Summer 2015 Pacific South Coast Chapter
MS Connection Newsletter
ARE YOU READY FOR A new CHALLENGE? Challenge WALK MS (PAGE 4) & Bike MS (Page 5) CAN TAKE YOU THERE.
INSIDE 06 THIS ISSUE
advocacy updates
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11
14
mark your calendars for upcoming events
volunteer leadership team
scholarship recipients
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MS connection: Summer 2015
A NOTE FROM THE CHAPTER PRESIDENT & BOARD CHAIR
something for everyone Welcome to the Summer issue of the MS Connection. As you can see on the cover and on pages 4 and 5, we’re busy getting participants registered for our 50 mile Challenge Walk, as well as our Bike MS Bay to Bay Tour. Sign up early to get your fundraising started!
Baker & Olive are offering a special edition 750 ml bottle of Cobrancosa Extra Virgin Olive Oil to raise awareness and funding for multiple sclerosis. They will be donating 50% of the proceeds for every bottle sold in the month of June to the chapter. Bottles are available for purchase at the Carmel Valley and Encinitas stores and online at BakerandOlive.com.
Connect with us online: MSpacific.org
In this issue, you will meet our newest board members; Jim Ponder, Nick Locke and Annaliese Train (page 3). You will also learn about our Public Policy Conference (page 6), calendar of events (page 7), support groups (page 8-9), health and wellness (page 10), chapter volunteer opportunities (page 11), scholarship programs (pages 14-15), MS research (page 16) and heat management (page 20). Have you heard about our newest event, Bubbles and Brunch to End MS? The event was a big success last year and we hope to continue that success this year (page 12)! The recent Tour of Champions and Golf MS events were also a big hit (page 13). Read about our recent Walk MS events (page 18) as well as our newest and messiest event, Muckfest MS (page 19). There you have it. This issue, much like our chapter, has something for everyone who wants to help achieve a world free of multiple sclerosis! Cheers,
Like us: facebook.com/MSpacific Watch us: youtube.com/MSpacific
Richard V. Israel
Cynthia Perazzo
Chapter President
Chair, Board of Trustees
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nationalmssociety.org | 1-800-344-4867
Living With MS
HIGHLIGHT ON NEW BOARD MEMBERS The Pacific South Coast Chapter welcomes three new members to the Board of Trustees – Annaliese Train, Jim Ponder and Nick Locke.
for his leadership of the annual Grape Day 5k Run, Walk, Stroll benefiting the Society (find out more: www.grapeday5k.com).
Annaliese is a Real Estate Agent in Newport Beach with HOM GROUP Sotheby’s International Realty. In 2013, Annaliese co-sponsored a Do-it-Yourself MS golf event at the Presidio in San Francisco raising $8,000 for the Society and has participated in the Northern California Chapter’s Walk MS events for two years.
Nick has served as the President & CEO of Madiba, Inc. in the Orange County area for the past 17 years. In addition to regularly attending the MS Dinner Auction with his wife, Cindy, Nick has supported Cindy’s incredible volunteer leadership of the chapter’s newest event, Bubbles and Brunch to End MS!
Jim is CEO of Turnkey Strategic Relations, where he interacts with amazing companies led by forward thinking individuals who focus on quality, results and growth. Jim has participated in Bike MS for several years, and is best known
National Multiple Sclerosis Society Pacific South Coast Chapter 12121 Scripps Summit Drive, Suite 190 San Diego, CA 92131 1-800-344-4867 Board Chair: Cynthia Perazzo Chapter President: Richard V. Israel Editor & Design: Rosie Chuong Associate Editor: Leslie Roach Associate Designer: Sheri Yee © 2015 National Multiple Sclerosis Society, Pacific South Coast Chapter
Our newest members are well connected supporters of our chapter, who are going to be great volunteer leaders. We are extremely pleased to have them represent the Pacific South Coast Chapter!
Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.
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MS connection: Summer 2015
Challenge walk ms
for me & my dad My name is Susan O’Connor and I was diagnosed with MS in 1999 at age 30. I’m very fortunate to say I’ve been living well, leading a normal, active lifestyle and being a mom to two young daughters, Sabrina (11) and Tabitha (6). Although MS has been “good” to me, I have experienced devastation along my journey. Just five months after my diagnosis, I learned I would share my unpredictable future with one of the most important people in my life -- my father. Dad and I lived with MS together for six years when he passed away after succumbing to pneumonia in January 2007. Dad’s untimely passing gave me a new perspective on life with MS and helped fuel my passion to make a difference. I formed TEAM DAD at Walk MS, became an advocate for my MS drug manufacturer, joined the National MS Society’s Educational Scholarship Committee, and more. My long MS journey was about to peak with my most personal challenge yet... Challenge Walk MS 2014. Last summer, my husband Chuck and I heard about Challenge Walk MS; a three day, 50 mile walk from Carlsbad to San Diego. My passion to help end MS by walking 50 miles was lurching me forward…I must do it THIS YEAR! I thought to myself, “I’m well today, I have the strength, courage and focus this year; I may not be so lucky next year.” I began fundraising in June and with lots of enthusiasm,
motivation and hope, I exceeded my goal by almost $2,000! I was proud and humbled by the outpouring of my community and support. Before I knew it, I was in San Diego to pursue a challenge that I thought would be an impossible feat a year ago. After crossing the finish line, I was hooked! I immediately signed on for Challenge Walk MS 2015! Meeting inspirational people, hearing their stories, and helping others to lead inspirational lives is why I choose to return year after year. I will continue to hope and fundraise for a future free of MS.
Southern California 2015
Challenge Walk MS September 25 - 27, 2015 Learn more and register today at myMSchallenge.com!
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nationalmssociety.org | 1-800-344-4867
bike ms
I Ride With MS program Meet David, I Ride with MS participant, which recognizes Bike MS cyclists who are also living with multiple sclerosis. What compelled you to join I Ride With MS? Having just been diagnosed in April 2013, I thought it would be good to gather as much information and support as possible. Bike MS 2013 was my first organized bike ride. Why do you ride? For my Mom, Jane Whitford who died of MS in 1984 after suffering for over 20 years and at a time when there were no treatments available. For my friend Jacob Hamilton who was diagnosed with PPMS at the age of 18. And, finally, for myself and the millions of others who have MS. I am fortunate to have retained strength in my legs despite varying levels of numbness. I want to stay as active as possible for as long as possible and don’t want to look back and say, “I wish I had...”
Bay to Bay Tour 2015
Why would you encourage others to join? I was surprised to discover how few (less than 50 during 2013 and less than 60 for 2014) riders there were living with MS. I would encourage anyone with MS to participate; at least on some level. There is support for everyone at every level of ability. It is a ‘leap of faith’ but there is no failure. Bike MS: Bay to Bay Tour will take place on October 17 & 18, 2015. Register today at biketofinishMS.com or call 800.486.6762.
What was your favorite part about Bike MS 2014? It is unbelievable how well organized, supported and safe the ride is. There are so many thoughtful touches. What really stands out are the volunteers who encourage riders, guide us on the route and make sure we have everything; food, drinks, medical and mechanical services and so much more.
David
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MS connection: Summer 2015
Advocacy updates The 24th Annual Public Policy Conference took place in Washington D.C. on March 9-11. Over 300 MS Activists conducted nearly 400 legislative visits with U.S. Senators, Representatives and their staff members to discuss the following important issues: • Advancing Research for Neurological Diseases Act (S. 849/H.R. 292)/ 21st Century Cures Initiative; • Ensuring Access to Quality Complex Rehabilitation Technology Act (H.R.1516) • Funding for MS Research through the Congressionally Directed Medical Research Program (CDMRP) and the National Institutes of Health (NIH). MS researchers joined Society leaders and activists on key visits to provide the scientific perspective and the value and promise of their research, illustrating the need to support significant issues.
transparency and network adequacy-- including controlling out of pocket costs for prescription drugs.
At the state level, twenty-seven State Action Days were scheduled in 2015 and MS activists’ impact was felt across the country. Progress was made on legislative priorities, bills were signed into law by Governors, and important personal connections to MS were identified.
We also held the Advocacy 101 webinar in the month of May to engage more people in advocacy and teach them how they can spark direct action and influence their elected officials to make real policy change. A recording of this webinar is available at: https://www.youtube.com/ watch?v=nfIqIg5MQ4A.
In California, on the 5th Anniversary of the Affordable Care Act, 32 MS Activists advocated for greater health care reimbursement cost,
For more information, please contact Aarushi Malhotra at 714.689.9613 or email aarushi.malhotra@nmss.org.
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nationalmssociety.org | 1-800-344-4867
MARK YOUR CALENDARS 2015 Orange County MS Symposium Saturday, July 11, 8:30am – 12:30pm Irvine Marriott, Irvine, CA
Listen to speakers from the University of California, Irvine present on new therapies and local research. Further details regarding this program will be included in the invite to be mailed in June. To register, please call 1-800-344-4867 (1-800-FIGHT-MS) and press “1” or visit http://calendar.mspacific.org and click on July 11, 2015.
Scripps Lecture Series
Scripps Memorial Hospital La Jolla The Schaetzel Center, Great Hall Join neurologist Charles Smith, MD in partnership with the chapter for a series of seminars that will offer valuable information to individuals who want to better manage their MS symptoms and improve quality of life. Further details regarding this program will be included in the invite to be mailed in July. Exercise & Nutrition Wednesday August 12, 2015 6:30 -8:30pm MS & Your Emotions Wednesday September 2, 2015 6:30 -8:30pm
Moving Forward: Program for the Newly Diagnosed
Saturday, August 15, 8:30 am – 12:00 pm Doubletree Hotel Mission Valley, San Diego If you have been diagnosed with MS in the last three years, this is a program designed for you.
Learn about treatment options, the emotional and physical aspects of MS from community experts in the respective fields. This is also a great opportunity to meet others living with a new diagnosis. To register, please call 1-800-344-4867 (1-800-FIGHT-MS) and press “1” or visit http://calendar.mspacific.org and click on August 15, 2015. TELELEARNING SERIES: This series provides information and guidance on current matters essential to living one’s best life with MS. The program offers several different topics annually. Each free telelearning will feature topic-area expert(s) by phone with online presentations and Q&A session. Presenters are subject to change. Register for our Telelearning Series by calling 1-800-3444867 (800-FIGHT-MS) and Press “1.” The next topics are: Gender Differences in MS: Men and women are affected by MS differently – join Dr. Barbara Giesser and Dr. Rhonda Voskuhl of UCLA, to learn why and how those differences are important. Tuesday, July 21, 4-5pm Thursday, July 23, 7-8pm Preparing For MS Doctor Visits: Learn tips to prepare for successful visits with your doctor. Kathy Costello, MSCN, Associate Vice President of Clinical Care, National MS Society shares ideas on how to build a true partnership with your provider. Tuesday, September 15, 4-5pm Thursday, September 17, 7-8pm
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If you would like more information about support groups in your area, call 1-800-344-4867, and press ‘1’ or contact a Listed leader.
CONNECTION GROUPS We have long recognized our responsibility to respond to the emotional needs and challenges that MS imposes on individuals and their families. Experience and research has revealed that group support is an effective strategy to help people face matters related to change and loss, achieve personal insight, foster new hope, build self-esteem, and facilitate behavioral changes. We offer 28 Connection Groups covering an array of topics. These connection groups bring together people who share a common life experience for support, education and mutual aid.
ORANGE COUNTY
Anaheim: En Español Familiares y amigos bienvenidos. La segunda martes de cada mes. Anaheim Adventist Church 900 S. Sunkist St, 6:30 - 8pm Rosa Ferreras 714-758-0829 rosam58@me.com Susana Pérez 714-235-7570 sueperezg@yahoo.com Brea 1st Friday, 10:00am - 12:00pm Jim Langdon 714-392-2052 langdonjames1942@gmail.com Lisa Seifert 714-826-6393 mcbryde99@hotmail.com Corona Del Mar: Minimal Symptoms/Newly Diagnosed 2nd Wednesday, 10:30am-12:30pm Sherri Brash 714-846-2064 Sherri1022@gmail.com Dana Point: Early MS 4th Thursday, 10am - 12pm Jerry Dowd 949-584-4619 gtdowd@gmail.com Susan Watson 949-493-1299 susanwatson2010@gmail.com Fullerton: Christian MS Support Group 2nd Tuesday, 7:00pm - 8:30pm Sara Minton 714-773-4332 irvinedrama@yahoo.com
Huntington Beach: Minimal Symptoms/Newly Diagnosed 2nd Wednesday, 10am - 12pm Jeanne Archibald 714-842-7198 novajeanne2@yahoo.com Priscilla Wolz 714-846-6526 pfwolz@aol.com Huntington Beach: Living with MS 1st Tuesday, 6:00 - 8:00pm Laurie Cable 714-969-8298 lderble@aol.com Irvine: Walkers & Rollers 2nd Wednesday, 10am - 12pm Bonnie Richmond 949-677-4272 sambon@pacbell.net Mike Milne 949-322-3156 mmilne93@gmail.com Irvine: Survive & Thrive Men’s Group Only 3rd Tuesday, 11:00am-12:30pm Bill Bisch 949-218-5020 bisch@cox.net Bob Verbarg 714-466-0724 bverbarg@cox.net Laguna Hills 1st Tuesday, 10am - 12pm Francine Grasso 949-278-6935 frannydo@gmail.com Lake Forest: MS with Christ 3rd Monday, 6:30 - 8:00pm Cathy Varela 949-842-2296 David Corich 949-470-9020
Midway City 1st & 3rd Tuesdays 9:30am - 11:30am Pat Howard 714-968-0277 Linda Logan 714-374-0430 lindajohnson6735@yahoo.com Carolyn Cassell 714-846-0598 carolyncassell7@yahoo.com Mission Viejo: Early MS 2nd Wednesday, 6:30 - 8pm Jerry Dowd 949-584-4619 gtdowd@gmail.com Susan Watson 949-493-1299 susanwatson2010@gmail.com Newport Beach 3rd Sunday, 2 - 4pm Harriet Pavidis 714-839-5529 hap.bruce@aol.com Santa Ana: Man to Man 1st Wednesday, 10am-12pm Jeffrey Blattner 714-472-0904 jbblattner@gmail.com Stanton 1st Tuesday, 12:30 - 2:30pm Rosa Ferreras 714-758-0829 rosam58@me.com Yorba Linda: Family & Friends Welcome 2nd Monday & 4th Friday, 10:00am - 12:00pm Kathy Kelby 714-525-0686 kkacacia@aol.com Rob Lammers 714-528-8404 robert.retired@hotmail.com
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nationalmssociety.org | 1-800-344-4867
SAN DIEGO
Chula Vista St. Marks Lutheran Church 850 Hilltop Dr. 3rd Wednesday, 11am - 1pm Adriana Flores 619-656-8098 font.ka@gmail.com
San Diego: I Can’t Remember Group National MS Society 12121 Scripps Summit Drive 1st Wednesday, 11am - 12:30pm Carol Rohan 858-755-2440 csrohan@crohan.com
Encinitas San Diego County Credit Union Community Room 501 North El Camino Real First Friday, 6 - 8pm Melinda Brizendine 760-944-4549 melindabrizendine@gmail.com
San Diego (Clairemont/La Jolla) Denny’s Restaurant 4280 Clairemont Mesa Blvd. 1st Friday, 10:30 - 12:30pm Alicia Ring 858-456-8766/ 858-229-6600 aring24@san.rr.com
Escondido Joslyn Senior Center, Room 5 210 Park Avenue 3rd Wednesday, 1 - 3pm Michele Easterling 760-805-6390 m.easterling68@gmail.com
San Diego: Men’s Group Kaiser Education Center San Diego 10990 San Diego Mission Road 1st Tuesday, 6:00pm Mike Kolender 858-274-7114 mdkolender@aol.com Marcus Brown 619-248-2667 marcusib@yahoo.com
Escondido: Christian Group HopeKeepers Escondido 4th Saturday, 11am - 1pm Cross Connection Church 1675 Seven Oakes Rd. Room 4 Jim Johnston 619-933-6523 hopekeeperjim@gmail.com Oceanside Oceanside Library 3861 Mission Avenue 2nd Wednesday, 12 - 2pm Juanita Hamilton 760-754-1911 juanita.h@cox.net Ramona 2nd Tuesday, 11am - 12pm Van Reeder 760-789-9129
San Diego (Mid-City) Kaiser Education Center San Diego 10990 San Diego Mission Road 4th Monday, 2:00 - 3:30pm Jane Schnabel 619-758-9470 jane.schnabel@sbcglobal.net Linda Knapp 858-273-7835 chemobrain@san.rr.com
Meet a Connection Group Leader: sherri brash
Spring Valley New Seasons Church 2300 Bancroft Drive 2nd Saturday, 12:30 - 2pm Angela Kretschmar 619-303-7806 gela0726@gmail.com
professionally-led CONNECTION groups Where Do I Go From Here... A Group For Sharing & Learning 2nd Tuesday of Every Month 10:00am - 12:00pm Facilitator: Debbie Hornstein, MSW Neighborhood Community Ctr. 714-689-9613 Women’s Caregiver Group 2nd Wednesday of Every Month 6:30 - 8:00pm Facilitator: Deborah LeFevre, MFT 714-689-9613 National MS Society Santa Ana Office 1221 E Dyer Road, Suite 140 Santa Ana, CA 92705
Sherri was born and raised in San Pedro. After attending nursing school and living in Chicago for 11 years, she returned to sunny Huntington Beach with her husband and two children. While her kids were growing up, she worked part time and was active in PTA. In 2000, when her youngest child could drive she became an MS Self Help group leader and started volunteering for MS events in Orange County. She hopes to continue to support the Pacific South Coast Chapter for many years to come.
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To attend any of the listed classes, a waiver is required. Please contact 1-800-344-4867 to request a waiver today.
HEALTH & WELLNESS CLASSES yoga
Aquatics
Costa Mesa Yoga Works 1835 Newport Blvd, #A208 Mondays, 1:00 - 2:00pm
Carlsbad: Indoor Waterworks Aquatics 2704 Gateway Road Tues & Thurs 11:45am - 12:45pm
Dana Point Dana Point Community Center 34052 Del Obispo Road Wednesdays, 8:00 - 9:15am Fullerton Friends in Christ Lutheran Church 2311 E. Chapman Avenue Wednesdays, 10:30 - 11:30am Huntington Beach Yoga Works 301 Main Street Wednesdays, 1:00 - 2:00pm Santa Ana Goodwill Fitness Center 1601 E. St. Andrew Place Fridays, 9:30-10:30am San Diego Addie’s Personal Training Studio 4440 Ingraham St. Sundays, 10-11am $5 per session
Balance & strength Training
La Jolla Ability Rehab Specialists 737 Pearl St, #108 1st, 2nd, 3rd Tuesdays, 6 - 6:45pm Costa Mesa Healthy Balance 1599 Superior Avenue, Suite B Thursdays, 10:30 - 11:30am
Chula Vista: Outdoor Loma Verde Pool 1420 Loma Lane Thursdays, 12 - 1pm El Cajon: Outdoor/Indoor St. Madeline Sophie’s Center 2119 East Madison Avenue Mon, Wed & Fri 11:30am - 12:30pm Irvine: Indoor Arthritis Foundation Approved Class Waterworks Aquatics 25 Waterworks Way Tues & Thurs 10:30 - 11:15am
A current class participant says, “This class is, by far, the best and most fun exercise class that I have ever taken! Chair Zumba encompasses aerobic exercise, weights and complete upper body movements, all choreographed to great music and it’s all done in a chair. Don’t miss
trying this fabulous class!”
in your neighborhood Carlsbad: Peace, Love, and Yoga 2588 El Camino Real, Suite O Mon. - Fri. 9am - 4:30pm Fee based Class. For more info please call 760-689-2272 or email ms@juliachenyoga.com La Jolla: Yoga Scripps Memorial Hospital 9888 Genesee Avenue Thursdays, 9 - 10am $10 monthly fee Cardiac Rehab 858-626-6493 San Diego: MS FITT Addie’s Personal Training Studio 4440 Ingraham Street Fee-based class. Call 858-483-2711 for more information. San Diego: Pilates Comprehensive Therapy Service Inc. 5677 Oberlin Dr. Suite 106 Mandy Johnston 858-457-8419 $10 per class Fullerton: Indoor Aquatics North Orange County YMCA 2000 Youth Way Mon, Wed. & Fri,. 9 - 10am $6 per session Santa Ana: Chair Zumba Goodwill Fitness Center Tues. & Thur. 11am - 12pm $10 per session. Call 714-361-6180 for more information.
nationalmssociety.org | 1-800-344-4867
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Volunteers
Join the Volunteer Leadership Team
“I came to San Diego two years ago for the sun and warmth. As a person with MS I was very involved at the Boston Chapter as a leader volunteer. Once I got here I wanted to be just as involved. The opportunity came for me to organize and manage a volunteer project which was providing ushers at the Valley View Casino Center for concerts. For each concert we usher the chapter is paid for providing the volunteers. The funds are used to help people with MS locally. I love being involved and now have a waiting list of volunteers who want to be part of the concert series!” - Marianne Dilworth “My wife, Ginny and I arrived in San Diego from New York last year. We wanted to be involved and experience everything this chapter had to offer. An opportunity presented itself from the concession organizers of the 2015 Farmers Insurance Golf Tournament. For every volunteer the Society provided to work the concession stands the chapter would be paid for the volunteer’s time. I was asked and agreed to head up this opportunity; recruiting, organizing and scheduling volunteers for the entire
four days of the tournament. Tournament officials were so impressed with our chapter volunteers that they want us back next February for the 2016 tournament. I look forward to leading this event again!” - Mark Mahigian “I have been volunteering for the Society with my friend Marianne for the past several years. Another paid volunteer opportunity for the Chapter to raise funds for people living with MS has presented itself through Ace Parking by providing route marshals at the Rock ‘n’ Roll Marathon on May 31st. I was the leader of this event and the experience was fantastic even though it meant starting at 3:00 AM!” - Bettie Jo Adams Marianne, Mark and Bettie Jo have formed a volunteer leadership team to identify paid volunteer opportunities for the chapter. They are seeking leaders who want to be part of their team. If you are interested and want to find out about the qualifications, please email your name and phone number to casvolunteerleaders@nmss.org.
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MS connection: Summer 2015
2015 RESEARCH LAB TOURS A GREAT SUCCESS! Golden Circle donors and top recruiting Walk MS team captains enjoyed learning about the advancements to stop disease progression, restore lost function, and end MS forever. Last year the Society invested $50.6 million in 380 new and ongoing research projects and initiatives.
SPONSORED BY
Pictured: Ronda Bair, Addie Martini, Cindy Locke, Karen Krueger, & Carina Locke
JOIN THE GOLDEN CIRCLE
Bubbles and Brunch
Golden Circle members generously donate $1,000+ in the calendar year! What are the benefits of membership?
by Cindy Locke
• Unmatched access to breaking research news • Invitations throughout the year to exclusive Golden Circle events such as VIP receptions or MS Research Lab Tours • Subscriptions to “Momentum” and “MSConnection” magazines • Invitations to participate in national research calls and conferences • Recognition as a leader in the MS movement • And so much more! For more information, visit goldencircle.MSpacific.org or contact Erich Foeckler at (760) 448-8412 or erich.foeckler@nmss.org
Join me for the 2nd Annual Bubbles & Brunch to End MS sponsored by Biogen on Saturday, August 29 at the beautiful Balboa Bay Club & Resort. As the Committee Chair for this event, I can promise you it will be an incredible morning filled with a delightful mimosa-laced reception, delicious three-course brunch, premier silent auction and wonderful supporters connecting for a cure. This year’s emcee will be Eileen Frere, the Orange County bureau chief for ABC7 Eyewitness News, and our Keynote Speaker will be Kate Milliken, founder of Milligrace Productions and creator of MyCounterpane.com. As a person living with MS, I personally know the impact events like this make in moving us closer toward a world free of MS. For more information or to purchase your tickets visit BubblesandBrunch.org or contact 800-486-6762.
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nationalmssociety.org | 1-800-344-4867
funding the mission
event highlights
21ST ANNUAL
Tour of Champions & the top 150 fundraisers Last year, the Bike MS 150 Club (the overall top ranking 150 individual fundraisers) raised an incredible $1,011,325. What is even more impressing is that there were 26 cyclists who each personally fundraised over $10,000, qualifying them for the Tour of Champions. This year’s Tour of Champions was a special event held the weekend of May 1, 2015 at La Casa Del Zorro Resort and Spa in Borrego Springs. The weekend kicked off with an informal get together, followed by a short and fun Saturday morning bike ride. The highlight of the weekend was the private dinner catered by Chef Indo at the Happy Days house followed by a fundraising brainstorming session. A huge thank you goes out to board member Ally McGrory and the McGrory Family Fund for underwriting this incredible weekend. We look forward to next year’s event, March 1-3, 2016 as we hope to see even more riders qualify!
MS GOLF INVITATIONAL A SUCCESS! The 21st Annual MS Golf Invitational sponsored by Torrey Pines Bank at La Jolla Country Club was an astounding success. The event included 128 golfers, who raised over $210,000 to support the Society’s mission. It was a record breaking year thanks to our incredible sponsors, passionate committee members, remarkable event Chair, Doug Barnhart, and all those in attendance. View pictures of the event and learn more about the event’s success at GolfMS.org. Interested in getting involved in 2016? To become a sponsor, reserve a foursome or join the committee, contact heather.dean@nmss.org or call 800-486-6762 for more information.
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MS connection: Summer 2015
scholarship recipients
MS shouldn’t stand in the way of a college education. The Carol & Bob Webster Memorial Scholarship Fund helps to alleviate some of the financial burdens experienced by families affected by MS. This year, 21 students residing in San Diego, Orange, Imperial counties and the Hawaiian Islands were awarded scholarships.
Julia Hiserodt
University of California, Los Angeles
In addition to receiving the Carol & Bob Webster Memorial Scholarship, Julie is being recognized as a 2015 National Multiple Sclerosis Society Top Scholar. This special honor was given to 10 recipients nationwide who have shown exceptional performance.
“My goal while I am here at UCLA is to learn as much as I can about research, about how to approach research and how to be a great scientist. I am currently striving to enhance my analytical and critical thinking skills, my creativity, and my collaborative and communication abilities in order to become a productive MS researcher. Throughout my career, I hope to make large strides in the fight to end MS.”
Hayley Krieger
University of California, Berkeley “I would like to do impactful work in either public policy or a human rights organization.”
Keli Jackson
University of Colorado at Boulder “I am majoring in integrative physiology in hopes of becoming a doctor.”
Cecelia Hidalgo
University of San Diego “Maintaining a high GPA, being an active philanthropist, assisting in scientific research, and staying focused are important goals for medical school acceptance.”
Briana Vecchione
Pace University Computer “I want to get a Ph.D in s on Data asi Science with an emph g.” rin ee gin Science En
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nationalmssociety.org | 1-800-344-4867
Timothy Black
Point Loma Nazarene University “My natural talent for science led me to realize that I want to practice medicine for a living.”
Jaimee Horn
California State University, Channel Islands “I am very excited to major in business to explore a wide range of career opportunities.”
James Talay
State University of New York Maritime College “I will be well positioned to pursue a commission in the Navy, Coast Guard or Merchant Marines.”
Jacquelyn H
arvey University of California, Irvi ne “What I really ho pe to do in life is make a differen ce in families’ lives by making sure their children ar e healthy, as a ne onatal nurse.”
Mia Altieri
Anthony John Cordero
University of California, Santa Cruz
“Math is the gateway that led me to explore both computer science and engineering.”
Caitlyn Filippone
Kristine Donegan
Grand Canyon University “I plan to complete my major in Pre Pharmacy and minor in Business Management.”
San Diego State University
“Every psychology course I have taken has reinforced to me that this is my destiny.”
Jessica Magana
Gordon College “l hope to get a job in any federal agency where I can put my studies in political science, sociology and pre-law to work.”
Alexis Harvey
• •
Michele Whitney
ty Arizona State Universi “I would like to major in on either Business or Fashi Merchandising. My goal a is to become a buyer for ” ny. compa
Cassandra Ochoa
California State Unive rsity, Los Angeles “My aspiration to becom ea doctor stems from my mo ther’s diagnosis of MS.”
Meagan Blanton
Special thanks to these sponsors for their gene
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Geneva West
San Francisco State University “My ultimate goal is to help others, and right now I see myself being able to do that through teaching.”
University of Hawaii at Manoa “My goal is to open my own rehab practice combining physical therapy and psychotherapy to help people deal with both physical and mental trauma.
ensuring that MS does not stand in the way of
Gonzaga University “I have dreamt of a career working with computers. I hope to pursue a Master’s or Doctorate degree in the engineering field.”
rosity and commitment to
an education. Carol & Bob Webster Memorial Scholarship Fund
West Coast University “My ultimate goal is to be a working nurse helping people.”
McGrory Family Fund of the Jewish Community Foundation O.L. Halsell Foundation
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Walter J. and Betty C. Zable Foundation If you would like to fund scholarships for deser
ving students impacted by MS, please contact us at 1-800-486-6762. To learn more about our national scholarships, visit NationalMSsociety.org/scho larship.
cGrew Madison fM San Diego
o University al come a soci e b “I want to on o g ly most like worker, and me co e b school to to graduate ” t. is p a family thera
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MS connection: Summer 2015
RESEARCH
Have a voice in MS research Today, there are more options than ever before for people with multiple sclerosis to help drive MS research. They can choose to participate in clinical trials, donate DNA through blood samples, or complete health surveys. No matter where they live, what their background is, or what stage of the disease they are in, people with MS are at the heart of MS research. Here are some of the ways you can make your voice count.
Participate in clinical trials From testing a potential new therapy for MS to trying an exercise program to help manage symptoms of fatigue or spasticity, people with MS who participate in clinical trials make it possible to bring new medications and symptom-management strategies from the lab to their doctor’s office.
Who knows more about MS and its diverse impacts on life than people who live with this disease every day?
“The willingness of people with MS to participate in research studies and clinical trials is vital to understanding the complexities of the disease and to developing better treatments,” says Timothy Coetzee, PhD, Chief Advocacy, Services and Research Officer at the National MS Society. “They are the experts - who else knows more about MS and its diverse impacts on life than people who live with this disease every day?” In fact, researchers are increasingly looking at “patient-reported outcomes,” gathering information directly from individuals participating in studies to better capture how a treatment makes people feel. For more information on how to participate in current clinical trials, visit www. nationalMSsociety.org/clinicaltrials or search www.clinicaltrials.gov for ongoing MS research.
nationalmssociety.org | 1-800-344-4867
NARCOMS: Data that counts Participating in the North American Research Committee on Multiple Sclerosis, or NARCOMS, is another way people with MS can express their willingness to participate in MS research. Since its founding in 1993, more than 37,500 people with MS across the globe have joined its registry and more than 80 papers with research results utilizing data provided by participants have been published. Anyone with a diagnosis of MS can participate in NARCOMS. Visit www.narcoms.org to learn more.
iConquerMS™: Ask those with MS “If you want to know what it is like to live with MS, or how different lifestyle choices impact a person’s quality of life, or what questions people with MS are most interested in exploring, you ask those living with the disease,” says Lisa Emrich, a Washington, DC-based writer and blogger who was diagnosed with MS in 2005. Emrich is one of the first to sign up to participate in a new initiative, iConquerMS™, a unique patient-centered data collection system that allows people with MS to safely and securely share their health information and ideas for MS research with MS researchers nationwide.
17 If you want to know what it is like to live with MS, you ask those living with the disease. Through its online portal at www.iConquerMS. org, people with MS can share their health information and ideas about research. MS researchers can then use this shared data to find patterns in the disease that may not be visible otherwise, opening the potential to identify causes of MS, determine who will respond best to what therapy, and find new improved treatments for the disease. iConquerMS™ is focused on research topics driven by people with MS, and governed by people with MS at every step of the process. As part of a larger nationwide research network called PCORnet, iConquerMS™ contributes health data to many research efforts, while also providing MS researchers access to data from millions of people across the country. To learn more about the many ways you can help drive MS research forward, visit www.nationalMSsociety.org/Research/ Participate-in-Research-Studies or call us at 1-800-344-4867.
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MS connection: Summer 2015
sponsorship
WALK MS RAISES NEARLY $1.6 MILLION! Thank you to the following walk ms sponsors: presenting SPONSORs
platinum SPONSORs During the month of April, more than 10,000 participants and volunteers raised nearly $1,600,000 at Walk MS! Funds raised at Walk MS provide assistance to individuals affected by MS right here in our own community. Thank you to everyone who came out and helped make this year’s Walk MS a success! A special thank you to all of our Walk MS sponsors who either supported the event with cash to underwrite expenses or donated goods and services which allowed the Society to contribute more towards creating a world free of MS. Be a part of the fun in 2016 by visiting MSwalk.com. For more information about how you can become a Walk MS Sponsor, contact Maria Brooks at 760-448-8422 or Maria.Brooks@nmss.org.
gold SPONSORs
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nationalmssociety.org | 1-800-344-4867
Thank you to the following walk ms sponsors: SAN DIEGO/CARLSBAD TITLE SPONSOR
San Diego County Credit Union has supported Walk MS for over a decade! Through corporate sponsorship and team fundraising, SDCCU has raised nearly $1.2 million for the Chapter. They also rock the Walk recruiting more than 100 employees, friends, and customers every year! SDCCU has engaged nearly 3,000 employees, along with their friends and family over the past 13 years.
ORANGE COUNTY TITLE SPONSOR
Since being established in 2007, Fish & Tsang has done extraordinary work on the forefront of pioneering advances that change the world. Today, as Fish & Tsang supports innovators in biomedical, biotechnology, pharmaceuticals and medical devices, it also supports breakthroughs being made to find a cure for MS.
MUCKFEST MS LOS ANGELES 5K MUD OBSTACLE RUN Saturday, October 24, 2015 PRADO REGIONAL PARK, CHINO REGISTER TODAY: MUCKFEST.ORG
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MS connection: Summer 2015
Living with MS
Keep Your Cool Thinking about the heat? The Pacific South Coast Chapter has you in mind as the sweltering summer heat makes its way into your home. We want to help you stay cool this summer by preparing you with resources that may assist with air conditioning installation/repair, portable air conditioners, cooling products, high summer utility bills, and cooling zones. Check out these resources when temperatures start to soar:
Air Conditioner (A/C) Installation/ Repair: • Home Advisor For a list of screened A/C service professionals, we suggest contacting HomeAdvisor who can help with free tools and resources for air conditioning installation, service, or repair-just call (877) 800-3177.
Financial Assistance for Air Conditioners, Cooling Garments and so much more • 2-1-1 Information and Referral Search 2-1-1 can provide you with information about local charities and community organizations that can assist you with cooling your home and referrals to local cooling zones. Dial 2-1-1 or visit www.211us.org.
• MS Association of America Cooling Program The MSAA Cooling Program offers cooling vests and accessories for adults and children living with MS. If you have any questions, please call MSAA at (800) 532-7667 or email clientservices@mymsaa.org. • MS Foundation Program
Assistive
Technology
The MSF Assistive Technology (AT) Program may provide assistance with funding for a wide range of devices that allow individuals with MS to function more independently in activities of daily living including air conditioners. Please call (888) 673-6287 or visit www.msfocus.org for more information. • National MS Society Financial Assistance Program The National MS Society has a limited financial assistance program that can be used for an MSrelated expense. We ask that you access the community resources (above) first, but you are welcome to apply to this financial assistance program if you have been diagnosed with MS and need additional assistance cooling your home. For more information, please call (800) 344-4867 and a MS Navigator will be able to assist you.
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nationalmssociety.org | 1-800-344-4867
san diego’s premier charity event 29th annual MS Dinner auction
Saturday, November 21, 2015 Loews Coronado Bay Resort MSdinnerauction.com
MS connection: Summer 2015
PAID ADVERTISEMENT Tuesday, June 30, 2015 1:00 PMPacific Brigantine Seafood Restaurant 13445 Poway Road Poway, CA 92064
Revere Kinkel, MD
Director, MS Program, UCSD, Professor, Neurology UCSD
TR300157 (1235362)
Aug. 28-30
For rates and information contact by June 30: 714.335.1833 youniqueescapes@gmail.com
Camp for MS Caregivers
When was the last time YOU had 48-hours dedicated to YOU with the opportunity to relive the fun days of camp or experience it for the first time? Join MS caregivers for an escape to refresh, relax, rejuvenate, reimagine, reenergize, reinvigorate, recharge, renew and REST at an upscale camp in Julian, CA.
Activity possibilities: Massage ● Facial ● Hike ● Swim ● Zip line ● Crafts ● Campfire ● Yoga ● Eat chocolate ● Read ● Climb a wall ● Nap ● Tennis ● S’mores ● Line dance ● Bunco ● Meditation ● Archery ● Horseback ride ● Challenge course ● No cooking ● No cleaning ● No stress ● NOT A CARE IN THE WORLD!
PAID ADVERTISEMENT
We know that living with multiple sclerosis (MS) can present some pretty large challenges. At Biogen™, we are committed to patients through ongoing research and support services to help meet unmet needs in the management of MS. Visit biogen.com or call 1 800 456 2255.
Pacific South Coast Chapter 12121 Scripps Summit Drive, Suite 190 San Diego, CA 92131
NON-PROFIT ORGANIZATION U.S. POSTAGE PAID San Diego, CA Permit # 451
mark your
calendars July 11: Orange County MS Symposium 21 & 23: Gender Differences in MS Telelearning August 12: Scripps Lecture Series - Exercise & Nutrition 15: Moving Forward 29: Bubbles & Brunch to End MS September 2: Scripps Lecture Series - MS & Your Emotions 15 & 17: Preparing for MS Doctor Visits Telelearning 25-27: Challenge Walk MS
Have you ever dreamed about running/walking a marathon or half marathon? What about a Come join the MS Rockstars Endurance Training Program and participate the TriRock San Diego Triathlon on relayinwith some friends? Have you ever dreamed about participating in an endurance event? What about a relay with some friends? We can help you make it happen!
September 20, 2015.
Learn more by visiting: MSrockstars.com