Programs
Fall 2010
CONNECTION
MS Annual Convention Jan. 22, 2011
Care Partner Appreciation Dinner Celebrate National Caregivers Month in November.
Plus “Above the 37th Parallel,” a play about MS 20s and 30s snow tubing event Living Well with MS and much, much more
JOIN THE MOVEMENT®
MOVING IS WHO WE ARE “Many versions. One vision. A world free of MS.” Multiple sclerosis is an unpredictable disease that affects no two people in exactly the same way. Each person touched by the disease has his or her own unique Megan Sparks, Director story and shares our vision of a world free of Professional Outreach of MS. The MS Annual Convention is and Education a time to gather as a diverse and united community of passionate individuals to raise awareness; learn and educate people in our communities; engage others in the movement to end the disease; and provide hope and support to people living with MS, including caregivers, families and friends. Each person’s story of their vision of a world free of MS has the potential to foster relationships and inspire movement, which is why this year’s MS Annual Convention — Jan. 22, 2011, at the Hyatt Regency Hotel Minneapolis — will highlight the many answers to the question, “What does a world free of MS look like to you?” Join the Movement® at this year’s MS Annual Convention. Connect with others, share stories and learn how we are moving toward a world free of MS together. Hear internationally acclaimed MS expert Dr. Randall Schapiro discuss the latest achievements and future directions in MS care and visit the vendor exhibition area for tips and resources. Plus, attend the Minnesota Chapter’s annual meeting to review the progress we’ve made and what’s in store for the year ahead. To learn more, see page 9, visit MSsociety.org or contact Megan at 612-335-7955 or msparks@MSsociety.org.
Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Maggie Flanagan MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Holly Anderson To obtain an audio tape of Programs Connection, call Kari at 612-335-7968.
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Programs by topic
Teens and young adults
Join the Movement®
Teen connection meeting 20s and 30s social outing
Voting basics “Above the 37th Parallel” Care Partner Appreciation Dinner MS Annual Convention Teen connection meeting
5 6 7-8 9 11
Managing MS Connect locally 14 Face time with your local neurologist 15-16 What’s new in MS 17 Living well with MS 18-19 Living with multiple sclerosis 20 Take a closer look at multiple sclerosis 21 Exercise 12, 24-25
Money matters Personal financial counseling
29
Recreation, socializing and connecting Care Partner Appreciation Dinner MS Annual Convention Teen connection meeting 20s and 30s social outing Connect locally Clubs and groups
7-8 9 11 13 14 24-28
Research Face time with your local neurologist What’s new in MS
15-16 17
11 13
Programs by location Austin Connect locally
14
Byron Living with multiple sclerosis
20
Duluth Face time with your MS nurse
15
East Grand Forks Take a closer look at multiple sclerosis
21
Hallock Take a closer look at multiple sclerosis
21
Hutchinson Connect locally
14
Twin Cities Care Partner Appreciation Dinner MS Annual Convention Teen connection meeting Connect locally Face time with your local neurologist What’s new in MS Living well with MS
7-8 9 11 14 15-16 17 18-19
Scandia 20s and 30s social outing
13
Technology What’s online?
30
JOIN THE MOVEMENT®
Care partners need care, too November is National Family Caregivers Month. The Minnesota Chapter honors all who provide care for people with MS. The MS Society has not only served my wife, Alicia, with direct services and support, the society has also been sort of a “caregiver” to me, the care partner. Over the last 25 years, using the MS Society as a resource has Tim Blank followed the same up-anddown path as Alicia’s journey with her MS. My first connections with the MS Society were critically important. Because of an early referral by Alicia’s physician, I was able to obtain reliable and comprehensive information from the MS Society through newly diagnosed education seminars and a variety of materials. Information is a source of security for me, and the MS Society has consistently been the main provider of that information. The MS Society has also been the source of significant personal growth for me. Through education seminars, care partner groups, couples getaways, social services and referrals to professional advisors, I have met hundreds of people and established dozens of lifelong relationships. It is as if there is an added and special dimension to my life that I would have
4
missed had I not made these connections. I am confident the MS Society has stretched my capacity for empathy, support and understanding, especially for families who face the daily challenges of chronic disease.
When care partners need a break Caring for someone with MS can be deeply satisfying, but also can be physically and emotionally exhausting. Respite — temporary relief for family care partners — is an important family preservation and support service. The Minnesota Chapter provides care partner relief grants (up to $1,500 per year) to help cover the cost of home care or a temporary stay in a skilled facility so care partners can take a needed break. For more information, please contact Scott at 612-335-7900 or sahlgren@MSsociety.org.
Get involved Check out the upcoming Care Partner Appreciation Dinner on page 7.
National Multiple Sclerosis Society, Minnesota Chapter
Voting basics Looking for an easy way to get involved in activism? Vote!
“If we don’t speak with the voice we have, no one will hear us.”
Kris Peterson Diagnosed in 2003. Bike MS participant and activist.
Questions about voting? We can answer them! What counts as “proof of residence” if I want to register on election day? Proof of residence includes a photo ID with your current name and address. If your photo ID doesn’t have a current address, you also must bring a utility bill due within 30 days of election day, such as a telephone or cell phone, cable, Internet, electric, gas or water bill. I need transportation to the polls. What can I do? Some cities have services to give people rides to the polls. If you are in the metro area, call 877-50-RIDES to schedule transportation. What if I’m going to be out of town Nov. 2? Absentee voting is available if you can’t make it to the polls on election day. You can vote absentee by mail or in person at your county auditor’s office. Visit the Secretary of State website at sos.state.mn.us or contact your county auditor for information about obtaining forms.
I require assistance at the polls. Will there be someone to help me? Yes, election judges are available to help. You can ask for the ballot to be brought to you in your car. Two election judges from different political parties will bring the voting materials out and assist you. What’s AutoMARK? Every polling place will have an AutoMARK ballot marking device to assist voters who are blind or have limited vision. The device allows voters with disabilities to vote independently and privately by providing various accessibility options for marking their ballot.
Questions? Visit sos.state.mn.us for information about polling places, candidates and more. If you have questions or would like to reach out to voters in your area, contact Jenna at 612-335-7981 or jwashnieski@MSsociety.org.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
5
“Above the 37th Parallel” A one-woman play about living with MS.
Oct. 30 and 31 n Minneapolis “Above the 37th Parallel” is a one-woman play written by Nancy J. Jones about humor, humility and strength of spirit while living with multiple sclerosis for 20 years. This entertaining program, starring Sherman Fracher and directed by Drew Fracher, brings people together to raise awareness and funds to end MS. Jones was diagnosed with relapsing-remitting MS in 1989 at age 34. She currently has secondary progressive MS and lives in Cincinnati with her husband. She was inspired by her former neurologist Istvan Pirko, currently at the Mayo Clinic, which is why she brings her play to Minnesota for its regional premier. Proceeds benefit the Minnesota Chapter.
Please join us: Saturday, Oct. 30 5:30 p.m. VIP dinner: $100 (includes show and dessert) 7 p.m. Show and dessert only: $30
Limited scholarships are available on a first-come, first-served basis for people with MS. For more information or to purchase tickets, contact Cortney at 612-335-7971 or cdahl@MSsociety.org.
Made possible with an educational grant from
Sunday, Oct. 31 1 p.m. Meet and eat: $50 2 p.m. Show and dessert only: $30 Featuring food by Three Sons Signature Cuisine St. Anthony Main Event Centre 219 SE Main St., Minneapolis 6
National Multiple Sclerosis Society, Minnesota Chapter
Care Partner Appreciation Dinner November is National Family Caregivers Month.
Nov. 6 n Minneapolis In honor of National Family Caregivers Month, the Minnesota Chapter hosts the Care Partner Appreciation Dinner to recognize, thank and celebrate those in loving, supportive relationships with a person living with multiple sclerosis. National Family Caregivers Month is nationally recognized and seeks to draw attention to the many challenges facing family care partners, advocate for stronger public policy to address family caregiving issues and raise awareness about community programs that support family care partners. It’s also an occasion to celebrate the caring people in our lives. The Minnesota Chapter invites all people with MS to bring your caring partner, family or friend to enjoy an evening of dining, music and entertainment!
“For more than 32 years, she has put up with my multiple sclerosis and me. Through good and bad times, she has remained a constant beacon of joy and hope. I could not wish for more or for anyone better.” — Michael M.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
7
Care Partner Appreciation Dinner Space is limited. Registration form must be received by Oct. 29. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
MNM0CCGW20101106MPL
8
Saturday, Nov. 6
5:30–8:30 p.m.
5:30-6:30 p.m. Check-in and welcome reception with cash bar 6:30-8:30 p.m. Dinner, music and entertainment
Location Radisson Plaza Hotel 35 Seventh St. S. Minneapolis, MN 55402
Program fee There is no fee for this program.
Register Online or by phone Visit MSsociety.org or call 612-335-7900. By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Jeff at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org.
MS Annual Convention What does a world free of MS look like to you?
Jan. 22 n Minneapolis
About the speaker
Join the Movement® at the MS Annual Convention, Jan. 22, 2011. Connect with others, share stories and learn how we are moving toward a world free of multiple sclerosis. Hear internationally acclaimed MS expert Dr. Randall Schapiro discuss the latest achievements and future direction in MS care and visit the vendor exhibition area for tips and resources. Plus, attend the Minnesota Chapter’s annual meeting to review the progress we’ve made and what’s in store for the year ahead.
Dr. Randall Schapiro is the founder and former director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology and the Fairview MS Achievement Center.
Who should attend: n
People with MS
n
Care partners (family members and friends in caring roles)
n
National MS Society, Minnesota Chapter Board of Trustees
n
Health care professionals
n
Corporate partners
n
Donors
n
Volunteers
n
Event participants and team captains
n
Young people who have a close relative with MS
Dr. Randall Schapiro
Before his retirement in 2009, Schapiro served on the National MS Society, Minnesota Chapter’s Board of Trustees and Clinical Advisory Committee. In addition, he was chairman of the National MS Society’s Professional Advisory Committee for more than 20 years. Schapiro is certified by the American Board of Psychiatry and Neurology and the American Society of Neurorehabilitation and is a member of the National and International Medical Advisory Boards. He continues to lecture to professional and community groups about MS all over the world.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
9
MS Annual Convention Space is limited. Registration form must be received by Jan. 14. Register online at MSsociety.org. Please print ID# (from mailing panel) ________
Saturday, Jan. 22 1-3 p.m. 2:30 p.m. 3:30 p.m.
Exhibit hall MS update — My MS-free world, Dr. Randall Schapiro National MS Society, Minnesota Chapter annual meeting, Michael Schrock, Board of Trustees chair
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Location
_____ # of people attending
There is no fee for this program.
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
Register
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
MNM0CAME20110122MPL
10
1–4 p.m.
Hyatt Regency Minneapolis 1300 Nicollet Mall Minneapolis, MN 55403 612-370-1234 minneapolis.hyatt.com
Program fee
Online or by phone Visit MSsociety.org or call 612-335-7900. By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, visit MSsociety.org or contact Megan at 612-335-7955 or msparks@MSsociety.org.
Teen connection meeting Teens coming together to share, plan and have fun!
Jan. 22 n Minneapolis The Minnesota Chapter provides programs for young people who have multiple sclerosis or who have family members living with MS that bring them together for fun and leadership opportunities. This includes programs like MS Youth Camp and social outings, as well as Teen Council, Teen Crew and Team of the Future. Join other teens who want to connect, share and plan these types of programs for next year, and learn more about how we are moving toward a world free of MS together. This program runs during the Minnesota Chapter’s MS Annual Convention, offering parents the convenience of dropping their teens off at the chapter office, attending the convention and picking them up afterward.
Join us! Jan. 22, 2011 n 1-5 p.m. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415 To attend, contact Bethany at 612-335-7954 or bhansen@MSsociety.org.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
11
Exercise programs Help us expand our MS exercise programs.
Do you want an MS exercise program in your community? Do you work at a fitness facility or know someone who does?
The Minnesota Chapter works with community wellness facilities to offer exercise programs for people with multiple sclerosis. There is growing evidence that participation in an exercise program helps manage many MS symptoms, in addition to improving overall health and well-being.
The Minnesota Chapter is reaching out to communities across the state to make exercise programs available for more people with MS. The chapter provides training programs for water exercise instructors and facility guidelines for starting and maintaining the programs.
The Minnesota Chapter provides more than 25 exercise programs, including: n
water exercise;
n
yoga;
n
Tai chi; and
n
group exercise.
If you have questions or are interested in starting an exercise program in your community, contact Jeannie, CTRS, at 612-335-7939, 800-582-5296 or jzank@MSsociety.org. Jeannie Zank, Therapeutic Recreation Coordinator
12
To see a list of current MS exercise programs, check out page 22.
National Multiple Sclerosis Society, Minnesota Chapter
20s and 30s social outing Snow tube with other young adults living with MS at Eko Backen.
Dec. 11 n Scandia Meet, eat and connect with other young adults at this social outing created for people with multiple sclerosis in their 20s and 30s. Located at Eko Backen in Scandia, Minn., this program offers a chance to enjoy snow tubing and lunch while connecting with others who understand the challenges of an MS diagnosis. There are hill options for all abilities: expert, intermediate and bunny hill beginner. Two rope tows make going up the hill nearly as fast as going down! There is no cost to attend this program, and food and beverages are provided. Spouses, significant others and children are welcome. Lunch includes a taco and nacho bar buffet. Juice, water, hot chocolate and coffee are also provided. Sponsored by
Join us: Saturday, Dec. 11, 11 a.m.-2 p.m. (noon-1 p.m. buffet lunch) Eko Backen 22570 Manning Trail Scandia, MN 55073 Attendees must register by Dec. 3. To register, contact Jill at 612-335-7938 or jparkinson@MSsociety.org.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
13
Connect locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS. Who? Why? How? Searching for the cause of MS Austin n Nov. 1, 6:30 p.m. Grace Lutheran Church, 2001 Sixth Ave. SE, Austin, MN 55912 This newly released DVD features discussions with leading medical researchers on possible causes of MS, such as immunologic, environmental, infectious and genetic factors, as well as the
possible link between chronic cerebrospinal venous insufficiency (CCSVI) and MS. To RSVP, contact Larry at 507-285-3918 or larrym@semcil.org.
Face time with an MS Society social worker: Insurance and Medicare Part D Bloomington n Nov. 4, 7 p.m. Nativity of Mary Church, Caritas Room, 9900 Lyndale Ave. S., Bloomington, MN 55420
St. Paul n Nov. 10, 7 p.m. Macalester Plymouth Church, 1658 Lincoln Ave., St. Paul, MN 55105 Sarah Danen, LICSW, Minnesota Chapter director of client services, will facilitate group discussion on health insurance and Medicare Part D. Bring your questions and be ready to share your insurance-related experiences. To RSVP for the Bloomington program,
contact Michelle at 952-831-5635 or mhargesheimer@yahoo.com or Carol at 952-884-2747 or theroths@usfamily.net. To RSVP for the St. Paul program, contact Mary at 651-644-1429 or Beth at 612-825-7990 or bajensen@usiwireless.com.
Harnessed walking and exercise with MS Hutchinson n Dec. 13, 6:45 p.m. Christ the King Lutheran, 1040 S. Grade Road SW, Hutchinson, MN 55350 Harnessed walking may help people with MS improve balance and walking. Attend this program featuring physical therapist Megan Frost. 14
To RSVP, contact Ann at 320-894-7896 or annlha@yahoo.com.
National Multiple Sclerosis Society, Minnesota Chapter
Face time with your local neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Highway 55, Golden Valley, MN 55422, 763-591-4700 Topics: Oct. 20 Cognition and MS: Definition, evaluation and treatment
Nov. 10 Research update from ECTRIMS
Jan. 12
MRI: What is it? What it is not.
Dr. Gary Birnbaum RSVP to 763-302-8282, ext. 4823.
Face time with your MS nurse at the St. Mary’s Duluth Clinic MS Center Join Missy Rosin, MS-certified nurse 6 p.m. Meet and greet and dinner, 6:30-7:30 p.m. Speaker and program Radisson Hotel Duluth, Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981 Topics: Aug. 25 Sexual health; Jackie Higgins, NP, Minneapolis Clinic of Neurology
Sept. 29 MS: What it’s doing to you and what you can do about it
Oct. 27 Questions for your neurologist and MS nurse
Nov. 17 MS: What it’s doing to you and what you can do about it
Dec. 8
Holiday party
For more information, call 218-786-3925.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
15
Face time with your local neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750
Dr. Jonathan Calkwood
Topics:
Oct. 27 When to change your MS treatment
Nov. 3
Nov. 10 Energy saving tips to prepare for the holidays
Nov. 17 Group medical appointment — by invitation only
Research update
Dec. 1
Understanding the role of MRI (noon holiday lunch sponsored by Teva Neuroscience)
Dec. 8
Dental issues in MS
Dec. 15 Group medical appointment — by invitation only
Dec. 22 No program
Dec. 29 No program
Jan. 5
The immune system in MS
Jan. 12
Sleep issues in MS
Jan. 19
Group medical appointment — by invitation only
Jan. 26
Understanding your health insurance
For more information, contact the Schapiro Center for MS at 763-302-4199.
University of Minnesota MS Center Join Dr. Gareth Parry Every other month, 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave., #500 Maple Grove, MN 55369 Topics:
Jan. 10
Adherence in MS therapies
For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry 16
National Multiple Sclerosis Society, Minnesota Chapter
What’s new in MS? Symptom management and research.
Details about this program are provided for your information. This program is not produced by the National MS Society.
Nov. 13 n St. Louis Park The Metropolitan 5418 Wayzata Blvd. St. Louis Park, MN 55416 n
Registration and breakfast: 8:30 a.m.
n
MS symptom management: 9-10 a.m.
n
MS research update: 10:15-11:15 a.m.
Featured speaker Dr. Gary Birnbaum is director of the MS Treatment and Research Center at the Minneapolis Clinic of Neurology in Golden Valley, Minn. He is a Dr. Gary Birnbaum member of the National MS Society’s Medical Advisory Board and Clinical Care Committee. He also serves on the Minnesota Chapter’s Board of Trustees and Clinical Advisory Committee and is a research advocate.
Join us! To register for this program, call 800-292-6204.
Made possible with financial support from
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
17
Living well with MS Your quality of life counts.
Details about this program are provided for your information. This program is not produced by the National MS Society.
®
MS ActiveSource is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. © 2009 Biogen Idec. All rights reserved
Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.
Nov. 4 n Brooklyn Park Northland Inn 7025 Northland Drive Brooklyn Park, MN 55428 n
Registration: 6:30-7 p.m.
n
Program: 7-9 p.m.
Nov. 6 n Bloomington Mall of American: Great Room Located in Nickelodeon Universe 60 E. Broadway Bloomington, MN 55425
18
n
Registration: 11 a.m.–noon
n
Program: Noon-2 p.m.
National Multiple Sclerosis Society, Minnesota Chapter
Nov. 4 n Brooklyn Park Dr. Jonathan Calkwood Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.
Jacqueline Higgins, FNP, BC Jacqueline Higgins is a nurse practitioner at the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.
Nov. 6 n Bloomington Dr. Robert Jacoby Dr. Robert Jacoby is an adult neurologist at the Noran Neurological Clinic in Minneapolis.
Dodie Russell Dodie Russell, ARNP, is a nurse practitioner at the Noran Neurological Clinic in St. Paul, Minn.
Join us! To register for these free programs, call 866-955-9999 or register online at MSActivesource.com and click on the “Events” button.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
19
Living with multiple sclerosis Fulfilling your dreams.
Featured speakers Dr. B. Mark Keegan is a neurologist and section head for multiple sclerosis at Mayo Clinic in Rochester, Minn. Keegan is certified by the American Board of Dr. B. Mark Psychiatry and Neurology Keegan and is an assistant professor of neurology at the Mayo Graduate School of Medicine. Larissa Nusser is a motivational speaker, certified yoga instructor and certified life coach who lives with MS. She works with people living with MS on creating balance in their lives by incorporating yoga, laughter and coaching.
Join us! To register for this program, call 800-887-8100.
20
Details about this program are provided for your information. This program is not produced by the National MS Society.
Nov. 16 n Byron Learn more about trigeminal neuralgia and pain in MS and how to live your very best. The presentation includes a short yoga demonstration with audience participation. No experience, special skill or ability is required. The instructor is able to adapt the demonstration for participants who use a wheelchair or walker.
Details Registration: 5:30-6 p.m. Program and dinner: 6-8 p.m. Somerby Golf Club 975 Somerby Parkway NE Byron, MN 55920 Made possible with financial support from
National Multiple Sclerosis Society, Minnesota Chapter
Details about this program are provided for your information. This program is not produced by the National MS Society.
Take a closer look at multiple sclerosis
Understand n MS
and its symptoms
n The
role of the central nervous system in MS
n Current
Made possible with financial support from
therapies that treat MS
Featured speaker Roni Sperle, CFNP, CRNP, FNP, NP, RNP Roni Sperle is a nurse practitioner at Altru’s Multiple Sclerosis Specialty Clinic in Grand Forks, N.D. She is a graduate of the University of North Texas Health Science Center.
Nov. 4 n East Grand Forks, MN East Grand Forks Campbell Library 422 Fourth St. NW, East Grand Forks, MN 56721, 218-773-9121 n
Registration: 6-6:30 p.m. n Dinner and program: 6:30-7:30 p.m.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter meeting code BDP1010106.
Dec. 9 n Hallock, MN Caribou Grill 225 E. Broadway, Hallock, MN 56728, 218-843-3740 n
Registration: 6-6:30 p.m. n Dinner and program: 6:30-7:30 p.m.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter meeting code BDP1010109.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
21
Exercise Studies show exercise not only improves your overall health and well-being, but also can help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group
Coon Rapids YMCA water exercise The Coon Rapids YMCA invites you to join the MS water exercise class, which meets Tuesdays and Thursdays from 11 a.m. to noon. You do not need to be a YMCA member to participate.
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Maggie at mflanagan@MSsociety.org.
WATER EXERCISE Albert Lea
Burnsville
Detroit Lakes
Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.
Minnesota Valley YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
Alexandria
Coon Rapids
Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W, 4:30-5:30 p.m. T/R, 9-10 a.m.
Emma B. Howe Northtown YMCA Trin Peterson, 763-717-1837 T/R, 11 a.m.-noon
22
Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m. Water exercise F, 10-11 a.m.
National Multiple Sclerosis Society, Minnesota Chapter
Eden Prairie
Perham
Eden Prairie
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11-11:45 a.m.
Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.
St. Cloud
Kingsley Commons Jeannie Zank, 612-335-7939 F, 10:30 a.m.
Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.
Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.
Inver Grove Heights
Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.
St. Paul Jewish Community Center Robin Feickert, 651-255-4762 T/R, 9:45-10:25 a.m.
The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options
Stillwater
Mankato
Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.
Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m. East High School pool Mankato Community Education and Recreation, 507-387-5501 M, 6:30-7:30 p.m.
Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.
New Hope Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.-noon
Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Virginia
Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.
Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 T/R, 11:15 a.m.-noon.
Minneapolis
Uptown YWCA Lisa First, 612-822-3504 F, Noon
New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m.; R, 6:30-7:30 p.m.
GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S 9:30-10:30 a.m.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
23
Featured group
St. Cloud MS Group
Clubs and groups Join an MS club or group to
“Now meeting in the beautiful new public library, the St. Cloud group is inviting and very welcoming. Actively engaged in our community, we’re effectively reaching out and supporting people of all ages affected by MS and their families. In addition, we offer special informative educational programs several times throughout the year.”
connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org
Betsy Mahowald, Paulette Como — and Shirley Hoff, group leaders
CLUBS
Duluth
Mahtomedi
Book clubs
Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy 218-724-9075
Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Mary 651-488-1688
Maple Grove
Minneapolis
Fourth Monday of the month 10 a.m., Barnes & Noble Mary 763-420-4562
Third Wednesday of the month 7 p.m., Kingsley Commons Pat 612-521-4654
Apple Valley First Friday of the month 10 a.m., Barnes & Noble Cindy 952-891-5249
24
National Multiple Sclerosis Society, Minnesota Chapter
Roseville
Burnsville/Apple Valley
For care partners
First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr 651-646-4661
Third Thursday of the month Noon, Perkins Restaurant, Apple Valley
Bemidji Care Partners
Fitness clubs
Fourth Thursday of the month 6:30 p.m., restaurant varies Susan 651-464-1043
Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King
Minneapolis
Forest Lake area
Grand Rapids Second Thursday of the month 12:30 p.m., restaurant varies Sally 218-326-1371
Third Saturday of the month 10 a.m., North Country Regional Hospital
Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville
Perham Care Partners
GROUPS
Last Tuesday of the month 1 p.m., Calvary Lutheran Church
Rochester
New clubs & groups
St. Louis Park Care Partners
Fourth Saturday of the month 10 a.m., Rochester Athletic Club
GLAMS Twin Cities (for GLBT living with MS)
Nutrition club
Third Wednesday of the month 6:30 p.m., Wilde Roast Café, Minneapolis
Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall
Third Saturday of the month 10 a.m., chapter office
KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis
Social gatherings Alexandria Fourth Monday coffee social 10:30 a.m., Daily Grind House of Java
Arrowhead region Meeting monthly at regional restaurant Mary 218-827-8327 No meetings Nov. – March
For 20s and 30s Faribault MS Connections Third Saturday of the month 9:30 a.m., Buckham Memorial Library
For artists, crafters and writers with MS MS Art & Crafts Interest Group Third Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville
Women Care Partners Third Saturday of the month Dorothy Ann Bakery & Café, Woodbury
For couples Stillwater Couples Second Saturday of the month Noon, Courage St. Croix, Stillwater
For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
25
For men
For professionals
Austin
Men’s Group
Let’s Lunch: Professionals Living with MS
First Monday of the month 6:30 p.m., Grace Lutheran Church
Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul
Belview
First and third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater
Metro Area: It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m., restaurant varies Rick 612-791-6473 or rleaf@msnet.org
For people recently to five years diagnosed South Metro Recently to Five Years Diagnosed Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington
For moms with young children
For women
Moms with Young Children
Maplewood Women’s Peer Support Group
First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Minneapolis
For people of color Metro MS Group for People of Color Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis
For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie
26
Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov. – Feb.
Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital
Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July
Second Thursday of the month 12:30 p.m, Gustavus Adolphus Lutheran Church
Buffalo
General groups
Burnsville/Apple Valley
Aitkin
First Tuesday of the month 6:30 p.m., Fairview Education Center, Burnsville
First Wednesday of the month 7 p.m., and third Monday of the month, 1 p.m., Hope Drop-In Center
Albert Lea Second Monday of the month 1:30 p.m., Dec. – Feb. and March – Nov., 7 p.m., Grace Lutheran Church
Alexandria Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March
Third Monday of the month Noon, United Methodist Church
Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center
Canby Second Thursday every other Month, 4 p.m., April-Dec., Sanford Canby Medical Center
Chaska Third Tuesday of the month 12:30 p.m., Chaska Library
National Multiple Sclerosis Society, Minnesota Chapter
Coon Rapids North Suburban Second Wednesday of the month 7 p.m., Coon Rapids City Center
Detroit Lakes Second Monday of the month 6 p.m., Lincoln Park Assisted Living
Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church
Excelsior/Minnetonka Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior
Fergus Falls Second Wednesday of the month 11:30 a.m., United Church of Christ
Forest Lake area Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living
Gaylord First Sunday of the month 7 p.m., Forever Young Senior Center
Hibbing
Hutchinson
Minneapolis
Second Monday of the month 6:45 p.m., Christ the King Lutheran Church
Last Saturday of the month 10 a.m., Kingsley Commons
Inver Grove Heights/ West St. Paul
Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb.
First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec.–Feb.
New Prague
New Richmond
Lake Elmo
Second Thursday of the month 6 p.m., First Lutheran Church
Second Wednesday of the month Noon, Christ Lutheran Church
New Ulm
Litchfield Fourth Tuesday of the month 3 p.m., Meeker County Memorial Hospital
Little Falls/Pierz First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls
Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services
Mankato
Third Tuesday of the month 7 p.m., Oak Hills Living Center
Oakdale First Saturday of the month 10:30 a.m., Oakdale Library
Park Rapids Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services
Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church
Princeton
Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center
Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital
Maple Grove
Rochester
Second Saturday of the month 10 a.m., St. Joseph the Worker Church
Third Wednesday of the month 7 p.m., Meadow Lake Senior Living
Last Thursday of the month 1 p.m., Open Door Church
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
27
Roseville
St. Paul Care to Share
Wayzata/Plymouth
Second Wednesday of the month 6:45 p.m., The Fire Station One (Group also meets socially at a local restaurant at 6:45 p.m. the fourth Wednesday of the month) Robin 651-647-0809
Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn 651-644-1429
First Thursday of the month 1 p.m., Original Pancake House, Wayzata
Stillwater
First Tuesday of the month 7 p.m., Bethesda Pleasant View Nursing Home
St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton
Staples Second Thursday of the month 4 p.m., Lakewood Care Center No meetings June – Aug.
St. Cloud Second Wednesday of the month 7 p.m., St. Cloud Public Library
Third Wednesday of the month 6 p.m., Courage Center
Superior Second Tuesday of the month 6 p.m., Superior Public Library
Thief River Falls Third Saturday of the month 4 p.m., Riverside Terrace
Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center
Willmar
Windom/Cottonwood County Third Wednesday of the month 7 p.m., ALC Lutheran Church
Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church
Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury
Additional resources Clubs and groups For more information about book clubs and groups, visit MSsociety.org. Click on “Programs and Services” and then “Clubs and Groups.” If you would like more information or are interested in starting a book club or group in your area, contact Jeff at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org.
Do you know a company that could support the MS Society? The Minnesota Chapter recently received a generous grant from the UCare Fund to support chapter programs promoting healthy living — like the exercise programs listed on pages 22 and 23. Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri at 612-335-7925 or tcannon@MSsociety.org.
28
National Multiple Sclerosis Society, Minnesota Chapter
Personal financial counseling Free counseling sessions with financial experts to help you navigate the complex world of money. Financial planning can be an intimidating subject, but there are experts who can provide guidance and support. The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS.
If you are interested in financial counseling, contact Steve at 612-335-7974 or skorngable@MSsociety.org. Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.
Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this program. Individual counseling sessions are over the telephone and last less than one hour.
These free professional consultations may help you address a variety of financial topics, including: n basic
budgeting;
n savings
vehicles: pros and cons;
n insurance
analysis, claims assistance;
n investment
review and planning;
n employee
benefits analysis: medical plans, disability coverage and life insurance;
n retirement
planning: analysis and tax planning/effectiveness; and
n estate
planning: strategies to maximize inheritances.
Additional resources For information about financial and life planning, visit MSsociety.org (click on “Living with MS” and then “Insurance and Money Matters”).
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
29
What’s online? Online resources for family care partners. “We care” Web page The National Multiple Sclerosis Society, Minnesota Chapter website has reserved a special place for care partners of people with MS. “We care” Web pages offer information about upcoming programs and special resources just for care partners, personal stories of care partners in the chapter area and care partner news and updates. The Web page also includes a place for people with MS to publicly thank the care partners in their lives. To explore the “We care” page, visit MSsociety.org, click on “Programs” and then “Family, care partner and youth programs.”
National Family Caregivers Association Check out the National Family Caregivers Association website at thefamilycaregiver.org to learn tips and advice for care partners, connect with others who provide care for a loved one, get involved with care partners advocacy and much more. Plus, see how you can help celebrate National Family Caregivers Month this November.
Additional resources Be sure to check out these websites for family care partners, too. n caregiver.com n wellspouse.org n lotsahelpinghands.com n caringbridge.org
Visit thefamilycaregiver.org.
30
National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Ted, 612-335-7930
Emergency assistance Heather, Jill or Sarah, 612-335-7900
Camps Majestic Shores Resort Jeannie, 612-335-7939
Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967
Youth Camp Bethany, 612-335-7954 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Client education programs Steve, 612-335-7974
Calling from Greater Minnesota? Call 800-582-5296.
Exercise programs Jeannie, 612-335-7939 Family programs Bethany, 612-335-7954 Giving to the MS Society Shannon, 612-335-7928 Lindsay, 612-335-7976 Housing Steve, 612-335-7974 Independent living grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7900
Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for organizations Steve, 612-335-7974 Lending Library Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Megan, 612-335-7955 Volunteer opportunities Josh (Programs), 612-335-7984 Will (Events), 612-335-7992 Walk MS, Bike MS, run and motorsport events Cortney, 612-335-7971 Youth and teen programs Bethany, 612-335-7954
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
31
When care partners need a break Caring for someone with MS can be deeply satisfying, but also physically and emotionally exhausting. Respite — temporary relief for family care partners — is an important family preservation and support service.
We’re here to help. The Minnesota Chapter provides care partner relief grants to help cover the cost of home care or a temporary stay in a skilled facility so care partners can take a break. For more information, contact Scott at 612-335-7900, 800-582-5296 or sahlgren@MSsociety.org.
A Gift that pays
Did you know you can make a gift to support the work of the National MS Society, Minnesota Chapter that pays you a fixed amount for life? A charitable gift annuity may be a good option if you are nearing retirement. Join the Movement® in a powerful way. For more information, contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.
Michael, diagnosed in 2004