ARIZONA CHAP TER
MOVING TOWARD A WORLD FREE OF MS | 2011 • FALL • VOL 4
WALK MS “WALK ON THE WILD SIDE” PHOENIX AND PRESCOTT WALKS ARE HERE!
Walk MS is the rallying point of the MS movement, a community coming together to raise funds and celebrate hope for the future. The 4th annual Prescott Walk MS will take place on Saturday, October 1, 2011. The walk kicks-off at 9:30 am along the breathtaking Willow Lake Trail and through the Heritage Park Zoo. The 24th annual Phoenix Walk MS will take place on Saturday, November 5, 2011. The walk kicks-off at 7:00 am through the Phoenix Zoo and the beautiful Desert Botanical Garden. How can you get involved? Start a walk team or join a team! Volunteer before, during or after the event! Please contact Lisa Cleary,
Walk MS Phoenix 2010
Development Manager, if you’re INSIDELOOK interested in getting involved at Board Member lisa.cleary@nmss.org or Sue Kelly Honored (480) 968-2488, Option 2, Ext. 228. PAGE 2 For more information or to register today at: www.walkmsarizona.org.
INSIDE THIS ISSUE
Scholarship Program Page 2
Message from the President Page 3
Annual Meeting 2012 Page 5
Welcome New Board Members Page 7
ARIZONA CHAPTER
Publication of the National Multiple Sclerosis Society Arizona Chapter Chapter Office: 5025 E Washington St, Suite 102 Phoenix, AZ 85034 (800) 344-4867 www.arizonaMS.org Chapter President Jim Elfline Development Director Brandee Wessel MSConnection Editor Jessica Read The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.
National MS Society scholarship program: because ms shouldn’t stand in the way of an education
High-school seniors who have been diagnosed with MS or who have a parent living with MS are eligible for the National MS Society’s scholarship program. Additional criteria include financial need, academic record, participation in school or community activities, and an essay on the impact of MS on his or her life. Awards range from $1,000–$3,000 and a small number of four-year awards are offered. Applications for 2012 scholarships will be accepted (online only) between October 1, 2011 and January 13, 2012. For more information, visit nationalMSsociety.org/scholarship or call 1-800-344-4867 (1-800-FIGHT-MS).
BOARD MEMBER HONORED
Congratulations to Sue Kelly, winner of the March of Dimes 2011 Nurse of the Year Community Service Award! Sue is a tremendous asset to the Chapter serving on the Board of Directors, and as the Chair of the Women Against MS Luncheon. Thank you Sue for all that you do in our community!
We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.
Dan & Sue Kelly
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PRESIDENT’S COLUMN
MESSAGE FROM THE PRESIDENT “You are basically setting the table...there’s no real meal cooked.” Rahm Emanuel. Mayor Emanuel was talking about his first 100 days in office and his point was patience and that change takes time. While it hasn’t quite been 100 days for me, I understand the underlying message is that only so much can be accomplished in a short period. Unfortunately, we do not have the luxury of time. People with MS, their family and friends are looking for progress and looking for the Society to be there when you need us. I’ve heard this from many of you while I’ve conducted “town hall” style meetings throughout Arizona. I do believe success starts with fulfillment of our mission. The organization cannot raise funds, build community partnerships, increase volunteerism and be effective advocates unless we meet the needs of people we serve. To that end, you will start seeing a number of new programs designed to improve
Chapter President Jim Elfline
quality of life. Through a new set of programs participants will discover how to reclaim a sense of well-being and reinvent their approach to life with MS. We are putting more resources toward research that will stop MS in its tracks, restore what’s been lost and end MS forever. The Society is making a commitment to raise $250 million by the end of 2015. This is our chance to take down MS once and for all, and ensure that every promising path is followed. The table has been set. Now it is up to us to deliver on our
promise to accelerate and expand support of families living with MS here in Arizona. This is a critical moment in our history and I believe together we can change the future for everyone living with multiple sclerosis today. Jim Elfline Chapter President
FOLLOWJIM Where in Arizona is Jim headed next? Follow him on Twitter at @NMSSAZPresident to find out.
TOLL FREE NUMBER 1 800 344 4867
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October 12, 2011 11:30am El Palacio of Bullhead City 1885 Highway 95 Bullhead City, AZ 86442
Please RSVP by October 11, 2011 by calling 800-973-0362.
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ANNUAL MEETING
GAINING MOMENTUM: 2012 ANNUAL MEETING Whether you are living with MS, love someone with MS or provide volunteer service to the chapter, spend your morning with us at Gaining Momentum: 2012 Annual Meeting. The Annual Meeting is an opportunity for all of our members and supporters to learn the ways in which we are addressing the challenges of each person whose life is affected by MS. This year, the keynote address is a panel comprised of medical professionals who will provide an update on promising MS research. There are a few “business” items on the agenda as well. Members will get a chance to hear about the successes and challenges of the past year and provide our goals for the upcoming year. Most importantly, it is our chance to recognize the outstanding efforts of volunteers,
Disability Empowerment Center
members, fundraisers and community partners. Come early and browse our MS Community Partners Expo and visit with volunteers and staff who plan our many quality programs and special events. The annual meeting is a unique opportunity to get to meet the chapter’s Board of Directors
DOMORE If you or someone you know would like to be considered as a candidate for the board, send an e-mail letter of interest to info@aza.nmss.org. Nominations must be submitted by November 10th. All nominees will be considered by the Chapter’s Governance Committee.
JOINUS Saturday, December 10th 9 am - 12 pm Nina Mason Pulliam Conference Center at the Disability Empowerment Center 5025 E. Washington Street Phoenix, AZ 85034 and learn our plans in moving forward to create a world free of MS beginning right here in Arizona! Registration is $5 and includes breakfast. To register, please visit our chapter website at www.arizonaMS.org.
TOLL FREE NUMBER 1 800 344 4867
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SELF-HELP GROUP
SUSAN RHODES GOES BEYOND MS RESEARCH Susan Rhodes leads a women’s group that meets in Phoenix at St. Joseph’s Hospital. Susan has been leading the group for about twelve years. She got involved with leading the group when her daughter was diagnosed with multiple sclerosis nearly twenty years ago. Susan said that she wanted to learn more about the disease and get more involved. Shortly after her daughter’s diagnosis, Susan, who holds her Master’s degree in Zoology from ASU, began lobbying for BNI to appoint an MS specialist on their team. The MS Specialist that joined hired Susan to assist in setting up and gathering a team of researchers to conduct MS research. Susan, who is now involved in molecular research for the diagnosis of infectious
diseases, enjoys leading her self-help group and has attracted many valuable guest speakers during her tenure. She said that the group originally started as a mother-daughter group but that it has now evolved into a women’s group.
JOINTHECONVERSATION More information for this group and all of the groups in Arizona can be found on our website at www.arizonams.org under the “Programs and Services” tab on the left side of the page. 6
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When asked for her advice for someone interested in joining an NMSS self-help group, Susan said, “Try several different groups, and get on the phone and talk to the leader of the group. All of the leaders are caring.” Susan went on to say, “Talk to other group members, and get a feel for what goes on in the group.” If you are interested in attending this self-help group, they meet on the last Saturday of the month at 10:00 am at St. Joseph’s hospital.
BOARD SPOTLIGHT
WELCOME NEW BOARD MEMBERS Bob Hobbs, Jr. is a partner at Tallwave. Bob helps develop strategic business relationships with investors and Fortune 1000 companies. Tallwave invests time, expertise and shared service resources into emerging technology companies with substantial growth potential. Tallwave also works with established businesses to drive digital growth and efficiencies. Before Tallwave, Bob played a vital role in the development of Naumann/Hobbs Material Handling. He served as Executive Vice President and was responsible for business development, sales & marketing, advertising,
Bob Hoobs, Jr.
public relations and customer service training. During this time, Hobbs also was a partner in a business with The Associates Group, and was hired by Mitsubishi Caterpillar Forklift of America (MCFA). After graduating from Arizona State University with a B.S. in Communications, Bob honed his creative skills while working as a consultant for the largest direct mail marketing firm in the US. Bob is married to his wife Michelle and has three children, Trey, Kelsey and Carsten. Dr. Doug Mykol, N.D. earned his doctorate in Naturopathic Medicine in 1992; however, Doug’s career has always been developing business ventures. He has over 20 years’ experience developing businesses and products for private and corporate jet owners/operators. Initially building an aircrew emergency training company, he expanded the business to include training centers across the U.S., Europe and Asia.
In addition to experience in business management and public speaking, Doug has authored many professional papers, reference materials, and specialized programs, which are now offered worldwide. After 20+ years of success, he sold his businesses in 2010. Doug was diagnosed with MS, in 2006. Since then, he has supported MS research and programs through the Greater Northwest Chapter. Enjoying life in Scottsdale, Arizona and now seeking new challenges, Doug is looking forward to working with the Arizona Chapter.
Dr. Doug Mykol, N.D.
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PAID ADVERTISEMENT 8
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Ride the Vortex
Sedona Verde Valley presented by:
Join us for Bike MS: Ride the Vortex - Sedona Verde Valley, Arizona’s premier cycling event! We have route options for every level of cyclist, ranging from 30 to 100 miles, so you will surely find a route fit for you. Come enjoy delicious meals and strong support, with rest stops every 10 miles. A fantastic festival awaits you at the finish on Saturday afternoon with great food, music, a beer garden, massage tent and fun games. Most importantly, you will not only get an unforgettable weekend, but a chance to make a difference for people with multiple sclerosis. The money you raise will support education, advocacy, research and local programs that enhance the quality of life for people with MS and their families.
Visit us online at www.bikeMSarizona.org or call toll free at 1.800.344.4867 TOLL FREE NUMBER 1 800 344 4867
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connect, learn & share Learn more about living with relapsing MS and a treatment option through this informative discussion featuring health care professionals and people living with relapsing MS. Connect with others like you and share your experiences! Don’t Miss These Programs in the Phoenix Area Weds Oct 26
Selected Topics in Relapsing MS Old Spaghetti Factory 1418 North Central Avenue, Phoenix, AZ
Weds Nov 9
Living with MS Rock Bottom Restaurant 21001 North Tatum Blvd., Phoenix, AZ
Thurs Dec 1
Skin Wellness Chompies Restaurant 9301 East Shea Blvd., Scottsdale, AZ
We’ll save you a seat. Register today! Call 1-877-969-1722. program sponsored by
Speakers and MS LifeLines® Ambassadors who participate in live events are sponsored by EMD Serono, Inc. and Pfizer Inc. Pfizer respects your privacy. We require your RSVP for headcount only. When you RSVP, it is not necessary to provide your name; you should simply identify yourself as a consumer who is accepting the invitation. Pfizer’s educational programs for consumers are conducted in accordance with the same high ethical standards that we apply to our programs for health care professionals. The purpose of consumer programs is to educate you on general health care issues. Pfizer cannot provide diagnosis, treatment or other medical advice to you. If you have any medical questions regarding your own health, diagnosis or treatment, please consult your health care provider. MS LifeLines is an educational support service for people living with MS and their families, and is sponsored by EMD Serono, Inc. and Pfizer Inc. MS LifeLines is a registered trademark of EMD Serono, Inc. or its affiliates. © 2010 EMD Serono, Inc. All rights reserved. RBU00710
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Irish Mist 4 MS presents The 5th Annual Irish Mist Golf Scramble Saturday, March 17, 2012 from 11:30 am to 6 pm. This year’s event will be held at Club West Golf Club (16400 South 14th Avenue, Phoenix, Arizona 85045). The cost of the event per player is $125.00. Each player will receive a player pack, green fees, range balls and dinner. The Irish Mist Golf Scramble will be benefiting the National Multiple Sclerosis Society, Arizona Chapter, Emergency Financial Assistance Program. This program provides resource for Arizonans living with MS. These clients often need just a small amount of assistance to help them make home modifications, pay rent, utilities or purchase groceries. If you’re not a golfer, come and join us for dinner, the cost is $40 a ticket. For more information call Tracy @ 602-694-3576 or Pat @ 605-558-1888 or visit our website www.irishmist4ms.org
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New Promotion for Client Programs!
Beginning October 1st 2011, our chapter will have a new way of letting you know about local education & exercise programs. Keep an eye out for a quarterly Programs Connection flier. The Programs Connection will feature upcoming event for a 3 month period and includes exciting classes for exercise, education & more. Don’t forget that all the chapter’s upcoming programs can be viewed online at http://calendar.arizonaMS.org.
aloft Phoenix-Airport Shake things up with free WiFi, parking, shuttle and more! We’re located a few minutes from the Phoenix Airport, downtown Phoenix and Tempe. For reservations contact Shannon Monroe at 602 275 6300 x 4102. 4450 East Washington, Phoenix, AZ 85034 © 2011 Starwood Hotels & Resorts Worldwide, Inc. All Rights Reserved. Aloft and its logo are the trademarks of Starwood Hotels & Resorts Worldwide, Inc., or its affiliates.
Finding the Right MS Treatment for You Learning about Multiple Sclerosis (MS) is essential to managing its symptoms. Join us as a local physician presents the science behind MS, current therapies to treat MS and insight into managing the disease.
Tuesday, November 15, 2011 Registration: 5:30pm – 6:30pm Program: 6:30pm – 8:00pm
Phoenix Airport Marriott 1101 North 44th Street Phoenix, AZ 85008
Featuring: Barry Hendin, MD
Phoenix Neurological Associates Clinical Professor of Neurology at the University of Arizona
Matthew Cavallo, MS Advocate
MSActiveSource is a Registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2010 Biogen Idec. All rights reserved
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0-3639-02
September 21, 2011 6:00pm Mr. C's Supper Club 282 W. View Point Dr. Nogales, AZ 85621
Please RSVP by September 20, 2011 by calling 800-973-0362.
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Therapeutic Updates in Multiple Sclerosis Learning about Multiple Sclerosis (MS) is essential to managing its symptoms. Join us as a local physician presents the science behind MS, current therapies to treat MS and insight into managing the disease.
Thursday, November 17, 2011 Registration: 5:30pm – 6:00pm Program: 6:00pm – 8:00pm
Radisson Hotel Yuma
1501 South Redondo Center Drive Yuma, AZ 85365
Featuring:
Lori Travis, MD
Neurologist Phoenix Neurological Associates Clinical Assistant Professor of Neurology, University of Arizona
John Austin, MS Advocate MSActiveSource is a Registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2010 Biogen Idec. All rights reserved
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Oct. 19, 2011 11:30am The Wigwam Restaurant 300 East Wigwam Blvd. Litchfield Park, AZ 85340
Please RSVP by Oct. 17, 2011 by calling 800-973-0362.
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Arizona Chapter 5025 E Washington St, Suite 102 Phoenix, AZ 85034
CALENDAR OF EVENTS
OCTOBER 1 5 6 8 14-16 19
Walk MS - Prescott (walkMSarizona.org) MS Therapeutic Recreation - Tuscon The Meaning of Mindfulness (6 weekly sessions) - Tuscon Boys Night Out Boat Trip - Barlett Lake Wild West Festival Newly Diagnosed: Moving Forward- Phoenix & Teleconference MS Therapeutic Recreation - Tuscon
NOVEMBER 2 5
MS Therapeutic Recreation - Tuscon Walk MS - Phoenix (walkMSarizona.org)
DECEMBER 10 Gaining Momentum: 2012 Annual Meeting - Phoenix 10 Free from Falls - Tuscon For details on these and other programs and events, visit calendar.arizonaMS.org
Find out on page 9!
Guess where Bike MS is headed?