Programs Connection, Spring 2011

Page 1

Programs

Spring 2011

CONNECTION

Women’s Conference

Join other women with multiple sclerosis to learn, share and connect.

Youth Camp

Share a memorable week with youth affected by MS.

Plus Spring MS research symposium Upcoming 20s and 30s events Family Outing and much, much more

JOIN THE MOVEMENT®


MOVING IS WHO WE ARE Hello! My name is Bethany Hansen. I’m the newest director of programs at the National Multiple Sclerosis Society, Minnesota Chapter. I’m thrilled to be doing such important work alongside the wonderful Minnesota staff, volunteers and others dedicated to the movement to end MS. My primary focus is youth and family Bethany Hansen, Director of Programs programming, and I’m happy to announce several upcoming events for families, youth, people in their 20s and 30s, and care partners. Family program: Enjoy a “day at camp” at the 2011 Family Outing July 23, at Camp Singing Hills in Waterville, Minn. Spend time together and meet other families who are affected by MS. For more information, see page 19. Youth program: Youth Camp brings together youth grades four through 12 for a week of summertime fun, memory-making and personal growth. This year’s Youth Camp is at a beautiful new location and Minnesota Chapter staff and volunteers are hard at work planning a variety of activities so campers can make friends, challenge themselves, have fun and relax. See page 17 for more information. Client group outing: People in their 20s and 30s who have MS or have a close connection to MS will have the opportunity to connect with other young adults during a group outing at the Minnesota Zoo June 4, 2011. The chapter also regularly hosts happy hour socials for both 20s and 30s and care partner groups. I’m excited about these and other events we have planned for 2011. If you have questions or comments about the future of youth and family programs, please contact me at 612-335-7954 or bethany.hansen@nmss.org.

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Maggie Flanagan MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Holly Anderson

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.


Table of contents

Programs by topic Join the Movement® Build relationships, raise awareness “MS =” campaign Champions program

Recreation, socializing and connecting 6 29 41

Care partners Family Outing Care partner social

19 21

Managing MS Grieving lost dreams Research symposium, Moorhead Connect locally Face time with your local neurologist Finding the right MS treatment for you Treatment options Wisconsin MS Summit Aids for Daily Living Grant Exercise

9 15 23 25 27 30 32 33 34

Money matters Aids for Daily Living Grant

33

Women’s Conference Men’s Day St. Cloud day trip (baseball) Youth Camp Care partner social 20s and 30s social outing Connect locally Clubs and groups

7 11 13 17 21 22 23 36

Research Research symposium, Moorhead Face time with your local neurologist Wisconsin MS Summit

15 25 32

Technology What’s online

42

Young adults Youth Camp Family Outing 20s and 30s social outing

17 19 22

Programs are listed by location on page 4.

JOIN THE MOVEMENT®


Programs by location St. Cloud

Apple Valley 20s and 30s social outing Treatment options

22 30

Amery, WI Youth Camp

17

Bemidji Connect locally

23

Burnsville Connect locally

23

Duluth Connect locally

23

Fergus Falls Grieving lost dreams

9

Moorhead Research symposium

Women’s Conference Men’s Day Care partner social Connect locally Finding the right MS treatment for you Treatment options

7 11 21 23 27 30

Waseca Connect locally

23

Waterville 19

Willmar Connect locally

23

13

Twin Cities

Family Outing

Litchfield Connect locally

St. Cloud day trip (baseball)

23

Wisconsin Dells Wisconsin MS Summit

32

15

Perham Connect locally

4

23

National Multiple Sclerosis Society, Minnesota Chapter


Connect with other women at this year’s Women’s Conference “The Women’s Conference is a great way to meet other women and share common experiences. The conference is tailored to issues that affect women of all ages and with all different types of MS. I was able to network and share my story, hear others’ stories and have a fun girls’ day.” — Margit Whitam “The day included great speakers specifically talking about women’s issues we all want answers to, but are afraid to ask. There’s good food and fun door prizes, too! I love the connection we all share, and it’s nice to be reminded we are still women even though we have MS.” — Jeanine Leigh “Last year’s conference far exceeded my expectations. Featured speaker Dr. Usmanova presented us with a wealth of information only a female neurologist could deliver to an audience of women. Christopher & Banks® presented a beautifully refashioned and current style fashion show. Lunch was amazing, and the live music was the icing on the cake.” — Susan Stellmacher “I attended the 2010 Women’s Conference and frequently use something I learned from Tom Ellis. Tom explained grief and loss is more than the death of a loved one, and he asked the group what they missed as a result of MS challenges. A woman across the conference room yelled, “high heels!” and everyone laughed. I still use that analogy to explain to people what MS is and how it affects your day-to-day life.” — Jackie Kashmark

Learn more To learn more about the 2011 Women’s Conference and how to register, turn to page 7.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Build relationships, raise awareness Tips for meeting with your legislator: n

During summer and fall, legislators are done with session and back in their districts. This is an excellent time to speak with them.

n

Contact your legislator, identify yourself as a constituent and explain your involvement as a leader in your community for the National MS Society.

n

If you schedule a meeting, let the Minnesota Chapter know. We can provide materials and talking points that may be helpful.

Learn more Are you interested in learning more about talking to your legislator? Contact Jenna at 612-335-7981 or jenna.washnieski@nmss.org.

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In the busy world of e-mail, Facebook and texting, it can seem challenging to find time for a face-to-face conversation. However, the one-on-one work you do can have a huge impact — especially when it comes to educating people about multiple sclerosis. This year, the Minnesota Chapter reached out to people affected by MS statewide, and the primary thing we heard was that people with MS wished others could understand what it’s like to live with the disease. It’s incredibly important people with MS are that voice of awareness in their community. Colleen Sazama, facilitator of the Perham Tri-County MS Group, decided to reach out to her state legislators this winter. She invited Representative Mark Murdock and Senator Gretchen Hoffman to her group to hear from 26 people affected by MS. “We had a wonderful, positive response from our group and the community,” said Sazama. “We discussed the proposed budget cuts, our concerns on transportation in rural communities and the unique challenges we face with MS.” Meeting with legislators in your district is an excellent opportunity to share your story, educate them on issues that affect people with MS and also to listen to your legislator’s position on topics that are important to your community.

National Multiple Sclerosis Society, Minnesota Chapter


Women’s Conference Join other women living with MS for inspiration, socializing and fun.

May 14 n Vadnais Heights Take the day off from family, work and everyday life to join other women living with MS at the fifth annual Women’s Conference. Learn about and discuss the art of balancing work and family and ways to better manage living with MS. At the conference, Dr. Gareth Parry, neurologist and medical director of the University of Minnesota MS Center, will discuss women’s issues and provide the latest in MS research. Kate Wolfe-Jenson, an artist and author of “Dancing with Monsters,” will talk about her life with MS and the process of “chronic healing,” as well as introduce you to tools and practices that can help you lead a fuller life with MS. Thia Casanova will provide an opportunity to relax with yoga. Plus, enjoy a fashion show by Christopher & Banks®. Learn tips on accessorizing, what’s new for spring and summer and keeping a fresh, updated look on a budget. Conference participants will have time to socialize during lunch, and door prizes will be drawn at the end of the day.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Women’s Conference Space is limited. Registration form must be received by May 6. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

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Saturday, May 14 9:15–9:45 a.m. 9:45–9:50 a.m. 9:50–11 a.m. 11–11:15 a.m. 11:15 a.m. – 12:15 p.m. 12:15–1:30 p.m. 1:30–2:15 p.m. 2:15–2:30 p.m 2:30–3:15 p.m 3:15–3:30 p.m.

9:45 a.m. – 3:30 p.m. Check-in and continental breakfast Welcome Women’s issues and MS research, Dr. Gareth Parry Break Fashion ideas, Christopher & Banks® Lunch and social time Dancing with Monsters, Kate Wolfe-Jenson Break Yoga, Thia Casanova Wrap-up and door prizes

Location Jimmy’s Conference Center 3565 Labore Road (off County Road E.) Vadnais Heights, MN 55110 651-482-1233

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900. By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415


Grieving lost dreams Welcoming new ones.

May 21 n Fergus Falls Join other people affected by multiple sclerosis to learn about strategies for facing challenges of the disease and much more. This unique program also offers afternoon breakout sessions addressing the needs of care partners as well as men and women living with MS.

General session Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.”

Breakout sessions Join Ellis for an engaging, interactive discussion with other care partners, whether you are a spouse, partner, family member or friend of someone with MS. Discuss common issues for women living with MS with Dr. Yelena Usmanova, neurologist at the Minneapolis Clinic of Neurology. Men will be joined by Greg Bjorklund, P.A.-C., at the Sanford Clinic Neuroscience in Fargo, Minn. Thomas M. Ellis

Dr. Yelena Usmanova

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Greg Bjorklund

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Grieving lost dreams. Welcoming new ones. Space is limited. Registration form must be received by May 13. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEOW20110521FER

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Saturday, May 21 9:30–10 a.m. 10–noon Noon–12:45 p.m. 12:45–2 p.m.

9:30 a.m. – 2:30 p.m.

Check-in General session: Grieving lost dreams. Welcoming new ones. Lunch Breakout sessions:

n Care partners, Tom Ellis n Women’s issues, Dr. Yelena Usmanova n Men’s issues, Greg Bjorklund, P.A.-C.

Location Bigwood Event Center 925 Western Ave. Fergus Falls, MN 56537 218-739-2211

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900. By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415


Men’s Day Spend time with the guys.

June 4 n Plymouth Men living with multiple sclerosis face unique challenges that affect them differently than women. MS also can challenge traditional male roles and support networks. Join other men who understand what it’s like to live with MS at this one-day program featuring a combination of indoor and outdoor activities. The program — held at French Regional Park in Plymouth, Minn. — provides an opportunity to connect with other men, learn and have a lot of fun at the same time.

Choose from a number of outdoor activities, including: n fishing; n canoeing n archery;

and kayaking;

and

n geocaching.

(All activity equipment is provided.) Participants are eligible for three door prizes at the end of the day!

In the morning, be inspired by Kate Wolfe-Jenson, artist and author of “Dancing with Monsters,” who will talk about her life with MS and chronic healing, and introduce you to tools and practices that can help you lead a fuller life with MS.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Men’s Day Space is limited. Registration form must be received by May 27. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEDW20110604PLY

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Saturday, June 4 8:30–9 a.m. 9–9:10 a.m. 9:10–10:15 a.m. 10:15–10:30 a.m. 10:30 a.m. – 12:30 p.m. 12:30–1:30 p.m. 1:30–3:30 p.m. 3:30–4:15 p.m.

9 a.m. – 4:15 p.m. Check-in and coffee, juice Welcome “Dancing with Monsters,” Kate Wolfe-Jenson Break Morning outdoor activity Lunch and social time Afternoon outdoor activity Wrap-up and door prizes

Location French Regional Park 12605 County Road 9 Plymouth, MN 55441 763-694-7750

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900. By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415


St. Cloud day trip See the St. Cloud River Bats at Joe Faber Field for an evening of fun and baseball.

June 28 n St. Cloud Join other people affected by multiple sclerosis to see the St. Cloud River Bats take on the Duluth Huskies. Enjoy exclusive seating in “Your Home Improvement Company Lodge,” located above the first base dugout, along with food, soft drinks and $1 beers throughout the game. The River Bats play in the Northwoods League, a summer baseball league of top college players from North America and beyond. The league has more teams, draws more fans and plays more games than any other summer collegiate baseball league. The River Bats won the Northwoods League Championship in 2007.

Did you know? The Northwoods League had 277 of its players selected in the last two major league baseball amateur drafts, including three first-round selections in 2009. Notable River Bats alumni: Chris Basak, New York Yankees; Jason Jaramillo, Pittsburg Pirates; Chris Damaria, Kansas City Royals; Robb Quinlan, Los Angeles Angels; and San Kazmar, San Diego Padres

Cheer on the River Bats with mascot and master motivator Mr. Earl Batty, Jr., and listen to the songs of “Elvis” at what promises to be a fun-filled night for all baseball fans! Friends and family are invited to attend.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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St. Cloud day trip Space is limited. Registration form must be received by June 20. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending $_______ amount enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Children who are four to 12 years old are invited to ride the “Bat Mobile.” Please list names and ages of children interested below. Name________________________ Age__________ Name________________________ Age__________ MNM0CFSW20110628STC

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Tuesday, June 28 5:30 p.m. 6–7 p.m. 7:05 p.m.

5:30­–9:30 p.m.

Pick up tickets at the registration table at stadium entrance. (Tickets are available at will call after 6:30 p.m.) Gates open, dinner and social (meet at “Your Home Improvement Company Lodge”) River Bats vs. Duluth Huskies

Location Joe Farber Field 5001 Veterans Drive St. Cloud, MN 320-240-9798

Program fee $22 per person (includes food, non-alcoholic beverage and game ticket). Fee adjustments are not available for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900. By mail Mail registration form and check to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415 Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.


Summer MS research symposium Learn everything you need to know about the latest MS research and therapies.

June 18 n Moorhead Learn about the latest MS research and therapies and have your questions answered by a local MS expert. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, you’ll be able to visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS.

Featured presenter Dr. Susan Scarberry is medical director of Sanford Multiple Sclerosis Center in Fargo, N.D. She is board certified in neurology and has successfully completed the Multiple Sclerosis Comprehensive Treatment Training program. Scarberry is involved in MS clinical research, serves on the clinical advisory committee for the National Multiple Sclerosis Society, North Central States Chapter and is a member of the Consortium of Multiple Sclerosis Centers. She is also a member of the multiple sclerosis section and the neuromuscular section of the American Academy of Neurology.

Susan Scarberry, M.D.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Summer MS research symposium Space is limited. Registration form must be received by June 10. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Saturday, June 18

9–11:30 a.m.

9–9:30 a.m. Check-in and breakfast 9:30–10:30 a.m. MS research highlights 10:30–10:45 a.m. Break 10:45–11:15 a.m. MS research highlights 11:15–11:30 a.m. Question-and-answer session

Location AmericInn Lodge and Suites 600 30th Ave. S. Moorhead, MN 56560 218-287-7100 americinnofmoorhead.com

Program fee There is no fee for this program.

_____ # of people attending

Register

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900.

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CREW20110618MOO

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By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415


Youth Camp 2011 Join the fun with other young people touched by MS.

June 20-25 n Amery, WI Do you know a child entering grade four through 12 who has a parent with MS or lives with someone with MS? Now in its 12th year, Youth Camp brings young people together for a week of summertime fun, memory-making and personal growth. This year, Youth Camp will span an entire island on the edge of beautiful Lake Wapogasset, at YMCA Camp Icaghowan near Amery, Wis. Campers can enjoy a variety of activities, such as: n swimming; n high

ropes;

n arts

and crafts;

n disc

golf;

n canoeing; n evening

and

campfires.

Teens who are 18 years old have the option to attend as a camper or to apply to be a counselor in training.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Youth Camp

June 20-25

Space is limited. Hurry! Applications must be received by May 6.

Location

Register online at MSsociety.org.

To apply Applications are available online at MSsociety.org. To request an application by phone, please contact Bethany at 612-335-7954 or bethany.hansen@nmss.org. Families will be notified of acceptance by mid-May. Note: Completing an application form does not guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. In some cases, individual needs may be greater than we can accommodate at Youth Camp. Upon acceptance, you will receive detailed information and a billing invoice.

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Amery, WI

YMCA Camp Icaghowan 899 A 115th St., Amery, WI 54001 Camp Icaghowan is located about 70 miles northwest of the Twin Cities near Amery, Wis.

Supervision Adult volunteer counselors and highly trained Camp Icaghowan staff lead programs and supervise campers at all times.

Getting to camp Campers must find their own transportation to and from Camp Icaghowan.

Program fee $150 per child. Fee adjustments are available upon request. Upon acceptance, you will receive a billing invoice.

Questions For more information, contact Bethany at 612-335-7954 or bethany.hansen@nmss.org.

National Multiple Sclerosis Society, Minnesota Chapter


Family Outing A fun day for the whole family!

July 23 n Waterville Come to Camp Singing Hills for a day of fun, food and family! Spend time together and meet other families affected by MS. Families can enjoy a variety of activities, including team building, arts and crafts and archery. The day also includes activities designed to help families explore the unique experience of living with MS. The Family Outing is for families with a parent or guardian who has multiple sclerosis with children under age 18. This includes two-parent families, single-parent families and domestic-partner families. Camp Singing Hills is located just outside Waterville, Minn., on 170 acres of beautiful maple forests, and includes a beach on Fish Lake.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Family Outing Space is limited. Registration form must be received by July 15. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending

Saturday, July 23

10–11 a.m. 11 a.m. – 1 p.m. 1–2:30 p.m. 2:30–4 p.m. 4–5 p.m.

10 a.m. – 5 p.m.

Welcome and family activity Outdoor cookout Choose your own activity Choose your own activity Family campfire

Location Camp Singing Hills 49496 193rd Ave. Waterville, MN 56096 751-413-0990

Program fee $5 per person. Fee adjustments are available upon request. Make checks payable to the National MS Society. Do not send cash.

$_______ amount enclosed

Register

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900.

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CFPW20110723WAT

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By mail Mail registration form and check to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415


Care partner social Connect with other care partners and enjoy appetizers, on us!

May 11 n St. Louis Park The National Multiple Sclerosis Society recognizes the importance of connecting with others who understand the daily challenges of caring for someone with MS. The Minnesota Chapter invites all care partners to meet and socialize with others who share this unique role in a casual and fun environment. Create valuable connections while enjoying complimentary appetizers, on us! Attendees must purchase their own beverages.

Details n Wednesday,

May 11, 6–8 p.m.

n Granite

City, 5500 Excelsior Blvd., St. Louis Park, MN 55416

n There

is no cost to attend this program.

Join us! To RSVP, contact Bethany Hansen at bethany.hansen@nmss.org or 612-335-7954 by May 9.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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20s and 30s social outing Connect with other young adults affected by MS.

June 4 n Apple Valley Enjoy a day at the Minnesota Zoo while picnicking and socializing with other people in their 20s and 30s who understand an MS diagnosis. Friends and family also are invited. Enjoy good food, make friends and have fun!

Details n Saturday,

June 4, 9 a.m. – 6 p.m.

n Minnesota

Zoo, 13000 Zoo Blvd., Apple Valley, MN 55124, 800-366-7811

Sponsored by

n Meet

at Green Acres picnic area for lunch from 11 a.m. to 1 p.m.

n There

is no cost to attend this program. Zoo admission, parking and food and beverages during the picnic are provided. You will receive your tickets in the mail.

Please RSVP to Jill at 612-335-7938 or jill.parkinson@nmss.org by May 27.

Other 20s and 30s events People affected by MS in their 20s and 30s are invited to attend a happy hour social May 5, at 5:30 p.m., at Chatterbox in St. Paul, Minn. Appetizers will be provided. For more information or to RSVP, contact Jill at 612-335-7938 or jill.parkinson@nmss.org or Jeff at 612-335-7951 or jeff.fisher@nmss.org.

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National Multiple Sclerosis Society, Minnesota Chapter


Connect locally Connect with people in your community and learn about MS. Who? Why? How? Searching for the cause of MS Litchfield n April 28, 7 p.m. Meeker Memorial Hospital Conference Center, 612 S. Sibley Ave., Litchfield, MN 55355 This DVD features discussions with leading medical researchers. Attendees receive a booklet highlighting specific studies on immunologic, environmental, infectious and genetic causes of MS; and information

about the possible link between chronic cerebrospinal venous insufficiency (CCSVI) and MS. To RSVP, contact Ann at 320-894-7896 or annlha@yahoo.com.

Hold that thought: Cognition & MS Willmar n May 3, 7 p.m. Bethesda Wellness Center, 901 Willmar Ave. SE, Willmar, MN 56201

Burnsville n July 5, 6:30 p.m. Fairview Ridges Education Center, 152 Cobblestone Lane, Burnsville, MN 55337 Learn about cognitive symptoms associated with MS, how cognitive changes are evaluated, as well as treatment and strategies for managing cognitive changes.

To RSVP for Willmar, contact Teresa at 320-235-7499 or Jaki at 320-875-2016. To RSVP for Burnsville, contact Mike at 952-898-2857 or Sue at 952-432-9515.

MS news: New treatments and research Bemidji n May 21, 10 a.m. North Country Regional Hospital, 1300 Anne St. NW, Bemidji, MN 56601

Waseca n June 21, 7 p.m. Waseca Medical Center, 501 State St. N., Waseca, MN 56093 Learn about a new medication to improve walking in people with MS and other oral treatments in the pipeline. Plus, hear about the latest in CCSVI research.

To RSVP for the Bemidji program, contact Carson or Barb at 218-751-1879. To RSVP for the Waseca program, contact Cindy at 507-833-4003.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Connect locally Primary progressive MS: Perspectives on moving forward Perham n May 31, 1 p.m. Calvary Lutheran Church, 619 Third Ave. SW, Perham, MN 56573 Primary-progressive multiple sclerosis (PPMS), characterized by a steady decline in function without relapse, affects approximately 10 percent of the MS population. Hear the stories and

unique perspectives of four people living with PPMS in this DVD presentation. To RSVP, contact Colleen at 218-758-2502 or Mary at 218-346-4423.

The transformative power of creativity Duluth n June 7, 11:30 a.m. Bethany Baptist Church, 6700 Grand Ave., Duluth, MN 55807 A decade after being diagnosed with MS, Kate Wolfe-Jenson discovered creativity and transformation could help her deal with the “monsters” of living with chronic illness. Through that understanding, she has entered into a “dance with MS.”

“Mac and His Monster,” invites you to choreograph a dance with your own monsters, whatever they may be. To RSVP, contact Bev at 218-624-1212, 218-391-8667 or bevs2@juno.com.

Wolfe-Jenson, author of “Dancing with Monsters: Chronic Illness as Creative Transformation” and

Getting there: Staying mobile with MS Eden Prairie n June 21, 7 p.m. Wooddale Church, 6630 Shady Oak Road, Eden Prairie, MN 55344 Mobility is an important factor for independence in our hustle-and-bustle world. MS can affect mobility, but fortunately, there are a many strategies we can use to keep moving, including exercise and healthy living, managing fatigue and spasticity, adopting suitable assistive devices and

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adapting our automobile. At this program, learn ways to address challenges affecting mobility and keep moving. To RSVP, contact Rick at 612-791-6473, rleaf@msnet.org or Louann at 612-874-9989, lreplogle@juno.com.

National Multiple Sclerosis Society, Minnesota Chapter


Face time with your local neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Highway 55, Golden Valley, MN 55422, 763-591-4700 Topics: April 20 Emerging therapies in MS: The good, the bad and the ugly Dr. Gary Birnbaum

May 11

MS eyes — What you see and what you don’t, featuring guest speaker Dr. Marian Rubenfeld

Research from American Academy of Neurology

June 15

July 13

ADA and employment rights: What is it and what can I expect at work, featuring guest speaker Denise Tataryn, attorney at law

Please RSVP to 763-302-8282, ext. 4823.

University of Minnesota MS Center Join Dr. Gareth Parry and Dr. Adam Carpenter Every other month at 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave., #500 Maple Grove, MN 55369, 763-898-1000

Dr. Gareth Parry

Topics: May 9

Mobility in MS — The promise of AmpyraTM

Cognition and MS

July 11

For more information, contact the University of Minnesota MS Center at 612-626-2675.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

25


Face time with your local neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750 Topics:

Dr. Jonathan Calkwood

May 4

Legislative updates

May 18 SS disabled and under 65: MAEPD — A benefits program presented by Minnesota Elder Law AttorneysSM (Join us at 12:30 p.m. for lunch sponsored by Biogen Idec.)

June 8

Bladder issues in MS

June 22 Therapeutic recreation — More than just games!

July 13 Positive life skills to live with MS (Join us at 12:30 p.m. for lunch sponsored by Acorda Therapeutics.)

July 27

Treatments for progressive MS

For more information, contact the Schapiro Center for MS at 763-302-4199.

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National Multiple Sclerosis Society, Minnesota Chapter


Details about this program are provided for your information. This program is not produced by the National MS Society.

Finding the right MS treatment for you

May 19 n Bloomington Learning about multiple sclerosis is essential to managing its symptoms. Join us as medical MS experts present the science behind MS, current therapies to treat MS and insight into managing the disease.

®

Details n Registration: n Program:

5:30–6 p.m.

6–8 p.m.

Marriott Bloomington Airport 2020 American Blvd. E. Bloomington, MN 55425

MS ActiveSource is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. (c) 2009 Biogen Idec. All rights reserved

Featured speakers Join us! To register for this free program, call 866-955-9999; or register online at MSActivesource.com and click the “Events” button. Dr. Praful Kelkar Noran MS Clinic Minneapolis, MN

Dodie Russell, N.P. Noran MS Clinic Minneapolis, MN

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

27


Finding the right MS treatment for you

Details about this program are provided for your information. This program is not produced by the National MS Society.

June 14 n Brooklyn Park

®

Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

Details n Registration: MS Active Source is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2009 Biogen Idec. All rights reserved

n Program:

5:30–6 p.m.

6–8 p.m.

The Northland Inn 7025 Northland Drive N. Brooklyn Park, MN 55428

Featured speaker Join us! To register for this free program, call 866-955-9999; or register online at MSActivesource.com and click the “Events” button.

28

Dr. Jonathan Calkwood is director of the Shapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.

National Multiple Sclerosis Society, Minnesota Chapter


What does MS “=” to you? MS =

lost memories “It’s hard for me to keep track of all of the things going on in my life. I choose to face this disease with strength, dignity and lots of sticky notes.” — Fotini, diagnosed in 2007

Do you find it difficult to describe MS? Do you wish more people understood the disease? The new MS= campaign will help you share, educate and raise awareness about what multiple sclerosis means to you. Tell us what MS equals to you, and your response could be featured in an upcoming Programs Connection! Visit tinyurl.com/MSequals to submit your answer. Together, our stories can build awareness and bring us closer to a world free of MS.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

29


Treatment options People with MS and their care partners are invited to attend a free educational program about AMPYRA®. Ampyra® (dalfampridine) Extended Release Tablets, 10 mg, was introduced March 2010. Learn more about this treatment option by visiting AMPYRA.com or attending one of the following programs.

Featured speaker Dr. Gareth Parry Dr. Gareth Parry is medical director of the University of Minnesota MS Center, the Clinical Neuroscience Research Unit and the Fairview MS Achievement Center. He’s also a neurology professor at the university.

Join us to learn more

May 10 n Edina

June 14 n Eden Prairie

n Welcome:

Tavern On France 6740 France Ave. S. Edina, MN 55435

Biaggi’s Eden Prairie Center 8251 Flying Cloud Drive Eden Prairie, MN 55344

n Program:

6–6:30 p.m.

6:30–7:30 p.m.

Register by calling 800-397-8082 or visit AMPYRA.com. Space is limited — reserve your spot today!

May 11 n St. Paul Axel’s Bonfire 850 Grand Ave. Saint Paul, MN 55105

July 26 n Apple Valley Enjoy! 15435 Founder’s Lane Apple Valley, MN 55124

Programs are sponsored by Acorda Therapeutics®, Inc. Programs are sponsored by Acorda Therapeutics®, Inc. AMPYRA® is a registered trademark of Acorda Therapeutics®, Inc. AMPYRA is marketed by Acorda Therapeutics®, Inc. and is manufactured under license from Elan Pharma International, Ltd. ©2010 Acorda Therapeutics®, Inc. All rights reserved.

30

National Multiple Sclerosis Society, Minnesota Chapter


Details about this program are provided for your information. This program is not produced by the National MS Society.

Featured speaker Dr. Jonathan Calkwood Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.

Join us to learn more

May 21 n Maple Grove

n Welcome:

Pittsburgh Blue Steakhouse 11900 Main St. N. Maple Grove, MN 55369

n Program:

11–11:30 a.m. 11:30 a.m. – 12:30 p.m.

Register by calling 800-397-8082 or visit AMPYRA.com. Space is limited — reserve your spot today!

Featured speaker Jackie Higgins Jackie Higgins, F.N.P, B.C., is a nurse practitioner at the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.

Join us to learn more

July 16 n Brainerd

n Welcome:

Prairie Bay 15115 Edgewood Drive Brainerd, MN 56401

n Program:

11–11:30 a.m. 11:30 a.m. – 12:30 p.m.

Register by calling 800-397-8082 or visit AMPYRA.com. Space is limited — reserve your spot today!

Programs are sponsored by Acorda Therapeutics®, Inc. Programs are sponsored by Acorda Therapeutics®, Inc. AMPYRA® is a registered trademark of Acorda Therapeutics®, Inc. AMPYRA is marketed by Acorda Therapeutics®, Inc. and is manufactured under license from Elan Pharma International, Ltd. ©2010 Acorda Therapeutics®, Inc. All rights reserved.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

31


Wisconsin MS Summit Learn and socialize with others affected by multiple sclerosis.

May 20-21 n Wisconsin Dells

Keynote speakers Dr. Bhupendra Khatri has more than 25 years of experience treating neurological disorders and is director of the Center for Neurological Disorders at Aurora St. Luke’s Hospital in Milwaukee, Wis. Tom Holtackers is in the 37th year of his career as a physical therapist. He’s also a motivational speaker and author of “It Takes Courage.”

Last year, more than 30 Minnesota Chapter members joined the Wisconsin Chapter at this annual program for people with MS and their families. Participate in educational workshops, and socialize and network in a supportive environment. Representatives from the National MS Society’s National Healthcare Reform Team will discuss healthcare reform, what has changed, what will change and how it will affect people with MS. Plus, you can attend these optional programs. n Yoga

class

n Organized

children’s activities

n Exhibits

— gather materials and chat with representatives

n Closing-day

Dr. Bhupendra Khatri

Tom Holtackers

Join us! To register, visit wisMS.org or call 800-242-3358 and choose option 1. To reserve rooms at the Kalahari, call 877-253-5466. The reference code for National MS Society room block is 11766.

32

raffle

Details n Kalahari

Resort & Convention Center, 1305 Kalahari Drive, Wisconsin Dells, WI 53965

n Registration

is free. Rooms are available at the Kalahari at a reduced rate until April 20: $99 plus tax for Friday, $129 plus tax for Saturday. After April 20, rooms are $269 plus tax.

n Saturday

breakfast is provided.

National Multiple Sclerosis Society, Minnesota Chapter


Aids for Daily Living Grant enhanced to meet your needs For many years, the National Multiple Sclerosis Society, Minnesota Chapter has had the privilege of offering its members limited financial assistance for a wide variety of non-medical devices through the Aids for Daily Living (ADL) Grant. ADL, underwritten in part by The Joanne Levin Endowment Fund, helps members purchase items such as cooling vests, bath safety products, canes, vision aids, dressing and eating aids and more to help people with MS.

The Minnesota Chapter Aids for Daily Living Grant, which offers financial assistance for non-medical devices to people with MS, has been enhanced to offer clients up to $200 per fiscal year.

Often times, members purchase items that are close to the program’s $100 limit (per fiscal year) and have to forgo receiving other necessary aids. The Minnesota Chapter is pleased to announce the program has been enhanced to offer clients up to $200 per fiscal year. Also, financial help now is provided for items such as: n e-readers, n walkers

like the Kindle and Nook;

with seats and brakes; and

n transport

chairs.

For more information about Aids for Daily Living, contact Scott at 612-335-7900 or scott.ahlgren@nmss.org; or visit the chapter website at MSsociety.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

33


Exercise Studies show exercise not only improves your overall health and well-being, but also can help to manage many MS symptoms. Move forward through exercise by finding an exercise program in your community. Featured group

Mankato Tai Chi The Mankato Tai Chi group meets Tuesdays from 3:30 to 4:30 p.m., at the Summit Center in Mankato. For more information, contact Karen at 507-345-5262.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Maggie at maggie.flanagan@nmss.org.

WATER EXERCISE Albert Lea

Coon Rapids

Eden Prairie

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

Emma B. Howe Northtown YMCA Trin Peterson, 763-717-1837 T/R, 11 a.m.-noon

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Detroit Lakes

Courage Center Kaari Hilgert, 763-520-0385 T, 1-2 p.m.

Alexandria Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M-F, 9-10 a.m.

Burnsville Minnesota Valley YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m. 34

Detroit Lakes Community & Cultural Center Leslie Johnson, 218-844-4221 T/R, 9-10 a.m.

Golden Valley

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.

National Multiple Sclerosis Society, Minnesota Chapter


Inver Grove Heights

Virginia

Minneapolis

The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options.

Mesabi Family YMCA Chelsea Spreeman, 218-749-8020 T/R, 1-2 p.m.

Kingsley Commons Mary Salisbury, 651-690-1850 F, 10:30 a.m.

Waconia

Uptown YWCA Lisa First, 612-822-3504 F, Noon

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.

New Hope Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.-noon

Perham Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11-11:45 a.m.

St. Cloud Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.

Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Willmar Kandiyohi County Area YMCA Christy Marthaller, 320-222-9622 Shallow water M-F, 8:30-9:30 a.m. Deep water M/W/F, 9:30-10:30 a.m. Shallow/deep combo M/W, 5:30-6:30 p.m.

Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 T, 11:15 a.m.-noon.

Tai Chi Mankato V.I.N.E. Summit Center, Karen Christy, 507-345-5262 T, 3:30-4:30 p.m.

St. Paul

YOGA

Jewish Community Center Christina Eide, 651-255-4762 T/R, 9:50-10:35 a.m.

Bemidji

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m.; R, 6:30-7:30 p.m.

GROUP EXERCISE Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m. Muscular strength and range of motion M/W, 10 a.m

Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S, 9:30-10:30 a.m.

Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

35


Featured group

Burnsville MS Group

Clubs and groups Join an MS club or group to

The Burnsville group offers two opportunities every month for people to get together and learn about multiple sclerosis. We generally provide an educational program or select an MS-related topic for discussion at the Tuesday meetings. Thursday, we meet for lunch at Perkins just to connect with each other and have fun. Join us for both meetings or just one! ­ Mike Krieger and Sue Sopkiewicz, — group leaders

connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

CLUBS

Duluth

Mahtomedi

Book clubs

Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Judy, 651-488-4454

Maple Grove

Minneapolis

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Apple Valley First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

36

National Multiple Sclerosis Society, Minnesota Chapter


Roseville

Forest Lake area

St. Louis Park Care Partners

First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 651-646-4661

Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall

Grand Rapids

Women Care Partners

Live FIT (MS Fitness discussion groups)

Second Thursday of the month 12:30 p.m., restaurant varies Sally, 218-326-1371

Third Saturday of the month Noon, Dorothy Ann Bakery & Café, Woodbury

GROUPS

For couples

CogniFitness

Stillwater Couples

Minneapolis

Second Saturday of the month Noon, Courage St. Croix, Stillwater

Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

Minneapolis Third Saturday of the month 10 a.m., chapter office

Nutrition club KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis

Social gatherings

First Tuesday of the month 2 p.m., Aster Café

For artists, crafters and writers with MS MS Art & Crafts Interest Group Third Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville

Alexandria

For care partners

Fourth Monday coffee social 10:30 a.m., Daily Grind House of Java

Bemidji Care Partners

Arrowhead region Meeting monthly at regional restaurant Mary, 218-827-8327

Burnsville/Apple Valley Third Thursday of the month Noon, Perkins Restaurant, Apple Valley

Third Saturday of the month 10 a.m., North Country Regional Hospital

Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville

Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church

For GLBT GLAMS Twin Cities (for GLBT living with MS) Third Thursday of the month 6:30 p.m., Walker Library, Minneapolis

St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul

For men Men’s Group First and third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

37


Metro Area: It’s Just Breakfast (with the guys)

For people recently to five years diagnosed

Various Saturdays of the month 10 a.m., restaurant varies Rick, 612-791-6473 or rleaf@msnet.org

South Metro Recently to Five Years Diagnosed

For moms with young children Moms with Young Children First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Minneapolis

For people of color Metro MS Group for People of Color Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis

For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie

For professionals Let’s Lunch: Professionals Living with MS Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul

38

Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington

For women Maplewood Women’s Peer Support Group Second Thursday of the month 12:30 p.m, Gustavus Adolphus Lutheran Church

Belview Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov. – Feb.

Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital

Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July

Buffalo

General groups

Third Monday of the month Noon, United Methodist Church

Aitkin First Wednesday of the month 7 p.m., and third Monday of the month, 1 p.m., Hope Drop-In Center

Albert Lea Second Monday of the month 1:30 p.m., Dec. – Feb. and 7 p.m., March – Nov., Grace Lutheran Church

Burnsville/Apple Valley First Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville

Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center

Canby

Alexandria Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March

Second Thursday every other month, April – Dec., 4 p.m., Sanford Canby Medical Center

Chaska

Austin First Monday of the month 6:30 p.m., Grace Lutheran Church

Third Tuesday of the month 12:30 p.m., Chaska Library

National Multiple Sclerosis Society, Minnesota Chapter


Coon Rapids North Suburban Second Wednesday of the month 7 p.m., Coon Rapids City Center

Detroit Lakes Second Thursday of the month 6:30 p.m., Lincoln Park Assisted Living

Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church

Excelsior/Minnetonka

Hibbing

Minneapolis

Last Thursday of the month 1 p.m., Open Door Church

Last Saturday of the month 10 a.m., Kingsley Commons

Hutchinson

New Prague

Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb.

Inver Grove Heights/ West St. Paul First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec. – Feb.

Lake Elmo Second Wednesday of the month Noon, Christ Lutheran Church

Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior

Little Falls/Pierz

Fergus Falls

Luverne

Second Wednesday of the month 11:30 a.m., United Church of Christ

Third Thursday of the month 7:30 p.m., Rock County Family Services

Faribault

Mankato

Third Tuesday of the month 6 p.m., Buckham Memorial Library

Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Forest Lake area

Maple Grove

Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living

Second Saturday of the month 10 a.m., St. Joseph the Worker Church

First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls

New Richmond Second Thursday of the month 6 p.m., First Lutheran Church

New Ulm Third Tuesday of the month 7 p.m., Oak Hills Living Center No meetings Dec. – Feb.

Oakdale Third Saturday of the month 10:30 a.m., Oakdale Library

Park Rapids Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

39


Roseville

St. Paul Care to Share

Willmar

Second Wednesday of the month 6:45 p.m., The Fire Station One (Group also meets socially at a local restaurant at 6:45 p.m. the fourth Wednesday of the month.) Robin, 651-647-0809

Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

First Tuesday of the month 7 p.m., Bethesda Wellness Center No meetings Jan. – Mar.

Stillwater

Windom/Cottonwood County

St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton

Staples Second Thursday of the month 3 p.m., Lakewood Care Center No meetings June – Aug.

St. Cloud Second Wednesday of the month 7 p.m., St. Cloud Public Library

Third Wednesday of the month 6 p.m., Courage Center

Superior Second Tuesday of the month 6 p.m., Superior Public Library

Thief River Falls Third Saturday of the month 3 p.m., Riverside Terrace

Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center

Third Wednesday of the month 7 p.m., ALC Lutheran Church

Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

Wayzata/Plymouth First Thursday of the month 1 p.m., restaurant varies, Richie, 763-670-9114

Additional resources Clubs and groups For more information about clubs and groups, visit MSsociety.org. Click “Programs and Services” and then “Clubs and Groups.” If you would like more information or are interested in starting a club or group in your area, contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

Do you know a company that could support the Minnesota Chapter? Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri at 612-335-7925 or teri.cannon@nmss.org.

40

National Multiple Sclerosis Society, Minnesota Chapter


Champions program gives cyclists a reason to ride Champions is a program created to help Bike MS: C.H. Robinson Worldwide MS 150 Ride cyclists connect with people living with MS to foster education, awareness, gratitude and, most importantly, hope. The Champions program gives cyclists in the two-day, 150-mile ride a chance to participate in honor of someone with MS — making the experience more fulfilling. Cyclists wear an identifier (a scarf, pin, bracelet, etc.) symbolizing the connection while they ride. Are you a person living with MS? Would you like to help make stronger connections with cyclists who raise funds for MS? Do you want to share the mission behind Bike MS with a group of cyclists? Fill out a Champion profile at tinyurl.com/Championprogram. You will be featured with your photo on the Minnesota Chapter website.

Questions? Contact Josh at 612-335-7984 or josh.simenstad@nmss.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

41


What’s online? Watch, read or listen online to learn about living well with MS.

Webcasts and podcasts on topics from A to Z MS Learn Online offers an extensive menu of topics about multiple sclerosis — available 24/7 and in the format of your choice. Whether it’s a PDF printout, an audio file for your MP3 player or an online webcast, all you need is a computer and a reliable Internet connection.

Tips for staying well are just a click away. People with MS can access online brochures about many topics to help you stay well. Visit nationalMSsociety.org/StayingWell to read about acupuncture, dental health, nutrition, exercise, intimacy and sexuality, emotional health, stress management and more.

Visit archived presentations or explore new ones. Feature presentations go live the first and third Thursday of each month. Current topics include the newly-approved treatment AmpyraTM, disease-modifying therapies, a series on symptom management, physical fitness at home, complimentary and alternative medicines and much more. Click on the Daily Minute for a one-minute factoid about MS. At Q&A, distinguished neurologist Dr. Mary Hughes answers a viewer’s question each week. E-mail your own question to mslearnonline@nmss.org.

Check out MS Learn Online Watch, read or listen at nationalMSsociety.org/MSLearnOnline.

42

National Multiple Sclerosis Society, Minnesota Chapter


Didn’t find what you’re looking for? Use this directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Ted, 612-335-7930

Emergency assistance Heather, Jill or Sarah, 612-335-7900

Camps Majestic Shores Resort Jeannie, 612-335-7939

Equipment programs Equipment loan Equipment exchange Scott, 612-335-7900

Youth Camp Bethany, 612-335-7954 Care partner programs Bethany, 612-335-7954 Chore services Kari, 612-335-7968 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Lindsay, 612-335-7976 Client education programs Steve, 612-335-7974

Calling from Greater Minnesota? Call 800-582-5296.

Exercise programs Jeannie, 612-335-7939 Family programs Bethany, 612-335-7954 Giving to the National MS Society Shannon, 612-335-7928 Chris, 612-335-7965 Housing Steve, 612-335-7974 Independent living grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7900

Information and Referral Center MS Navigators Heather, Jill and Sarah, 612-335-7900 Inservices for organizations Steve, 612-335-7974 Lending Library Jill, 612-335-7900 Mentor Program Connie, 612-335-7964 Professional education Megan, 612-335-7955 Volunteer opportunities Josh (programs), 612-335-7984 Will (events), 612-335-7992 Walk MS, Bike MS, Mud Run MS, Run MS and motorsport events Ann, 612-335-7975 Youth and teen programs Bethany, 612-335-7954

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Join Walk MS, no matter where you are More than 10,000 people will rally together May 1 for Walk MS: Christopher & Banks Walk 2011 presented by Walser. Can’t make it? Good news. Walk MS is for anyone who is passionate about creating a world free of MS — no matter where you are.

Register for Walk MS: Anywhere Walk. Get started today with our easy online fundraising tools. You’ll be eligible for all the same great prizes and can even start a team. Walk MS is the rallying point of the MS movement. Put your passion into action — presence not required. Register now. walkMSminnesota.org 800-582-5296

Walk 2011 presented by

Rick, diagnosed in 1991

Because we care. My husband was diagnosed with primary-progressive MS 20 years ago. We’ve been waiting for a cure for just as long. That’s the reason we included a bequest to the National MS Society in our wills. It’s easy to provide for causes you care about, and the National MS Society can help you learn how. Join the Movement®.

WE CARE ABOUT A CURE … THIS IS WHY WE GIVE

Contact Chris at 612-335-7965 or chris.neher@nmss.org.


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