Programs & Resources Guide, summer 2013 by National MS Society, Upper Midwest Chapter

Spring/Summer 2013

Programs & Resources Guide

Youth Camp

A memorable week in Amery, Wis., for youth affected by MS.

Priority issues in MS advocacy Learn about the four areas of focus for the 2013 legislative session.

Plus

Find MS programs in your community, a listing of local clubs, groups and exercise classes, and ongoing resources and services available anytime.

JOIN THE MOVEMENT速

MOVING IS WHO WE ARE Youth in the MS movement The National MS Society understands that youth and teens with a connection to MS have unique experiences, and we recognize the importance of connecting them to other young people who share similar experiences. Because of this, we offer a number of ways for youth to get involved, meet peers, gain support and have fun. Krista Harding, Joining the movement to end MS doesn’t Family and Youth have to be scary, and it doesn’t require a Programs Coordinator huge commitment. Below are just a few examples of programs in which youth and teens can participate:

Programs & Resources Guide Programs & Resources Guide is a free publication of the National MS Society 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Maggie Flanagan Steve Korngable Chapter President Holly Anderson

n MS

Youth Camp — a weeklong adventure at YMCA Camp Icagohowan in Amery, Wis. (see page 4)

n Team

of the Future — a chapterwide, super team made up of Walk MS teams led by young adults ages 13 to 18

n Teen

Council — a group of 13 to 18 year olds who have MS or are related to a person with MS and are interested in raising awareness about MS

Prefer to do things as a whole family? Consider attending a family program together! Family programs are a great introduction to the National MS Society and will give you and your child(ren) a chance to meet others in a fun and casual setting. If you’re interested in learning more about youth and family programs, contact Krista at krista.harding@nmss.org or 800-582-5296 (option 2).

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health care professionals about using these medications and about effective strategies and treatments to manage symptoms. If you or someone you know has MS, please visit nationalMSsociety.org or call 800-582-5296 to learn more.

Table of contents Featured programs Youth Camp Priority issues in MS advocacy

Iowa programs Minnesota programs

4 5 6–8 9–19

North Dakota programs

20–22

South Dakota programs

23–25

Anywhere programs

26–28

Resources and financial assistance 29–32

Teen programs foster friendships and more In 2006, Connor Harthorn attended Youth Camp. At 12 years old, being away from home for a week with people he didn’t know seemed daunting. As it turned out, he loved Youth Camp, his first real interaction with the National MS Society. Now 18, Connor has come back to Youth Camp every year and plans to return this summer as a counselor in training. Connor said, “I continued to go because I enjoy getting to know other kids whose parents have MS.” Connor Harthorn

Three of his younger siblings have followed in his footsteps, each attending every year since they were old enough to apply, while the fourth anxiously awaits his turn. Connor has since participated in a number of other Society youth, teen and family programs, like Teen Council, Teen Crew and Teen Summits. Through these programs, Connor has gained a number of close friends who understand where he’s coming from and share similar experiences related to having a parent who lives with MS. Connor said, “Attending Society events gives you opportunities to talk to people, but it also gives you an option to do fun things to get your mind off of MS.”

JOIN THE MOVEMENT®

FEATURE PROGRAM

Youth Camp Experience a week of fun and adventure with other young people affected by MS.

June 17–22 n Amery, WI Do you know a child entering grades four through 12 who has a parent with MS or lives with someone with MS? Now in its 14th year, Youth Camp brings together youth from across the chapter and beyond for a week of summertime fun, memory-making and personal growth. Youth Camp spans an entire island on the edge of beautiful Lake Wapogasset at YMCA Camp Icaghowan in Amery, Wis. Campers enjoy a variety of activities, such as:

To apply Applications are available online at MSsociety.org and due by May 1. To request a hard-copy application, contact Krista at 612-335-7937 or krista.harding@nmss.org. Completing an application doesn’t guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. Upon acceptance, you’ll receive more detailed information and a billing invoice.

n swimming;

n horseback

n high

n canoeing;

ropes; n disc golf; n MS education.

n campfires;

riding; and

Teens age 18 who have graduated from high school can apply to be counselors in training. Space is limited. Applications must be received by May 1.

Program fee $175 per child. Fee adjustments are available upon request. Do not send a check at this time. Upon acceptance, you’ll receive a billing invoice.

Questions For more information, contact Krista at 612-335-7937 or krista.harding@nmss.org. 4

National Multiple Sclerosis Society

FEATURE PROGRAM

Priority issues in MS advocacy The Upper Midwest Chapter names four areas of focus for the 2013 legislative session. At the Upper Midwest Chapter, we relentlessly advocate for policies and research essential to people living with MS. Below are issues we’re monitoring during the 2013 legislative session. On behalf of more than 17,000 people living with MS in Iowa, Minnesota, North Dakota, South Dakota, and portions of Wisconsin and Nebraska, the Upper Midwest Chapter advocates for the following priorities at the legislative level. n Support

MS research: We advocate for scientific and medical research that could stop the progression of MS, restore function and end MS forever. We support efforts to expand such research and oppose efforts that would hinder the ability to free the world from MS.

n Protect

programs for people living with MS: We work to limit and reverse the impact of state budget cuts on people living with MS and advocate for appropriations for human services, education, housing, public transportation and other programs that benefit people with MS and other disabilities and chronic disease.

n Advocate

for accessible, affordable and quality health care: We support initiatives that expand coverage, improve quality, increase access to care and provide greater affordability for people living with MS. We monitor and engage in developing health reform proposals, seek to improve health care programs and oppose legislation that negatively impacts people living with MS.

n Reduce

roadblocks to MS care: We support equitable and adequate coverage of medically necessary MS treatments, capping and reducing the out-of-pocket cost of MS care, eliminating specialty tiering and expanding prescription-assistance programs.

We need your story! As we advocate at the legislature, we want to learn about the barriers you and your family encounter in your health care, including access to MS disease-modifying medications. Your story helps us make a bigger impact at our state capitols. Contact Jenna at 612-335-7981 or jenna.washnieski@nmss.org to share your story.

Join the Movement® Learn more about how the National MS Society advocates for people with MS at MSsociety.org. Sign up for advocacy alerts, share your story, and join us in helping shape policy that affects us all.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

IOWA

Iowa programs Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

MS research symposium April 23, 5:30–7:45 p.m. Holiday Inn and Conference Center, 1220 First Ave., Coralville, IA Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Claudia Lucchinetti from the Mayo Clinic Center for MS in Rochester, Minn. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Attendees may check-in and enjoy appetizers from 5:30 to 6 p.m. The registration deadline is April 17.

Family ice cream social Saturday, June 15, 1–3 p.m. Greenwood Park Open Shelter 2, 4500 Grand Ave., Des Moines, IA Join us for an afternoon of fun at Greenwood Park! Meet other families affected by MS while enjoying ice cream and the nearby wading pool. Family outings are for families with children under age 18 who have MS or who have a parent or guardian with MS. They are intended for immediate family only. This includes two-parent families, single-parent families and domestic-partner families. The registration deadline is June 7.

Youth Camp June 17–22 YMCA Camp Icaghowan, 899 115th St., Amery, WI Now in its 14th year, Youth Camp brings together young people entering grades four through 12 who live with someone who has MS for a week of summertime fun, memory-making and personal growth. YMCA Camp Icaghowan spans an entire island on the edge of beautiful Lake Wapogasset where campers can enjoy a variety of activities, such as swimming, high ropes and horseback riding. Applications are available at MSsociety.org. Program fee is $175 per child; fee adjustments are available upon request. Requests for travel assistance can be made with applications and will be considered on a case-by-case basis. For more information or to request an application, contact Krista at 612-335-7937 or krista.harding@nmss.org. Applications must be received by May 1. 6

National Multiple Sclerosis Society

IOWA

Facetime at Mercy Ruan Multiple Sclerosis Center Second Thursday of the month, 11:30 a.m. – 1 p.m. Mercy Medical Center, 1111 Sixth Ave., Des Moines, IA Complimentary light lunch provided. May 9

TBD

June 13 TBD July 11 TBD RSVPs are appreciated, but not required. Contact Valerie Stickel-Diehl, R.N., M.S., M.S.C.N. at 515-358-0002 or VStickel-Diehl@mercydesmoines.org.

Clubs and groups Join an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

Burlington

Clinton

Des Moines

Third Saturday of the month 10 a.m. – noon, Burlington Public Library Laurie, 319-754-0407

Third Tuesday of the month 6:30 p.m., Mercy Medical Center, Boardroom, South Campus Tami, 563-357-4884

Third Sunday of the month 2 p.m., Walnut Ridge at Clive David, 515-556-5338

Council Bluffs

Second Monday of the month 7 p.m., West Des Moines Public Library Larry, 515-989-9234

Carroll First Tuesday of the month 6 p.m., Swan House Tina, 712-792-4777

Cedar Falls/Waterloo Third Thursday of the month 6:30 p.m., Covenant Medical Center Shirl, 319-235-8946

Cedar Rapids Third Sunday of the month 2 p.m., Mercy Hospital Kathy, 319-373-5390

Third Tuesday of the month 7 p.m., United Methodist Church Jerry, 712-366-9569

Des Moines Caregivers Group

Davenport

Des Moines Couples Group

Second Tuesday of the month 6:30 p.m., Genesis East Heart Building Karen, 309-736-0738

Third Saturday of the month 10 a.m., St. Mary of Nazareth Church Kelli, 515-963-7788

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

IOWA

Des Moines Menâ&#x20AC;&#x2122;s Group Meets quarterly Various times and locations Ken, 515-999-9186

Des Moines Phone Group Second Thursday of the month 10 a.m., toll-free: 866-906-9995 Passcode: 828172 Rita, 515-480-3870

Des Moines Womenâ&#x20AC;&#x2122;s Luncheon Group Second Tuesday of the month 11:30 a.m., location varies Annie, 515-724-2641

Dubuque First Tuesday of the month 6:30 p.m., Mercy Hospital Susie, 563-581-1284

Dubuque (for people living with progressive MS) First Tuesday of the month 1:30 p.m., Finley Hospital, Bartels & Butler Room Sandra, 563-582-5815

Fort Dodge First Monday of the month 7 p.m., St. Olaf Lutheran Church Sheila, 515-576-1860 Marc, 515-955-5814

Iowa City Third Thursday of the month 6:30 p.m., Coralville Public Library Emily, 214-677-5733

Iowa City Caregivers Group

Knoxville Third Monday of the month 6:30 p.m., Seventh Day Adventist Church Melinda, 641-670-0994

Mason City Fourth Sunday of the month 2 p.m., Bethlehem Lutheran Kathy, 641-454-2953

Oskaloosa Saturday following the third Tuesday of the month 10 a.m., Mahaska County Hospital Lin, 641-295-2030

Sioux City First Saturday of the month 1:30 p.m., CNOS Clinic Janet, 605-217-2726

First Monday of the month 7 p.m., Iowa City Public Library Larry, 515-989-9234

National Multiple Sclerosis Society

MINNESOTA

Minnesota programs Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

Research update Saturday, May 18, 10:30 a.m. Oakdale Library, 1010 Heron Ave. N., Oakdale, MN Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions addressed by MS specialist Dr. Yelena Usmanova from the Minneapolis Clinic of Neurology. To RSVP, contact Samantha at 651-735-0190.

Facetime with Dr. Yelena Usmanova Quarterly, 5:30 p.m. Minneapolis Clinic of Neurology, 3400 W. 66th St., Edina, MN May 2

Current therapy options for multiple sclerosis

For more information, contact the Minneapolis Clinic of Neurology at 952-920-7200.

Minimize your risk of falls Thursday, May 2, 7 p.m. Access North, 606 NW Fifth St., Brainerd, MN Saturday, July 20, 10:30 a.m. Oakdale Library, 1010 Heron Ave. N., Oakdale, MN Due to mobility issues and other symptoms, people with MS are at a significant risk for falls. Although completely eliminating falls may be unrealistic, many of them occur under predictable circumstances. Megan Frost, P.T., will discuss key risk factors that contribute to falls and steps that can be taken to minimize or eliminate them. To RSVP for Brainerd, contact Jasmine at jasminewinkelman@yahoo.com or 218-839-1774. To RSVP for Oakdale, contact Samantha at 651-735-0190.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MINNESOTA

Care partner happy hour social Wednesday, May 29, 6–8 p.m. Green Mill Restaurant and Bar, 1000 Gramsie Road, Shoreview, MN MS care partners are invited to enjoy complimentary appetizers and meet other care partners who understand the experience of caring for someone who has MS. Beverages must be purchased by attendees. There is no fee for this program. Registration is appreciated but not required.

20s and 30s social outing June 1, 10:30 a.m. – 12:30 p.m. Minnesota Zoo, Green Acres picnic area, 13000 Zoo Blvd., Apple Valley, MN Enjoy a day at the Minnesota Zoo while picnicking and socializing with other people in their 20s and 30s who share MS-related experiences. Enjoy good food, make friends and have fun! The picnic, along with a bean bag tournament and face painting, will be from 10:30 a.m. to 12:30 p.m. in the Green Acres picnic area, but guests can enjoy the zoo attractions for the entire day. Friends and family are invited. Zoo admission, parking and food and beverages during the picnic are provided by the Noran Neurological Clinic. The registration deadline is May 23.

Research update Saturday, June 8, 10:30 a.m. Sumner Library, 611 Van White Memorial Blvd., Minneapolis Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions addressed by MS specialist Dr. Gareth Parry from the University of Minnesota MS Center. To RSVP, contact Samantha at 651-735-0190.

National Multiple Sclerosis Society

MINNESOTA

Youth Camp June 17–22 YMCA Camp Icaghowan, 899 115th St., Amery, WI Youth Camp brings together young people entering grades four through 12 who live with someone who has MS for a week of summertime fun, memory-making and personal growth. YMCA Camp Icaghowan spans an entire island on the edge of Lake Wapogasset where campers can enjoy a variety of activities, such as swimming, high ropes and horseback riding. Applications are available at MSsociety.org. Program fee is $175 per child; fee adjustments are available upon request. Requests for travel assistance can be made with applications and will be considered on a case-by-case basis. For more information or to request an application, contact Krista at 612-335-7937 or krista.harding@nmss.org. Applications must be received by May 1.

MS Day Centers Activities at MS Day Centers help adults with MS remain active and independent and can maintain and improve physical strength, emotional health and overall quality of life. Centers also assist family members and care partners by providing respite, support and resources. Each day center offers unique programs and services, but most provide: n educational

and exercise programs; n socialization activities; n health and wellness education; n creative arts; and n much more.

Fairview MS Achievement Center Monday through Friday, 10 a.m. – 3:30 p.m. 2200 University Ave., Ste. 140, St. Paul, MN (612-672-2815)

MS Center at Opportunity Matters Tuesdays, 2–4 p.m.; Thursdays 3–4 p.m. (Resource Center) 701 23rd St. S., Sartell, MN (320-240-1990)

MS Achievement Center Saturdays, 9 a.m. – 3 p.m. Benedictine Health Center, 935 Kenwood Ave., Duluth, MN (218-733-2254) For more information, please visit MSsociety.org and search “day program,” or call a center directly at the number provided. phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MINNESOTA

Facetime with Dr. Jonathan Calkwood Monthly, 6:30–8 p.m. The Minneapolis Clinic of Neurology, 4225 Golden Valley Road, Golden Valley, MN Tuesday, April 23: Understanding the immune system in MS Tuesday, May 7: Oral treatments for disease management in MS Thursday, June 13: Coping strategies, developing resilience Tuesday, July 9: Boost your cognitive efficiency For more information, contact the Schapiro Center for MS at 763-302-4199.

Industry partner programs The National MS Society partners with many companies to provide educational opportunities about multiple sclerosis. Details about these industry programs are provided for your information.

Has multiple sclerosis affected you or someone you care for? Sponsored by Acorda Therapeutics®, Inc.

Thursday, May 16, 6 p.m. Ray J’s American Grill, 9854 Norma Lane, Woodbury, MN Wednesday, May 22, 6 p.m. Bucca Di Beppo, 12650 Elm Creek Blvd., Maple Grove, MN Tuesday, May 28, 6 p.m. Amore Victoria Ristorante, 1601 W. Lake St., Minneapolis, MN 55408 Attend a free and interactive event featuring Dr. Gareth Parry, a leading MS expert, to learn more about a therapeutic treatment option for MS. Food will be provided. Space is limited, so reserve your spot today! Program is free. To register, call 800-397-8082 or visit LiveAmpyraEvent.com.

National Multiple Sclerosis Society

MINNESOTA

CLUBS

Social gatherings

GROUPS

Book clubs

Arrowhead region

CogniFitness

Apple Valley

Meeting monthly at regional restaurant Mary, 218-827-8327

Minneapolis

First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

Duluth Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Maple Grove Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Mahtomedi Fourth Tuesday of the month 6 p.m., Perkins Maplewood Judy, 651-488-4454

Minneapolis Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Roseville First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 612-874-9019 or Lisa, lhayesburt@comcast.net

Burnsville/Apple Valley Third Thursday of the month Noon, Perkins Restaurant, Apple Valley Mike, 952-898-2857

Forest Lake area Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

New Brighton/St. Anthony Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton Rick, 612-791-6473

New Ulm Second Monday of the month 11 a.m., Perkin’s Restaurant Sue, 507-359-4345

First Tuesday of the month 2 p.m., Turtle Bread Company Casey, 612-722-5548

For artists, crafters and writers with MS MS Art & Crafts Interest Group First Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville Donna, 612-280-0786

For care partners Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville Dan, 651-779-9435

Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MINNESOTA

St. Louis Park Care Partners

For GLBT

For people of color

Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall Bobbie, 651-223-9858

St. Paul GLBT (for GLBT living with MS)

Metro MS Group for People of Color

First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul Corbett, 651-603-2028

Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis Linda, 612-290-9515

For men

For people mildly affected by MS or recently diagnosed

Women Care Partners Third Saturday of the month 11 a.m., Baker’s Square, Maplewood Jenny, 763-862-0145

For couples Couples in their 20s and 30s Second Saturday of the month 1–3 p.m., Courage Center, Golden Valley Kim & Tony, 763-245-3945

Stillwater Couples Second Saturday of the month Noon, Courage St. Croix, Stillwater Dan & Jean, 651-779-9435

For deaf and hard of hearing Deaf MS Group Third Saturday of the month, 10 a.m., Wentworth Library, West St. Paul Colleen, ckaldundeafms@yahoo.com, 651-714-2314 v/caption-call

Metro Area It’s Just Breakfast (with the guys) First Saturday of the month 10 a.m., Famous Dave’s, Calhoun Square Second Wednesday of the month 10 a.m., restaurant varies Rick, 612-791-6473

For moms with young children Moms with Young Children First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina Jennifer, 952-412-1291

For primary-progressive MS Primary-progressive MS First Saturday of the month Noon, Fabulous Ferns, St. Paul Joia, 651-261-3633

Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie Lisa, 952-934-2296

South Metro Recently to Five Years Diagnosed Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington Carol, 612-310-0070

For professionals Let’s Lunch: Professionals Living with MS Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul Becky, 651-292-4193

National Multiple Sclerosis Society

MINNESOTA

For women

Burnsville/Apple Valley

Duluth

Maplewood Women’s Peer Support Group

First Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville Mike, 952-898-2857

First Tuesday of the month 11:30 a.m. (Bring a bag lunch) Bethany Baptist Church Bev, 218-624-1212

Cambridge

Excelsior/Minnetonka

Third Thursday of the month 7 p.m., Cambridge Medical Center Bob, 763-270-0678

Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior Denise, 952-474-2960

Second Thursday of the month 1 p.m., Gustavus Adolphus Lutheran Church Joan, 651-426-3220

General groups Albert Lea Second Monday of the month 7 p.m., Grace Lutheran Church Cindy, 507-461-3648

Alexandria Second Monday of the month 4:30 p.m., St. Mary’s Office Building (No meetings Dec. – Mar.) Kathryn, 320-762-2320

Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) (No meetings January or July) Carol, 952-884-2747

Brainerd First Thursday of the month 7 p.m., Access North Jasmine, 218-839-1774

Buffalo Third Monday of the month Noon, United Methodist Church Colleen, 763-682-2167

Canby Second Thursday every other month, April – Dec., 3:30 p.m., Sanford Canby Medical Center Peggy, 507-223-7277

Faribault

Cloquet

Fergus Falls

Fourth Monday of the month 3 p.m., Cloquet Gospel Tabernacle Karen, 218-464-7690

Second Wednesday of the month 11:30 a.m., United Church of Christ Connie, 218-736-7285

Chaska

Forest Lake area

Third Tuesday of the month 12:30 p.m., Chaska Library Mary, 952-556-5599

Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living Susan, at 651-464-1043

Coon Rapids North Suburban Second Wednesday of the month 6:30 p.m., Coon Rapids City Center Renee, 763-757-4650

Third Tuesday of the month 6 p.m., Buckham Memorial Library Kurt, 507-210-1853

Grand Rapids Second Thursday of the month 12:30 p.m., St. Joseph Church Sally, 218-326-1371

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MINNESOTA

Hibbing

Maple Grove

Redwood Falls/Belview

Last Thursday of the month 1 p.m., Open Door Church Corry, 218-262-1364

Second Saturday of the month 10 a.m., St. Joseph the Worker Church Diane, 763-425-8346

Third Thursday of the month 7:30 p.m., Redwood Area Hospital (No meetings Nov. – Feb.) Kathy, 507-641-2555

Hutchinson Second Monday of the month 6:45 p.m., Christ the King Lutheran Church Ann, 320-894-7896

Minneapolis

Inver Grove Heights/ West St. Paul

Monticello

First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH (No meetings Dec. – Feb.) LaDonna, 651-450-6230

Little Falls/Pierz First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls Rita, 320-632-5679

Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services Chuck, 605-582-2309

Mankato For more information, contact Jeff at 612-335-7951 or jeff. fisher@nmss.org.

Last Saturday of the month 10 a.m., Kingsley Commons Beth, 612-529-0651 Third Wednesday of the month 6 p.m., Monticello Hospital Jane, 763-295-8103

New Prague First Tuesday of the month 6:30 p.m., Mayo Health Center (No meetings Dec. – Feb.) Adele, 952-688-8068

Oakdale Third Saturday of the month 10:30 a.m., Oakdale Library Samantha, 651-735-0190

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital Laurie, 763-389-4225

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living Geri, 507-288-6255

Roseville Second Thursday of the month 6:45 p.m., Roseville City Hall Robin, 651-647-0809

Shoreview Second Wednesday of the month Noon, STEP Physical Therapy Mary Jo, 651-653-5844

Staples Second Thursday of the month 3:30 p.m., Lakewood Care Center (No meetings June – Aug.) Angela, 320-594-6377

St. Cloud, 20s and 30s Last Thursday of the month, 6:30 p.m., restaurant varies Dennis, 320-237-5447 or denj@charter.net

National Multiple Sclerosis Society

MINNESOTA

St. Cloud

Wayzata/Plymouth

Woodbury A.M.

Second Wednesday of the month 5 p.m., St. Cloud Public Library (No meetings June – Aug.) Betsy, 320-253-5421

First Thursday of the month 1 p.m., restaurant varies, Richie 763-670-9114

Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church Jeanine, 651-757-6152

St. Paul Care to Share

First Tuesday of the month 7 p.m., Bethesda Nursing Home (No meetings Jan. – Mar.) Teresa, 320-235-7499

Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

Willmar

Superior

Windom/Cottonwood County

Second Tuesday of the month 6 p.m., Superior Public Library Pam, 715-394-6958

Third Wednesday of the month 7 p.m., ALC Lutheran Church Lois, 507-831-3256

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury Jeanine, 651-757-6152

Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center Cindy, 507-461-3648

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MINNESOTA

Exercise Studies show physical activity not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Water exercise

Inver Grove Heights

St. Cloud

Albert Lea

The Grove Amy, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options.

Family YMCA Celeste, 320-253-2664 M/W/F, 9:30–10:30 a.m.

Family YMCA Susie, 507-373-8228 T/W/R, 1–1:45 p.m.

Burnsville Minnesota Valley YMCA Lori, 952-435-9022 T/R, 9–9:45 a.m.

Detroit Lakes

Mankato Mankato Family YMCA Joy, 507-345-9813 W, 5–6 p.m.

Detroit Lakes Community & Cultural Center Leslie, 218-844-4221 T/R, 9–10 a.m.

Marshall

Eden Prairie

New Hope

Marshall Area YMCA Cindy, 507-532-9622 M, 4:30–6 p.m.

Community Center Beth, 952-949-8447 M/W, 10:30–11:30 a.m.

Northwest YMCA Pauline, 763-592-5518 T/R, 11 a.m.–noon

Elk River

Osakis

Family YMCA Jennifer, 612-618-9445 T/R, 11 a.m.

Club Galeon Tony, 320-859-6280 T/R, 11 a.m.

Grand Rapids

Perham

Itasca County Family YMCA Sue, 218-327-1161 M/W/F, 9:30–10:25 a.m.

Community Center Marie, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11–11:45 a.m.

St. Paul Jewish Community Center Stacey, 651-255-4762 T/R, 9:50–10:35 a.m.

Stillwater Courage St. Croix Joanie, 651-439-8283 T/R, 10–11 a.m.

Virginia Mesabi Family YMCA Jana, 218-749-8020 T/R, 1–2 p.m.

Waconia Safari Island Sara, 952-442-0695 M/W/F, 8:30 a.m.

Willmar Kandiyohi County Area YMCA Christy, 320-222-9622 Shallow water M-F, 8:30–9:30 a.m. Deep water M/W/F, 9:30–10:30 a.m. Shallow/deep combo M/W, 5:30–6:30 p.m. National Multiple Sclerosis Society

MINNESOTA

Woodbury

Yoga

Stillwater

Southeast Area YMCA Lisa, 651-739-6589 T, 11:15 a.m.–noon.

Bemidji

Courage St. Croix Joanie, 651-439-8283 W, 10 a.m.; R, 6:30–7:30 p.m.

Feldenkrais lessons

Dionne’s OM Yoga Studio Dionne, 218-766-9262 T, 8-9 a.m.; S, 9:30–10:30 a.m.

Feldenkrais Method is a form of exercise that aims to reduce pain in movement and promote general well-being.

Duluth

St. Louis Park

Eden Prairie

Lennox Community Center Linda, 952-928-6419 R, 6:35–7:35 p.m.; M, 7–8 p.m.

Tai Chi Burnsville Diamondhead Education Center Linda, 651-686-0335 W, 11 a.m.–noon

Inver Grove Heights The Grove Amy, 651-554-3420 W, 10 a.m.; F, 9:30 a.m.

Mankato V.I.N.E. Summit Center, Karen, 507-345-5262 T, 3:30–4:30 p.m.

St. Paul Fairview MS Achievement Center Casey, 612-672-2815 T/F, 9-10 a.m.

Benedictine Health Center Jarod, 218-733-2254 W, 10:30 a.m. Eden Prairie Community Center Beth, 952-949-8447 F, 10:30–11:15 a.m.

Group exercise Hutchinson Physical Rehabilitation Center Dave, 320-484-4414 M/W, 9:30-10:30 a.m.

North Oaks Village Center Megan, 651-766-0080 M/W, 11–11:45 a.m.

Grand Rapids MN United Methodist Church Geri, 218-259-9804 T, Noon

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Mankato Old Main Village Karen, 507-345-5262 T/R, 9 a.m.

Minneapolis Kingsley Commons Mary, 651-690-1850 T/F, 10:30 a.m. Uptown YWCA Lisa, 612-822-3504 T/F, Noon

St. Paul Fairview MS Achievement Center Casey, 612-672-2815 T, 9-10 a.m.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

NORTH DAKOTA

North Dakota programs Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

MS research symposium Saturday, May 18, 9:30–11:45 a.m. Doublewood Inn and Conference Center, 1400 E. Interchange Ave., Bismarck, ND Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Susan Scarberry, medical director at the Sanford MS Center in Fargo, N.D. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and continental breakfast will be from 9:30 to 10 a.m. Program is free. The registration deadline is May 13.

Minimize your risk of falls Wednesday, May 15, 7 p.m. Medcenter Outpatient Building, 414 N. Seventh St., Bismarck Due to mobility issues and other symptoms, people with MS are at a significant risk for falls. Although completely eliminating falls may be unrealistic, many of them occur under predictable circumstances. Most falls can be prevented by identifying key risk factors and taking steps to minimize or eliminate them. Join us for this informative DVD program and guest speaker Annie McKittrick Crary, O.T.R./C.H.T. To RSVP, contact Judy at 701-226-0199; or Susan at 605-988-5200 or susan.peters@nmss.org.

National Multiple Sclerosis Society

NORTH DAKOTA

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

NORTH DAKOTA

Clubs and groups Join an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. All programs are free unless otherwise noted. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

Bismarck, Mandan Third Wednesday of the month 7 p.m., Medcenter One Outpatient Services Center (enter door 20) Judy, 701-220-4181

Bottineau First Tuesday of the month 4:30 p.m., St. Andrews Hospital Amy, 701-228-3665

Dickinson Second Tuesday of the month 1:15 p.m., St. Luke’s Home Tom, 701-225-5103

Fargo/Moorhead Last Thursday of the month Noon, Fryn Pan Restaurant DeeAnne, 701-361-6915

Fargo (for newly diagnosed) First Thursday of the month 6 p.m., restaurant location varies monthly Jennifer, 218-329-0805

Fargo/Moorhead Care Partner Group Third Tuesday of the month 7 p.m., Hope Lutheran Church Vonda, 701-866-9373

Grand Forks Second Thursday of the month 7 p.m., North Dakota Association for the Disabled Lee, 701-787-5164

Jamestown Second Tuesday of the month 6:30 p.m., St. Paul’s United Methodist Church (No meetings June – Aug.) Denise, 701-769-2529

Minot Second Wednesday of the month 7 p.m., Trinity St. Joseph’s Hospital Donna, 701-837-0824

Williston Second Thursday of the month 6:30 p.m., Gramma Sharon’s Restaurant LaWanda, 701-570-0194

Exercise Studies show physical activity not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Bismarck Yoga and You Gentle Yoga M/W/F, 11 a.m.

Yoga and You Adaptive Yoga W/S, 9 a.m. Brenda, 701-255-8499

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

National Multiple Sclerosis Society

SOUTH DAKOTA

South Dakota programs Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

SOUTH DAKOTA

Aberdeen

Huron

Spearfish

Second Saturday of the month 11 a.m., Mother Joseph Mano Retirement Community (No meetings June – Aug.) Cathie, 605-225-0724

Second Thursday of the month Time and location varies Brenda, 605-354-2783

Second Friday of the month 10 a.m., Spearfish Recreation Center Liz, 605-644-8921

Aberdeen SAMS First and third Saturday of the month 10 a.m., First United Methodist Church Lois, 605-225-7190

Brookings First Monday of the month 7 p.m., Brookings Hospital (No meetings June – Aug.) Jon, 605-691-1355

Mitchell Second Saturday of the month 10 a.m., Zion Lutheran Church Brian, 605-770-7097

Rapid City Lunch Bunch Time and restaurant varies Jolene, 605-341-7622

Sioux Falls Third Friday of the month Times vary, National MS Society office Susan, 605-988-5200

Watertown Fourth Tuesday of the month 7 p.m., Lake Area Tech Institute Tawnya, 605-881-3171 Suzanne, 605-520-5596

Winner Third Monday of the month 6:30 p.m., United Methodist Church Doris, 605-835-8945

National Multiple Sclerosis Society

SOUTH DAKOTA

Exercise Studies show physical activity not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Land-based strengthening

Water exercise

Dakota Dunes

Sioux Falls

Center for Neurosciences, Orthopedics and Spine Janet, 605-217-2770 Land-based strengthening M/W, 5:30 p.m.

Dow Rummel Village Wellness Center Melissa, 605-575-0193 Water walking T, 9–9:30 a.m.; R, 8–8:30 a.m. Neuro fit T/R, 2:30–3 p.m. Aqua Chi M, 8:30–9:15 a.m. Adaptive yoga R, 6:30–7:30 p.m.

Sioux Falls Accessible Wellness Program Kevin, 605-328-1870 Accessible equipment, fitness trainers

Yoga

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Rapid City Fitness Plus Laura, 605-721-5959  Adaptive yoga W, 10:30 a.m.; S, 10:45 a.m.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

ANYWHERE

Anywhere programs Children & Teens with MS Children and Teens with MS is a support and education network for children and teens with MS and their families. For more information, visit nationalMSsociety.org and search “Pediatric MS Support Group.” To register for the network, call 800-344-4867 or email childhoodms@nmss.org.

Knowledge is Power Knowledge is Power is a free, at-home educational series for people who are newly diagnosed and their family members. The multi-week program provides literature with up-to-date information about multiple sclerosis. To learn more or participate, call 800-582-5296 (option 1).

Person-to-Person The MS Person-to-Person program pairs people with multiple sclerosis with others living with the disease or with people who know a great deal about it. Person-to-Person can also connect care partners with others who can relate to their experiences. Enjoy a one-on-one connection — over the phone, email or in person — with someone who understands the challenges of the disease. To learn more or participate, contact Connie at 612-335-7964 or connie.gundersonwarner@nmss.org.

Midwest Teleconference Series Each month, an MS specialist provides up-to-date information on a specific topic in a one-hour teleconference format. Empower yourself with education from the comfort of your own home for free. To learn more or register, visit MSsociety.org and search “Midwest Teleconference Series;” or call 800-582-5296 (option 1). Monday, May 13, 2013, 7–8 p.m. C.T. “It’s not just in your head,” with Dr. Julie Bobholz, Ph.D., neuropsychologist, Aurora BayCare Clinic Monday, June 10, 7–8 p.m. C.T. “My family has MS” with Dr. Rosalind Kalb, National MS Society Monday, July 8, 2013, 7–8 p.m. C.T. “Wake up!” with Douglas Schell, MS-certified nurse, MidAmerica Neuroscience Institute This program is supported by educational grants from

National Multiple Sclerosis Society

ANYWHERE

MS Connection

MS KILLS CONNECTION CONNECTION KILLS MS

Make meaningful connections and access the most up-to-date resources. Multiple sclerosis destroys connections. It disconnects the mind from the body and people from each other. But what if we could defy this disease with the very thing it seeks to destroy: connections. Would we share more knowledge? More questions? More answers? More hope? Maybe, by connecting enough small victories, we could win some really big ones.

MS Connection — a new online community that’s all about making meaningful connections when, where and how you want — provides easy access to the best content and resources the MS community can bring you. You’ll learn about the topics that are most important to you, connect with people you want to connect with and have expert MS information right at your fingertips. Visit MSconnection.org, complete your community profile, find new connections, join and start groups and discussions and more. If you have any questions, please contact us at community@nmss.org.

MS Learn Online MS Learn Online, a Society internet program, is a convenient way to learn about multiple sclerosis. View new or archived programs on a wide variety of topics such as information for people newly diagnosed, basic facts about MS, symptom management, employment, intimacy, care partners, progressive MS and more. Registration is not required. To view a listing of topics and links, visit MSsociety.org and search “MS Learn Online.”

My Life, My MS, My Decisions This series of online classes will help you boost your decision-making power. Sometimes it can feel like other people are making your decisions for you — these classes keep you in the driver’s seat. For more information, visit nationalMSsociety.org and search “My Life, My MS, My Decisions,” or call 800-344-4867 (option 1).

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

ANYWHERE

MS Next Step® This multi-media program (DVDs, PDFs, booklets, etc.) is designed to answer questions that are commonly asked immediately following a diagnosis. If you’re just beginning your search for information about multiple sclerosis; wondering how the diagnosis may affect you; or considering issues like disclosure, treatment strategies and working with your health-care team, MS Next Step® could be an invaluable resource. If you’re newly diagnosed and would like to receive a copy of MS Next Step®, call 800-344-4867 (option 1) or email contactusnmss@nmss.org.

You CAN! You CAN! is an online resource brought to you with the help of Can Do Multiple Sclerosis (formerly The Heuga Center for Multiple Sclerosis) as a reminder that despite the challenges MS may bring, you have a whole life to live. Can Do Multiple Sclerosis teaches people with MS to focus on what they can do instead of what they cannot, empowering them to live fuller, more productive lives. For more information, visit nationalMSsociety.org and search “You Can!”

National Multiple Sclerosis Society

RESOURCES AND SERVICES

Resources and financial assistance The National MS Society addresses the challenges of each person whose life is affected by multiple sclerosis and helps them stay independent and connected. The services and financial assistance programs listed below are available at any time to any person with a clinical diagnosis of MS who’s registered with the Upper Midwest Chapter. For more information or to request an application for the services below, call 800-582-5296 (option 1).

Resources MS Navigators® Contact an Upper Midwest Chapter MS Navigator® — social workers who can help guide you through the many obstacles that can result from an MS diagnosis. This includes understanding health insurance; finding affordable, accessible housing; guiding you through the process of applying for Social Security benefits; and more. Navigators will support you from diagnosis through all the various changes that occur as you move forward living with MS.

Lending Library The National MS Society provides access to accurate, current and comprehensive information for people with MS, for free! Browse books, videos, DVDs and audio recordings. We mail any library items you choose. Even returning your library materials is easy; we prepay the postage! To view and request items in the Lending Library, visit MSsociety.org and search “Lending Library.” If you have questions about the Lending Library, please call 800-582-5296 (option 1).

Equipment loan program The Society provides short-term loans for various types of medical equipment and devices. Try out equipment before making an important purchase or simply borrow equipment to address a temporary need related to the unpredictable nature of MS. Equipment and devices include (but are not limited to): manual and power wheelchairs, hospital beds, patient lifts, walkers and scooters.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

RESOURCES AND SERVICES

MS Classifieds MS Classifieds is a virtual marketplace to buy, sell and donate mobility and assistive devices. The National MS Society, Upper Midwest Chapter does not endorse or guarantee any products or services listed on this website. Visit MSClassifieds.org to place your item for sale or to donate. If you’re interested in acquiring an item on MSClassifieds.org, you must contact the seller directly.

Phone consultations Phone consultations are free and by appointment only. Consultations include family attorney consultations; employment consultations; tips on interviewing, resumes and more; employment discrimination/private disability consultations; and financial planning consultations. Call 612-335-7938 to schedule an appointment. Newly diagnosed consultations: Call 612-335-7938 to schedule a face-to-face or phone consultation with an MS Navigator®. Some evening and Saturday times are available.

Financial assistance Living with multiple sclerosis can mean unexpected and ongoing financial difficulties for you and your family. The National MS Society, Upper Midwest Chapter is here to make sure that doesn’t stop you from moving forward. We provide financial grants that can assist with securing medical equipment, daily living aids, funds for household chores, counseling, emergency assistance and more.

How it works An MS Navigator® will talk you through the process and send you an application and/or referrals for eligible aids or service providers in your area. They’ll also help you evaluate other options you may have. We can help cover the cost of products, such as: n Scooters, n Cooling

vests, air conditioners and other cooling aids;

n Ramps,

grab bars, bath safety products and other home modifications;

n Auto

modifications such as hand controls and lifts;

n Tools

and devices to simplify day-to-day tasks;

n Exercise n Much

power chairs, walkers and other mobility devices;

equipment; and

more.

National Multiple Sclerosis Society

RESOURCES AND SERVICES

We can also help with the cost of services that make life easier, such as: n Mental

health counseling;

n Transportation n Home

assessments to increase safety and accessibility;

n Respite n Yard

to and from medical appointments;

care services (a break for unpaid caregivers);

maintenance, snow removal and light housekeeping;

n Exercise

and wellness classes and opportunities;

n College

scholarships for people with MS and their children; and

n Many

more.

To learn more, contact us at 800-582-5296 or contactus@nmss.org, or visit the Financial Assistance Web pages at MSsociety.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ MSsociety.org

Evelyn, diagnosed in 2008

Walk to create a world free of multiple sclerosis Be Inspired. Get connected. Walk MS. Walk MS is an experience unlike any other — a day to come together, to celebrate the progress we’ve made and to show the power of our connections. Join other people in your community to raise critical funds to support cutting-edge research and life-changing programs. Invite friends, family and neighbors to one of 33 walks in the Upper Midwest Chapter area this April and May. Can’t make it? Register as a “virtual walker” and help end MS forever, no matter where you are. Register & Start fundraising today: myMSwalk.org or 800-582-5296

Tracey, diagnosed in 2005.

Investing now is a promising way to ensure a secure financial future. Why not invest in a future free from MS at the same time? Through a charitable gift annuity with the National MS Society, you can make a gift that pays you a fixed amount each year for life and offers great tax benefits.

Join the Movement®

Invest in your future. Invest in ours.

Make a charitable gift annuity to the Society today. For more information, contact Jennifer at 612-335-7965 or jennifer.mcgee@nmss.org.