE MOVEMENT

MOVING IS WHO WE ARE “Each person has their own unique way of managing the ups and downs of MS.” Over the years, the Minnesota Chapter has held a variety of educational and support Jeff Fisher, Community programs for people with MS. But one Support Coordinator thing we noticed was that people in their 20s and 30s weren’t attending as much as people in other age groups. We weren’t sure why, but one thing we did know was that we’d never find out unless we asked. That’s why the Minnesota Chapter went straight to the source. We developed an advisory group of people in their 20s and 30s to help us offer opportunities for Jill Parkinson, young adults affected by MS to connect Social Worker with one another and join the movement to end the disease. (Meet one of the group members on page 4.) Since then, we’ve learned that many people in their 20s and 30s prefer to gather in a more relaxed, social atmosphere. The group has helped organize several successful happy hours, picnics and more, and other cool events are in the works to network, support one another and most importantly, have fun. Each person has their own unique way of managing the ups and downs of MS. Whatever the case, we want you to Get involved have the tools to move forward. Stay tuned To get involved with the for more 20s and 30s advisory group or learn more, programs, including the call us at 800-582-5296. one on page 14! Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Holly Anderson To obtain an audio tape of Programs Connection, call Kari Harju at the Minnesota Chapter.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

Programs by topic

Programs by location

Join the movement

Alexandria

Make your voice count On the Move Luncheon

5 6

Managing MS Connect locally Exercise Face time with your local neurologist Living well with MS Magnetic resonance imaging Multiple sclerosis: What it’s doing to me Newly diagnosed consultations Take control of your relapsing MS Tips: Beat the heat

22-23 28-29 24-26 19 10 13, 16 9 20 18

Personal financial counseling

Recreation, socializing and connecting 14 30-34 22 11-12 21 17

Research Face time with your local neurologist Fall MS research symposium

24-26 7-8

Technology What’s online?

Young adults 20s and 30s social outing Newly diagnosed consultations

Chaska

14 9

Duluth Face time with your local neurologist

Eden Prairie Connect locally

Fergus Falls Multiple sclerosis: What it’s doing to me

Moorhead Multiple sclerosis: What it’s doing to me

Oakdale Connect locally

Proctor Fall MS research symposium

7-8

Rochester Connect locally

Roseville Connect locally

Relationships Relationship matters

Connect locally

Money matters

20s and 30s social outing Clubs and groups Connect locally Day trip Mentor Program

Connect locally

Twin Cities 20s and 30s social outing 14 Connect locally 22-23 Day trip 11-12 Face time with your local neurologist 24-26 Living well with MS 19 On the Move Luncheon 6 Magnetic resonance imaging 10 Multiple sclerosis: What it’s doing to me 13 Take control of your relapsing MS 20

JOIN THE MOVEMENT

Moving forward, together “There is something to be said for communicating with somebody your age who is dealing with a major health issue and is able to directly relate to you.” – Natasha Gjertson

Natasha Gjertson

I was diagnosed with MS Oct. 15, 2007, at the age of 27. I remember that day very well, as if it were just yesterday. I spent many days and nights researching the latest and greatest and made contacts at the MS Society looking for ways to get involved.

My participation began Nov. 11. That was the day registration opened for Walk MS, and I was determined to not only participate, but make my initial mark against MS. I had 50 friends and family registered in no time and raised nearly $16,000. In 2008, I was honored to be named as the 2009 Walk MS Ambassador. I was also grateful to be featured in the chapter’s “Why Women?” educational campaign and in a New York Times article. I was beginning to feel that MS was changing my life, but in a way that I could never imagine — a positive one. Wow!

The 20s and 30s group has done some great things so far, and we are very excited for our future. In the past, we hosted a happy hour at the Happy Gnome, which offered an amazing opportunity to connect with others and share our stories, not to mention lots of laughs! We’re also working with the Noran Neurological Clinic to fund quarterly events for people affected by MS in their 20s and 30s, including the Saint Paul Saints game this August (see page 14). I have been honored to participate in this group, along with other activities the MS Society has to offer. I feel so grateful every day to be a part of the movement to end MS. I do realize that none of these things will cure me of this disease, but it sure does give me the strength to keep fighting.

Get involved Check out the next 20s and 30s event on page 14.

In the past year, the one group that has truly influenced my life is the 20s and 30s group. There is something to be said for communicating with somebody your age who is dealing with a major health issue and is able to directly relate to you.

National Multiple Sclerosis Society, Minnesota Chapter

Make your voice count. Learn about opportunities to be an activist.

We all have something to say and a story to share. This summer and fall, take advantage of important opportunities to speak up and make your mark.

What changes would you like to see? The Minnesota Chapter is holding town hall meetings throughout the state to identify issues that affect people with MS and their families. Not only will we learn how to better serve people affected by the disease, but the information you share will help us shape the chapter’s legislative platform for 2011. The chapter’s legislative work will be built by people like you! And as we work hard to raise awareness at the Capitol, we’ll be calling on you to share your story. Meet the candidates and cast your ballot Voting is one of the most important ways to speak up. Election Day is Nov. 2, and several important offices are up for election, including U.S. Representative, Governor, State Senator and State Representative. The Minnesota Chapter is working with community organizations to hold candidate forums and networking events in the months

leading up to Nov. 2. This is the perfect chance to meet the candidates, ask your questions and raise awareness about the issues that affect people with MS. Currently events are being planned for the Twin Cities, St. Cloud, Winona, Rochester, Duluth and Red Wing, as well as other cities statewide. Stay in the loop Visit our website or Facebook page for updates on meeting dates and locations. Or better yet, become an Action Alert member and receive e-mails about the events. Simply visit MSsociety.org, click on “Take Action” on the left-hand menu and look for the blue box with Action Alert details.

Questions? To learn more about town halls meetings, voting or event dates, contact Jenna at 612-335-7981.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

On the Move Luncheon Join us for an inspiring, empowering event.

Aug. 19 n Minneapolis The On the Move Luncheon is an inspiring and empowering event that brings people together to raise awareness and funds to end multiple sclerosis. This year’s luncheon features Jourdan Urbach as the keynote speaker. A violin virtuoso and graduate of Julliard, he is currently a freshman at Yale. He was selected as the youngest neuroscience researcher at Harvard University Medical School’s immunogenetics laboratory, under the direction of Dr. David Hafler of the International MS Genetics Consortium.

Jourdan Urbach

David Chaikin

Please join us: Thursday, Aug. 19 10-11:30 a.m. Check-in, networking and silent auction 11:30 a.m.-1 p.m. Luncheon, presentation and live auction The Depot, Minneapolis 225 Third Ave. S.

Urbach is founder and director of Children Helping Children, a musical charity organization that raises funds through Concerts for a Cure for cutting-edge neurological research, pediatric hospital divisions and international medical organizations targeting the eradication of neurological disease. Urbach’s most recent endeavor is as president and founder of the International Coalition of College Philanthropists (ICCP). The goal of the ICCP is to celebrate and encourage humanitarian leadership among college students by creating an elite Honor Society for Philanthropy. The luncheon also features special guest David Chaikin, Minnesota Chapter volunteer and Board member. To learn more, contact Lindsay at 612-335-7976 or lhansen@MSsociety.org, or visit nationalMSsociety.org/OTM.

National Multiple Sclerosis Society, Minnesota Chapter

Fall MS research symposium Hear about the latest in MS research and learn all about clinical trials.

Sept. 11 n Proctor Learn about nationally recognized multiple sclerosis research projects and how clinical trials work. An expert will answer your questions about cutting-edge MS research and therapies. The symposium also includes a session presented by a local expert outlining the process of clinical trials, how people with MS can participate in trials and what participants can expect from the experience. Plus, you’ll be able to visit exhibitor tables to learn more about drug therapy options available to people with MS.

Featured speakers Dr. Gareth Parry is medical director of the MS Center and the Clinical Neuroscience Research Unit, as well as a professor of neurology at the University of Minnesota. Parry also is chair of the Minnesota Chapter’s Clinical Advisory Committee. Dr. Adam Carpenter is a neurologist and faculty member at the University of Minnesota MS Center in the Twin Cities.

Dr. Gareth Parry

Dr. Adam Carpenter

Sponsored by

National Multiple Sclerosis Society, Minnesota Chapter

Personal financial counseling Free counseling sessions with financial experts to help you navigate the complex world of money. Financial planning can be an intimidating subject but there are experts who can provide guidance and support. The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS.

If you are interested in financial counseling, please contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org. Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.

Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this program. Individual counseling sessions are over the telephone and last less than one hour.

These free professional consultations may help you address a variety of financial topics, including: n Basic

budgeting

n Savings

vehicles: pros and cons

n Insurance

analysis, claims assistance

n Investment

review and planning

n Employee

benefits analysis: medical plans, disability coverage and life insurance

n Retirement

planning: analysis and tax planning/effectiveness

n Estate

planning: strategies to maximize inheritances

Additional resources For information about financial and life planning, visit MSsociety.org (click on “Living with MS,” then “Insurance and Money Matters”).

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Details about this program are provided for your information. This program is not produced by the National MS Society.

Multiple sclerosis: What it’s doing to me ... Understand n MS

and its symptoms

n The

role of the central nervous system in MS

n Current

Made possible with financial support from

therapies that treat MS

Featured speaker Jamie Brown

Jamie Brown, PA-C

Jamie Brown is a physician assistant at the MeritCare Multiple Sclerosis Center in Fargo, N.D. In addition to caring for people with MS, she sees patients with a variety of neurological conditions. She received her master’s degree in physician assistant studies at the University of Wisconsin La Crosse-Gundersen Lutheran-Mayo P.A. program.

Sept. 21 n Fergus Falls Mabel Murphy’s Eating and Drinking Establishment 3401 Highway 210 W., Fergus Falls, MN 56537, 218-739-4406 n

Registration: 6-6:30 p.m. n Dinner and program: 6:30-7:30 p.m.

To register, call Betaplus at 800-788-1467. Select option 4 and then enter meeting code BDP10926.

Oct. 6 n Moorhead Courtyard By Marriott 1080 28th Ave. S., Moorhead, MN 56560, 218-284-1000 n

Registration: 6-7:30 p.m. n Dinner and program: 6:30-8:30 p.m. 16

To register, call Betaplus at 800-788-1467. Select option 4 and then enter meeting code BDP10925. National Multiple Sclerosis Society, Minnesota Chapter

Relationship Matters A program for couples living with MS.

Couples engage in creative and interactive course curricula. Classes offered include: n 8

Hours to a Lifetime of Relationship Satisfaction offered through in-person workshops and revolving six-week teleconference series.

n Jumpstart

Kim, diagnosed in 1986 Having a successful relationship is hard work even in the best of times. MS can make it even more challenging. The National MS Society offers a program specifically designed to help couples negotiate and manage the uncertainty of MS — Relationship Matters: A Program for Couples Living with MS. The Relationship Matters program helps you and your partner minimize the impact of MS on your lives by: communication and problem solving skills

Your Relationship: Reclaim Your Wellbeing offered in collaboration with Can Do Multiple Sclerosis (formerly The Heuga Center for Multiple Sclerosis) through a series of six weekly teleconferences.

n Online

classes: n Intimacy: Enriching Your Relationship n Career Decisions: Relationship Matters n Adapting: Financial Planning for a Life with MS…Together. Through participation, you will acquire skills and access resources to better manage the effects of MS on your relationship. Choose the format that best suits your lifestyle and approach to learning, whether it’s in person, online or by phone. Registration is ongoing. For more information call 800-344-4867 or e-mail couplesprogram@nmss.org.

n Improving

When you know how to take charge as a couple, MS doesn’t have to rule your relationship.

n Learning

Funding for this project was provided by the United States Department of Health and Human Services, Administration for Children and Families, Grant: 90FE0090.

how to manage MS as

a team n Developing n Helping

skills for life

your partnership thrive!

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Tips: Beat the heat Stay cool this summer.

Summer is here, which means temperatures are on the rise. Overheating can aggravate a multitude of MS symptoms including fatigue, weakness and vision problems. Here are some common minimizers:

Drink plenty of fluids. n Drink cool water or suck on ice cubes. n

Avoid caffeine as this acts as a diuretic.

Use fans, air conditioning or even hand-held spray bottles. n Air-conditioners can be tax-deductible with a document from your physician. n

Plus, the Minnesota Chapterâ&#x20AC;&#x2122;s Aids for Daily Living Grant can help cover the cost.

Exercise in a cool environment. n If you are exercising outside, pick the cooler times of the day, usually early morning or evening. n

Exercising in cool water (recommended temperature 80-84 degrees) is an excellent way to combat heat during physical activity.

Wear commercial cooling garments such as vests, headbands and neckbands. n The chapterâ&#x20AC;&#x2122;s Aids for Daily Living Grant can help cover the cost of cooling garments. n

A simple damp towel can be helpful, if you do not have one of these products.

A cool bath or shower can help reduce core body temperature.

Independent Living Grants The chapter may be able to help cover the cost of some of these items. For details, contact Scott at 612-335-7967 or sahlgren@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter

Details about this program are provided for your information. This program is not produced by the National MS Society.

Living well with MS Your quality of life counts.

Aug. 21 n St. Paul Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

Details Registration: 11 a.m.–noon Program: Noon-2 p.m. Marjorie McNeely Conservatory Como Park Zoo (Bullard Rainforest Auditorium) 1225 Estabrook Drive

Featured speakers

Praful Kelkar, MD Noran Clinic, MS Center Fridley, Minn.

Susan Evans, MD Noran Clinic, MS Center Minneapolis, Minn.

Robert Jacoby, MD Noran Clinic, MS Center Minneapolis, Minn.

Join us! To register for this free program, call 866-955-9999 or visit MSActivesource.com and click on the “Events” button. phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Taking control of your relapsing MS Learn everything you need to know about managing relapsing MS.

Featured speakers Dr. Jonathan Calkwood is director of The Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology. He serves on the Minnesota Chapter’s Dr. Jonathan Clinical Advisory Calkwood Committee and is certified with the American Board of Psychiatry and Neurology. Calkwood specializes in MS treatment and is fellowship-trained in neuro-ophthalmology. Jordan S. Minneapolis program only Professional hockey player Jordan has faced some serious opponents in his lifetime — both on and off the ice. Jordan was diagnosed with relapsing-remitting MS in 2004. At first, he only told his coach, close friends and family, but with his family’s support, Jordan took control of living with MS. Today, Jordan views his MS just like he views hockey — a game that requires tremendous endurance and perseverance to win.

Details about this program are provided for your information. This program is not produced by the National MS Society.

Sept. 14 n Burnsville Holiday Inn 14201 Nicollet Ave. S. Burnsville, MN 55337 n

Registration: 6 p.m.

Presentation: 6:30-8 p.m.

Oct. 7 n Minneapolis The Metropolitan 5418 Wayzata Blvd. Minneapolis, MN 55416 n

Registration: 6 p.m.

Presentation: 6:30-8:30 p.m.

Made possible with financial support from

National Multiple Sclerosis Society, Minnesota Chapter

Mentor Program Connect with someone who understands.

Doug Bronson and his wife live just one mile north of the Iowa border. Living in the country and having MS, Bronson felt like he dropped out of society. After reading about the Mentor Program in a Minnesota Chapter newsletter, Bronson requested a mentor, hoping the support would alleviate his feelings of isolation and provide much-needed opportunities for socialization. Since his mentor Mark Caffrey lives in a suburban area west of the Twin Cities, they connect weekly over the phone. Bronson sometimes makes a list of specific things he wants to talk about with Caffrey. Sometimes they just talk about general plans. Bronson says he and Caffrey “clicked.” They can talk about anything, and he doesn’t have to worry. And while they have a lot of differences — different hometowns, different challenges — they have similarities, too. The program has helped Bronson get information from someone who has similar needs. “Talking with Mark helps me figure stuff out. I’m not fretting — the answers come to you without trying,” Bronson said. “He doesn’t tell me what to do. He shares what he’s done and offers to provide information.”

Doug Bronson Mark Caffrey

Get involved Consider joining the Mentor Program so you can receive one-on-one support by connecting with someone who understands the unique challenges of multiple sclerosis. Who do mentors support? They are people with MS, family members of someone with MS or care partners. For more information, contact Connie at 612-335-7964, 800-582-5296 or cgundersonwarner@MSsociety.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Connect locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS. Minnesota Landscape Arboretum tram tour Chaska n Aug. 5, 6 p.m. 3675 Arboretum Drive, Chaska, MN 55318 Enjoy a tram tour of the beautiful Minnesota Landscape Arboretum with the Bloomington MS group. Tickets are $8 per person. Attendees meet

inside the Arboretumâ&#x20AC;&#x2122;s Oswald Visitor Center. To RSVP, contact Michelle at 952-831-5635 or Carol at 952-884-2747.

Disease modifying treatments and symptom management Roseville n Sept. 8, 6:45 p.m. Fire Station One/Historical Society, 2701 Lexington Ave., Roseville, MN 55113 While symptoms range from mild to severe, people with MS can manage most symptoms with a variety of strategies. Bring your questions about disease modifying medications and symptom management to this presentation and discussion facilitated by Denice Wax, BSN RN, an

MS-certified nurse and Program Coordinator for the Fairview-University of Minnesota MS Center. To RSVP, contact Robin at 651-647-0809 or scheibs@comcast.net.

Harnessed walking and exercise with MS Oakdale n Aug. 7, 10:30 a.m. Oakdale Library, 1010 Heron Ave. N., Oakdale, MN 55128

Eden Prairie n Sept. 21, 7 p.m. Wooddale Church, 6630 Shady Oak Road, Room 207 (enter through door 4), Eden Prairie, MN 55344 Harnessed walking may help people with MS improve their balance and walking.Â Attend this informative program featuring physical therapist Megan Frost. 22

To RSVP for the Oakdale program, contact Samantha at 651-735-0190. To RSVP for the Eden Prairie program, contact Rick at 612-791-6473 or rleaf@msnet.org. National Multiple Sclerosis Society, Minnesota Chapter

Hold that thought: Cognition and MS Alexandria n Sept. 13, 5 p.m. St. Mary’s Office, 420 Irving St., Alexandria, MN 56308 People with MS often have problems remembering things, finding the right words, concentrating on a task or following a conversation. This DVD presentation provides information about

cognitive symptoms associated with MS, how cognitive changes are evaluated as well as treatment and strategies for managing cognitive changes. Time for discussion will follow the presentation. To RSVP, contact Debbie at 320-761-5131 or debkittym@charter.net.

Primary Progressive MS: Perspectives on Moving Forward Rochester n Sept. 15 and Oct. 20, 7 p.m. Meadow Lake Senior Living, 22 45th Ave. NW, Rochester, MN 55901 Primary progressive multiple sclerosis affects approximately 10 percent of the MS population. The DVD “Primary Progressive MS: Perspectives on Moving Forward” features four people living with primary progressive

MS. Each person has a different background and story and brings a unique perspective to living with the disease. Join us for this informative and uplifting program. To RSVP, contact Geri at 507-288-6255, 507-206-2729 or gercare2003@yahoo.com.

Face time with an MS society social worker: Insurance and Medicare Part D Chaska n Oct. 19, 12:30 p.m. Chaska City Hall, Council Chambers, One City Hall Plaza, Chaska, MN 55318 Minnesota Chapter social workers provide important assistance to people living with MS by helping to address a wide variety of issues.

illness. Bring your questions and be ready to share your insurance-related experiences with the group.

Sarah Danen, LICSW, director of client services, will facilitate group discussion on health insurance and Medicare Part D, two topics that can be confusing and frustrating for people with chronic

To RSVP, contact Mary at 952-556-5599 or marycjohn@gmail.com or Paula at 952-233-0166 or plarson20@comcast.net.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Face time with your local neurologist Get answers straight from the source. Local neurologists host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Highway 55, Golden Valley, MN 55422, 763-591-4700 Topics: Aug. 11 Sept. 15 Dr. Gary Birnbaum Oct. 20

Spinal cord impairment in MS: Dealing with bladder, bowel and sexual issues Enabling body dynamics: Orthotics, braces and other devices Cognition and MS: Definition, evaluation and treatment

Please RSVP to 763-302-8282, ext. 4823.

St. Maryâ&#x20AC;&#x2122;s Duluth Clinic MS Center Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981 Topics: July 28 Aug. 25 Sept. 29 Oct. 27

Grief and Loss, Tom Ellis, MA, Center for Grief, Loss and Transition Sexual Health MRI and MS Questions for your neurologist and MS nurse

For more information, call 218-786-3925.

National Multiple Sclerosis Society, Minnesota Chapter

Face time with your local neurologist

The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday, 1-2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Dr. Jonathan Calkwood

Topics:

Aug. 4

The 15-minute exercise routine

Aug. 11

How to exercise your brain

Aug. 18

The immune system in MS

Aug. 25

Group medical appointment — by invitation only

Sept. 1

No program (holiday week)

Sept. 8

Managing severe spasticity (Join us at 12:30 p.m. for lunch sponsored by Medtronic prior to the program.)

Sept. 15

The benefits of yoga (wear comfortable clothing)

Sept. 22

Group medical appointment — by invitation only

Sept. 29

Driving with MS

Oct. 6

MS and travel

Oct. 13

Helping dogs

Oct. 20

Group medical appointment — by invitation only

Oct. 27

When to change your MS treatment

For more information, contact the Schapiro Center for MS at 763-302-4199.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Face time with your local neurologist

University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month, 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave. #500 Maple Grove, MN 55369

Dr. Gareth Parry

Topics:

Aug. 9

MS research

Oct. 11

MS and fatigue

For more information, contact the University of Minnesota MS Center at 612-626-2675.

Noran Neurological Clinic Every other month, 1-3 p.m. Minneapolis Clinic, 2828 Chicago Ave. S., Suite 330, Minneapolis, MN 55407 Topics: Aug. 3

Maintaining and maximizing a healthy lifestyle with MS

Call 612-879-1500 to register.

National Multiple Sclerosis Society, Minnesota Chapter

What’s online? We Keep Moving.

Week four of We Keep Moving took the team to South Euclid, Ohio, where they met Dale Edberg, an MS research and former Minnesota Chapter volunteer.

Moving forward is what life is all about. We Keep Moving is a website for people affected by multiple sclerosis that showcases unique stories about what it means to live with MS, journeys of overcoming the obstacles and how we each keep moving in our own way.

Watch the journey Visit WeKeepMoving.org to watch the videos, check out photos and even connect with the production team.

The journey WeKeepMoving.org documents a 10-week journey across the U.S. where a team of three people living with MS — including a host, producer and photographer — captured the stories of 10 amazing individuals about how they keep moving regardless of MS. Each week, three different story summaries were presented for public voting, and votes were tallied to determine where the team went the following week.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group

Majestic Shores Resort water exercise Attendees of Majestic Shores Resort, held this past May, had the opportunity to exercise in a fun and relaxing way as part of the water exercise activity.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.

WATER EXERCISE Albert Lea

Burnsville

Detroit Lakes

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

Alexandria

Coon Rapids

Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W, 4:30-5:30 p.m. T/R, 9-10 a.m.

Emma B. Howe Northtown YMCA Trin Peterson, 763-717-1837 T/R, 11 a.m.-noon

Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.

National Multiple Sclerosis Society, Minnesota Chapter

Eden Prairie

Perham

Eden Prairie

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

St. Cloud

Kingsley Commons Jeannie Zank, 612-335-7939 F, 10:30 a.m.

Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.

Inver Grove Heights

Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.

St. Paul Jewish Community Center Robin Feickert, 651-255-4762 T/R, 9:45-10:25

The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options

Stillwater

Mankato

Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m. Mankato Community Education and Recreation East High School pool 507-387-5501 M, 6:30-7:30 (staring Sept. 20)

Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.

New Hope Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.-noon

Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 T/R 11:15-noon.

Minneapolis

Uptown YWCA Lisa First, 612-822-3504 F, Noon

New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S 9:30-10:30 a.m.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Featured group

Clubs and groups

Moms with young children

Join an MS club or group to connect with other people

“Our group get-togethers are laid back, ‘mom’s night’ out occasions. While enjoying dinner, dessert or just sipping tea, we chat about MS issues, our families, parenting and what it’s like to be a mom to little ones while also dealing with MS.” Jennifer Stewart and — Andrea Viera, group leaders

affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org

BOOK CLUBS

Maple Grove

Minneapolis

Apple Valley

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Mahtomedi

Rochester

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna, 651-762-4084

Fourth Tuesday of the month 7 p.m., Barnes & Noble Apache Mall Larry, 507-281-2447

First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

Duluth Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

National Multiple Sclerosis Society, Minnesota Chapter

Roseville

Burnsville/Apple Valley

Perham Care Partners

First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Kathy, 651-698-4732

Third Thursday of the month Noon, Perkins Restaurant, Apple Valley

Last Tuesday of the month 1 p.m., Calvary Lutheran Church

LiveFIT — Exercise discussion groups

Forest Lake Area

Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall

For details, call Tom at 507-208-0397

Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

Duluth

Grand Rapids

Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

Second Thursday of the month 12:30 p.m., restaurant varies Sally, 218-326-1371

Minneapolis

GROUPS

Third Saturday of the month 10 a.m., Chapter office

For 20s and 30s

Rochester Fourth Saturday of the month 10 a.m., Rochester Athletic Club

Nutrition clubs

Faribault MS Connections Third Saturday of the month 9:30 a.m., Buckham Memorial Library

KC Nutrition Club

For artists, crafters, and writers with MS

Fourth Saturday of the month 1:30 p.m., Kingsley Commons

MS Art & Crafts Interest Group

Social gatherings

Third Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville

Alexandria Fourth Monday coffee social 10:30 a.m., Daily Grind House of Java

Arrowhead region Meeting monthly at regional restaurant Contact Mary for details at 218-827-8327 No meetings November – March

For care partners Bemidji Care Partners Third Saturday of the month 10 a.m., North Country Regional Hospital

Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville

St. Louis Park Care Partners

Women Care Partners Third Saturday of the month Dorothy Ann Bakery & Café, Woodbury

For couples Stillwater Couples Second Saturday of the month Noon, Courage St. Croix, Stillwater

For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul

For men Men’s Group First & third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater

Metro Area It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m., different restaurant each month Rick, 612-791-6473 or rleaf@msnet.org

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

For moms with young children

For women

Bloomington

Moms with Young Children

Maplewood Women’s Peer Support Group

First Monday of the month 6:30 p.m., Patrick’s Bakery & Café

Second Thursday of the month 12:30 p.m., Gustavus Adolphus Lutheran Church

First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July

For people of color

General self-help groups

Metro MS Group for People of Color

Aitkin

Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis

For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie

For professionals Let’s Lunch: Professionals Living with MS Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul

For people recently to five years diagnosed South Metro Recently to 5 Years Diagnosed Last Wednesday of the month 6:30 p.m., Jo Jo’s Rise & Wine

First Wednesday of the month 7 p.m., Third Monday of the month 1 p.m., Hope Drop-In Center

Buffalo Third Monday of the month Noon, United Methodist Church

Burnsville/Apple Valley First Tuesday of the month 6:30 p.m., Fairview Education Center, Burnsville

Albert Lea

Cambridge

Second Monday of the month 1:30 p.m. December – February 7 p.m. March – November Grace Lutheran Church

Third Thursday of the month 7 p.m., Cambridge Medical Center

Canby

Alexandria

Second Thursday every other month, April – December 4 p.m., Sanford Canby Medical Center

Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings December – March

Austin First Monday of the month 6:30 p.m., Grace Lutheran Church

Belview Third Thursday of the month 7:30 p.m., Parkview Home No meetings November – February

Bemidji

Chaska Third Tuesday of the month 12:30 p.m., Chaska Library

Coon Rapids North Suburban Second Wednesday of the month 7 p.m., Coon Rapids City Center

Detroit Lakes Second Monday of the month 6 p.m., Lincoln Park Assisted Living

Third Saturday of the month 10 a.m., North Country Regional Hospital

National Multiple Sclerosis Society, Minnesota Chapter

Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church

Excelsior/Minnetonka Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group building in Excelsior

Fergus Falls Second Wednesday of the month 11:30 a.m., United Church of Christ

Forest Lake Area Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living

Gaylord First Sunday of the month 7 p.m., Forever Young Senior Center

Hibbing Last Thursday of the month 1 p.m., Open Door Church

Hutchinson Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Inver Grove Heights/ West St. Paul First Monday of the month 5:30 p.m., Perkin’s Restaurant in IGH No meetings December February

Lake Elmo Second Wednesday of the month Noon, Christ Lutheran Church

Litchfield Fourth Tuesday of the month 3 p.m., Meeker County Memorial Hospital

Little Falls/Pierz First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls

Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services

Mankato Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Maple Grove Second Saturday of the month 10 a.m., St. Joseph the Worker Church

Minneapolis Last Saturday of the month 10 a.m., Kingsley Commons

New Prague

Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital

New Richmond Second Thursday of the month 6 p.m., First Lutheran Church

New Ulm Third Tuesday of the month 7 p.m., Oak Hills Living Center

Oakdale First Saturday of the month 10:30 a.m., Oakdale Library

Park Rapids Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

Roseville Second Wednesday of the month 6:45 p.m., The Fire Station One (Group also meets socially at local restaurant at 6:45 p.m. the fourth Wednesday of the month) Robin, 651-647-0809

St. Anthony/New Brighton phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church in New Brighton

Third Wednesday of the month 6 p.m., Courage Center

7 p.m., Bethesda Pleasant View Nursing Home

Staples

Superior Second Tuesday of the month 6 p.m., Superior Public Library

Windom/Cottonwood County

Second Thursday of the month 4 p.m., Lakewood Care Center No meetings June – August

Thief River Falls

St. Cloud

Third Saturday of the month 4 p.m., Riverside Terrace

Second Wednesday of the month 7 p.m., St. Cloud Public Library

Waseca

St. Paul Care to Share Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429 (to verify location)

Stillwater

Third Tuesday of the month 7 p.m., Waseca Medical Center

Wayzata/Plymouth First Thursday of the month 1 p.m., Original Pancake House, Wayzata

Third Tuesday of the month 7 p.m., ALC Lutheran Church

Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

Willmar First Tuesday of the month

Additional resources Clubs and groups For more information about book clubs and groups, visit MSsociety.org. Click on “Programs and Services,” and then “Clubs and Groups.” If you would like more information or are interested in starting a book club or group in your area, contact Jeff Fisher at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org.

Do you know a company that could support the MS Society? The Minnesota Chapter recently received a generous grant from the UCare Fund to support chapter programs promoting healthy living — like the exercise programs listed on pages 28 and 29. Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri Cannon at 612-335-7925 or tcannon@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter

Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Camps Majestic Shores Resort Jeannie, 612-335-7939 Youth Camp Steve, 612-335-7974 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Education programs Steve, 612-335-7974

Calling from Greater Minnesota? Call 800-582-5296.

Emergency assistance Heather, Jill or Sarah, 612-335-7900 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Family programs Steve, 612-335-7974 Giving to the MS Society Shannon, 612-335-7928 Lindsay, 612-335-7976 Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967

Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Megan (Programs), 612-335-7955 Will (Events), 612-335-7992 Walk MS, Bike MS, run and motorsport events Cortney, 612-335-7971 Youth and teen programs Steve, 612-335-7974

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

We’re here for you. If you’ve recently been diagnosed with multiple sclerosis, you probably have a lot of questions. Or maybe you aren’t quite sure what questions to ask. Whatever the case, there’s a friendly voice on the line waiting for your call.

Call us today. Call the MS Society to set up a newly diagnosed consultation (see page 9 for details). Whether you prefer to chat over the phone or in person, we’ll work with your schedule. To arrange your consultation, call Heather, Sarah or Jill at 612-335-7900.

Make a lasting mark. There’s a simple, fulfilling way to make a lasting mark on the movement to end multiple sclerosis. Make a bequest, retirement plan or life insurance gift or a charitable gift annuity benefiting the National MS Society, and you’ll be welcomed into the Lawry Circle — a group of people dedicated to a world free of MS.

JOIN THE MOVEMENT To learn more, contact Shannon Wolkerstorfer at 612-335-7928 or swolkerstorfer@MSsociety.org.